Merry Christmas Tody.

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Daisy - Husband on CAPi [6] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Another duck broken! Go for it!

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Must be Christmas here as well then. One down, how many more to go?

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Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [8] 250mg. Metroi [5] 400mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [6] 20th April 2008. First pulse June 2008

Andesine, I imagine that huge bottle of flagyli [5] that I got from the pharmacy will have to be used up and replaced by other huge bottles of flagyl before this is all done. I took a second dose just now; I find myself envisioning little purple  tin soldiers waging war against little ugly green blob men inside my cells. Kinda funny, but I have a vivid imagination.

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SPMSi [1]< Supplementsi [2] & NACi [3], Doxyi [4] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [5] 1500 mg x 3 days once per month

 

Season's greetings Tody and Ande and many more of them!..........Sarah

An Itinerary in Light and Shadow

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Ummm so far so good except.... are my eyelids supposed to feel like I've smeared glue all round them? I'm not tired but I'm having a devil of a job keeping my eyes open.

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Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [8] 250mg. Metroi [5] 400mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [6] 20th April 2008. First pulse June 2008

Hmmm, you might also find yourself bursting into tears at inopportune moments, so best not do a pulse immediately before or encompassing Soul Sunday.........Sarah

An Itinerary in Light and Shadow

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Pray tell more about the event of Soul Sunday Sarah.  Andesine do you have a bottle of lubricant eye drops?  Works for me when I occasionally get that glue in the eye feeling .

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Louise  CFSi [13], CPN+/Bb+,Wheldon CAPi [6] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [14] & Endotoxinsi [15] PRN, Doxyi [4] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

The only things I feel stronger than normal is some strong tension, anxiety and the need to squeeze something. I have a stress ball around here somewhere. I feel jumpy and nervous. My feet are stinging a bit like I am standing on a sheet of cold aluminum.  I have lots of ideas of stuff I would like to do but my mind is wandering around too much to focus for long enough to get anything underway. So I guess I will just ride this out and see where it goes.

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SPMSi [1]< Supplementsi [2] & NACi [3], Doxyi [4] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [5] 1500 mg x 3 days once per month

Yes that'd be good. Interviewing Alexander O'Neal and halfway through.... WAAAAAAAAAAAAAAAAA

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Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [8] 250mg. Metroi [5] 400mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [6] 20th April 2008. First pulse June 2008

Not so much glue in the eye as all over my eyelids. They feel heavy, sticky, weird.

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Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [8] 250mg. Metroi [5] 400mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [6] 20th April 2008. First pulse June 2008

YAY TB

a pulse!!  keep taking the toxin & porphyriai [14] moppers to help along.  You could notice reactions up to 15 days after pulse.  In other words, take them all the time now that you are pulsing.  It can't hurt when we are expecting the unexpected.

Then, our reactions are less noticable.

Blessings

r

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CFIDSi [16]/ME 32 yrs, FMSi [17], IBSi [18], EBVi [19], CMV, Cpni [20], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

I appreciate the cheerleaders! Rah Rah, she's our man, if Flagyli [5] can't get 'em, no one can!

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SPMSi [1]< Supplementsi [2] & NACi [3], Doxyi [4] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [5] 1500 mg x 3 days once per month

 Todybear you are doing a great job going through the meds. Hope you do well with the Flagyli [5] pulses. Oh, by the way my kids also think my moods have been a bit emotional. I just tell my family to get it on video, so I can laugh at myself when this is all over. Remember God has already provided hope by everyone here on this page.   Bonnie

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started Wheldon capi [6] 4/21/08 for Cpni [20], CMV, EBVi [19], CFSi [13]. Currently on: all supplementsi [2],Doxy200, added Azith.250mgs M/W/F on 6/30/08. Naci [3] up to 1200mgs.as tol.

