Hi Bonnie, your body will be working very, very hard during the war you have taken on. Over and over I say that these bugs do not go quietly. I could say something like "Get used to it", but I would rather you discover it for yourself. I also say that for me, it has been worth it. You need to add a signature so that we know what the problems are. It is helpful. And your intake of water is a good thing. The sweating is also a telltale symptom - you are no doubt getting rid of unwanted passengers. Try to rest - the exhaustion is something we all know well. Eventually this gets better. This will not do paragraphs!

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Rica PPMSi [8] EDSSi [9] 6.7 at beginning - now 2. Began CAPi [3] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [2] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [10] total 55 pulses LDNi [11] Rifampin 8/08 again NC USA

Bonnie, I know I have commented to you before.  What would be helpful however is if you can go to My Account and write a signature that gives us more information regarding where you are in the progressing on CAPi [3].  I know it is often a challenge to get it sorted out, just spent several rounds trying to get what I want to say included. 

I'll keep my eye open for your signature update and respond later once I can recall more about your treatment plan as it stands now.

Blessing to you, Louise

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Louise  CFSi [5], CPN+/Bb+,Wheldon CAPi [3] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [12] & Endotoxinsi [13] PRN, Doxyi [2] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

Horses, Try the sublingual B12 to get you over the hump. There were times I was going through a dozen tabs a day to counteract fatigue. I still take three first thing in the morning.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

If it's any help, I get the sweats like crazy. Up until yesterday I've been out in the garden digging like mad, shifting sacks, moving heavy pots. Today, day 3 of my first pulse and it's all I can do to walk to the bottom of the garden and back again. Something's happening and I'm hoping that it's a good something even though it feels like a bad something.

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Berkshire, UK. Diagnosed RRMSi [14] Feb 4th 2008.

NACi [7] 2400mg. All supps. Doxyi [2] 200mg. Zithi [15] 250mg. Metroi [10] 400mg.
No GP/Neuroi [16] support. Self medicating with help from David Wheldoni [17].
Started CAPi [3] 20th April 2008. First pulse June 2008

Have you tried some rhodiola rosea? That might help give a little energy boost (without being stimulating).

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GFAi [18] - asthmai [19], sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli [10] pulse started June 30, '08. Added Doxyi [2] 200mg/day Aug 16.

Uh no, never even heard of it. I'm just throwing down additional B12 and CQ10 at the moment in the hope I might have enough energy to get out of bed in the morning.

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Berkshire, UK. Diagnosed RRMSi [14] Feb 4th 2008.

NACi [7] 2400mg. All supps. Doxyi [2] 200mg. Zithi [15] 250mg. Metroi [10] 400mg.
No GP/Neuroi [16] support. Self medicating with help from David Wheldoni [17].
Started CAPi [3] 20th April 2008. First pulse June 2008

I started doxyi [2],azith, and all supplementsi [6] last year and started taking Metronidazolei [10] at the beginning of this year.

For the last month or so I have very little energy.   In fact my limited energy levels are used up very quickly. which is one of the reasons I havent been using this website.....now I realise how very informative it  can be!                                                                                                                                    I agree, it was reassuring to hear the comments made. This infection is so deep rooted it will take a lot effort to shift it!!!                                                                                                                                   Fatigue and having a brain which retains little, meant that it has taken me a long time to get to grips with using a computer. I'm still far from beingl computer literate...

                              I too, have heard that Thyroid tests aren't always accurate.  I think there is a website called thyroiduk. which may be able to help? 

                                                                                                                                                                                                                                                    

we are familiar with the energy depletion & the brain foggled bucket my eyes & lips are attached to.  Having ME/CFIDSi [20] I am only tooo aware of energy limitations.  Now, my brain is getting better little by little & to this point I am now getting restless to get on with it.  But, alas, the body is not ready as a whole yet!

Patience can be a learned trait, lol

 

blessings over you all

r

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CFIDSi [20]/ME 32 yrs, FMSi [21], IBSi [22], EBVi [4], CMV, Cpni [1], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Bonnie,

Mum also suffers from energy loss and we also thought about thyroid and although the levels are OK, we tried Iodoral. That did not work for us but I have read that it helped some others.

Bests,

Özlem

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Spokesperson for my mother, MSi [23] for 14 years(technically), on Wheldon protocol since 03/07. rulid & tetradox, nidazole pulses, NAC600, Acidophilus, Milk Thistle, CoQ10, Calcium Citrate, Ester C, Omega-3, Devit-3, Benexol, Vitamin B. Now added questran