lou, how nice to see your blog! Maybe you will not be so alone with the "motley crew" here to help. It will help everyone if you add a "signature", so that we know what you have, how long, and anything else pertinent. I believe you have fairly advanced MSi [1]. Correct? You are in really good company.

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Rica PPMSi [5] EDSSi [6] 6.7 at beginning - now 2. Began CAPi [7] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [2] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [8] total 55 pulses LDNi [9] Rifampin 8/08 again NC USA

Loulou,

You have started to walk in a long way and I am sure you will see the light. I am writing on behalf of my mum, she has MSi [1] for 14 years and she completed her 15th month in CAPi [7]. She also feels more tired as you but this can be due to the huge bacteria killing.

Hope mum and you will be recover very soon:)

Bests,

Özlem 

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Spokesperson for my mother, MSi [1] for 14 years(technically), on Wheldon protocol since 03/07. rulid & tetradox, nidazole pulses, NAC600, Acidophilus, Milk Thistle, CoQ10, Calcium Citrate, Ester C, Omega-3, Devit-3, Benexol, Vitamin B. Now added questran

lou, it would also be helpful if you mention what, if anything, you are doing to help your body rid itself of any toxins that have been stirred up. They very definitely inpact our energy and attitude.

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Rica PPMSi [5] EDSSi [6] 6.7 at beginning - now 2. Began CAPi [7] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [2] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [8] total 55 pulses LDNi [9] Rifampin 8/08 again NC USA

Hello,

How to rid myself of any toxins that have been built up is still a question to me?

Also, how to add a signature is so petinent also.

I'll have to figure that one out but I will!!

 

Please send me any further instructions, if you will.

I remain indebted and grateful for any and all help I can get.

 

Loulou

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diagnosed MSi [1] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [2] 100 mg. 1BID. roxyi [3].150 mg.? BID,adding rifampin soon, pulsed tinii [4]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

Loulou, I hope you will feel better very soon.

This is a terrible infection to have as we all knows.

Wish we all could get cured at once.

But I think that day when we feel healty/better will  come!

Just keep going and do everything that helps you feel better (moppers and so on)

Wish you all the best and a full recovery.

Take care, Maria

I'm curious. You're five months on the protocol and you've already done SIX pulses? Too much, too soon, I think. No wonder you feel like trash.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hello Mac,

I think I'm starting to agree with you.I have been following the Wheldon Protocol in earnest since Feb. So with the guidelines ,that has worked out to 6 pulses of tinidazole.

Prior to that I have been on varying antibioticsi [10] - both orally and intravenously since 2002.

Also, no MSi [1] drugs since that time. Diagnosed with MS in Jan. 2000. Diagnosed with lyme disease and babesia in Nov. 2002.

Many trying times.Many varying opinions. I seem to be trying so hard to get better. I've pretty much given up on that one. I am at the point wherein I am just seeking disease stoppage. It seems like the damage has already been done.

Protocolsi [11] for lyme, MS using antibiotics are so similar. Makes me wonder and always think of questions to which I generally am offered non definitive answers.

I keep looking and asking .

Thank you Mac. You are so knowledgeable!!!!!Hope you can write back, if not on the forum then privately.

 

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diagnosed MSi [1] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [2] 100 mg. 1BID. roxyi [3].150 mg.? BID,adding rifampin soon, pulsed tinii [4]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

Check your private messages! ;-)

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

2 500 mg. caps of tinidazole every 3 weeks.

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diagnosed MSi [1] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [2] 100 mg. 1BID. roxyi [3].150 mg.? BID,adding rifampin soon, pulsed tinii [4]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

Tinidazole forgot to say 2 500 mg. caps of tini. every 3 weeks for 5 day period.

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diagnosed MSi [1] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [2] 100 mg. 1BID. roxyi [3].150 mg.? BID,adding rifampin soon, pulsed tinii [4]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

Lou if you go to the 'getting started' module (blue tab at the top of the page) and this [12] page in particular it will give you instructions on how to create a signature amongst other things.  

You must remember that 5 months of treatment is just the beginning... My daughter took a full year to get to the position of being able to manage a full pulse and two year + she is still experiencing exascerbations. 

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Michèle (UK) GFAi [13]: Wheldon CAPi [7] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [8] pulse. Zoo keeper for Ella, RRMSi [14], At worse EDSSi [6] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

lou,

I have been on the protocol for more than a year & prior to that I was building up the supplementsi [15] for 2 months.  I have just completed pulse #11 with 2 500 Mg tabs of Flagyli [8] for the full 5 days---this was my first time.  It took me 12 months to build up to that dosage.

 

take it easy & be good to yourself.

 

r

 

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CFIDSi [16]/ME 32 yrs, FMSi [17], IBSi [18], EBVi [19], CMV, Cpni [20], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Lou, have you been pulsing flagyli [8] from the start?  That's the only way you could have fitted in six pulses between February and now.  David always recommends waiting at least three months before you start.

For others while Lou works out how to do a signature, she has secondary progressive multiple sclerosisi [1], so it was advisable to start antibioticsi [10] straight away rather than building up her resources with supplementsi [15] first.  If I remember correctly she also has an impatient GP who wants to see results sooner rather than later.  Good job he wasn't Rica's doc in that case.

Lou, don't give up on getting better after just five months.  You are unlikely ever to be perfect, I'm not, but I have stopped progression and got a lot back.  It takes time, though, many new neural pathways to find and nerves to remyelinate.  The good thing is that when you have got rid of the infection(s) and have completed the protocol, you will still continue to improve..........Sarah

An Itinerary in Light and Shadow

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