Bonnie, I hope we all get to laugh when this is all over. It's only through God's grace that we found this treatment as the Dr. wasn't offering us any hope; the closest thing to encouragement was offering a referral to the Wheelchair Association to get a wheelchair for free. NO THANKS! I think I am done for this pulse, I did two days at a minimum dose and it made me feel pretty lousy last night. I think I will wait three weeks and then kick the cat again. (Sorry Tigger and Maxi, it was metaphorically speaking.)

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SPMSi [1]< Supplementsi [2] & NACi [3], Doxyi [4] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [5] 1500 mg x 3 days once per month

About the eyes, I get that too, even now its one of the symptoms of flagyli [5] days.   They feel gummy and itchy, sometimes in the morning I have trouble opening them and appear to be seeing through a smear of vaseline.

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Michèle (UK) GFAi [21]: Wheldon CAPi [6] 1st May 2006. Daily Doxyi [4], Azi MWF, metroi [5] pulse. Zoo keeper for Ella, RRMSi [7], At worse EDSSi [12] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

The second night on Flagyli [5] last night and I woke to my tongue all but stuck to the roof of my mouth. Completely parched! Must be a Flagyl thing to have your eyes and mouth get nasty. Unpleasant, but manageable as effects go.

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SPMSi [1]< Supplementsi [2] & NACi [3], Doxyi [4] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [5] 1500 mg x 3 days once per month

 

How funny TB (re: Tigger and Maxi)  David's latest novel, still in the production line, is called "Kick the Cat."  Metaphorically speaking, of course..........Sarah

An Itinerary in Light and Shadow

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I wonder where the saying "having another kick at the cat" came from. I did a quick search on the internet to no avail. If my felines, Tigger and Maxi, can "shed" any light on the subject, I would imagine that it has something to do with finding them on the kitchen counter!

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SPMSi [1]< Supplementsi [2] & NACi [3], Doxyi [4] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [5] 1500 mg x 3 days once per month

Have a look at this, in the Urban Dictionary!

http://www.urbandictionary.com/define.php?term=kick+the+cat [22] 

I hope you don't kick them when they are on the kitchen counter.............Sarah

An Itinerary in Light and Shadow

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Wow Sarah, those definitions are way over the top of what I was referring to! The latter definition may have something to do with the kitchen counter lol, but I was thinking more along the line of a saying that described giving something another try. Maybe David's book will be more risque than normal considering the title.

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SPMSi [1]< Supplementsi [2] & NACi [3], Doxyi [4] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [5] 1500 mg x 3 days once per month

Todybear and cats. Don't give up with the pulses, as I read over your posts you have come a long way. By the way cats are said to have nine lives, so go ahead a try again.(KICK THE CAT) named Flagyli [5].

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started Wheldon capi [6] 4/21/08 for Cpni [20], CMV, EBVi [19], CFSi [13]. Currently on: all supplementsi [2],Doxy200, added Azith.250mgs M/W/F on 6/30/08. Naci [3] up to 1200mgs.as tol.

 

Sorry TB, I should have said that I was only referring to the first definition.  The second one is a sex-obsessed male's overwrought imagination.........Sarah

An Itinerary in Light and Shadow

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Two days, one pill per day? I'm just going into day 3 on one a day and so far so good, as long as I can keep my eyes open. Drinking loads and Optrex eye drops seem to be helping with that though.

The only other thing I've noticed is a slight prodding pain in the middle of my left shoulder blade and I had a mad sneezing fit yesterday. Couldn't stop for quite a few minutes.

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Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [8] 250mg. Metroi [5] 400mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [6] 20th April 2008. First pulse June 2008

I keep a sports bottle full of water next to the bed so I can grab a drink when I want it.

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Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [8] 250mg. Metroi [5] 400mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [6] 20th April 2008. First pulse June 2008

yes horsey girl!  I agree, 9 lives & I seriously think I have lived about 7 with all the crashing & burning I have done in my life~

Here I am, giving this life another "kit at the cat".  Sorry Fooof

 

 

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CFIDSi [16]/ME 32 yrs, FMSi [17], IBSi [18], EBVi [19], CMV, Cpni [20], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08