Mac,

There are many folks that commit suicide that get diagnosed with CFIDSi [3] as well.  Although the illness isn't fatal, it makes some feel like they'd rather not live unfortunately.  

But, like you've said, there is hope and much to live for, especially with help here and treatment and a brighter tomorrow. 

3/08 NACi [4] 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi [5] 100mg, myco+ CFIDSi [6]/FMSi [7], Hashimoto's, Psoriasis, PA, IBSi [8], Secondary Addison's

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NACi [4] 2.4g, Zithi [9] 250mg/MWF, minoi [5] 200mg, Tinii [10] 1g/day pulses, Iodoral 25mg, Supps, CFIDSi [3]/FMSi [7], Hashimoto's, Psoriasis, PA, IBSi [8], Secondary Addisons

I find her sense of defeat hard to understand. Perhaps she watched a relative go sharply downhill. If you remember Dr. Fubar, he has had chronic progressive msi [11] with a lot of pain since about the age of 30, 28 years. Whenever he thought of ending his life he would think about the possibility of they're coming up with a cure the day after his death. While I struggled with the diagnosis and how to live with it for a while, I eventually came up with a workable solution: complete denial. I am going to get well. And with cpnhelp, it will happen. So I'm with you MacK. Except I don't keep my diagnosis a secret -- I tell anyone who will listen and then tell them about CAPi [12]. And amazingly, I find that my coworkers completely believe me. They are expecting me to come dancing back for the fall semester. If only the doctors were so easy to convince.

PPMSi [13]-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAP 3/2/07 - 200 doxyi [14]; azith MWF. 5 pulses.

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PPMSi [13]-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi [12] 3/2/07 - 200 doxyi [14]; azith MWF. 5 pulses.

[Doxyi [14], Azith, Biaxin and Flagyli [15]]  for rrmsi [16] since October '05.  Added Amoxicillini [17] 1gm twice daily and LDNi [18] 4.5mg qhs October '07; Added Inositol[1gm] and Calcium Pyruvate[4-6gm] daily February '08, EDSSi [19] was 6.5,

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Wheldon Protocol for rrmsi [16] since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi [20]'s for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

She must have felt terribly alone. Perhaps, facing an altered life was unbearable or she had no one to help her. My heart aches for her family.

This site is a godsend. I hope it grows and grows and grows. Hope is a wonderful thing. 

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Corinna | GFAi [22]. Wheldon Protocol: 4–8/08. Can't kill the yeast.

[Doxyi [14], Azith, Biaxin and Flagyli [15]]  for rrmsi [16] since October '05.  Added Amoxicillini [17] 1gm twice daily and LDNi [18] 4.5mg qhs October '07; Added Inositol[1gm] and Calcium Pyruvate[4-6gm] daily February '08, EDSSi [19] was 6.5,

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Wheldon Protocol for rrmsi [16] since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi [20]'s for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

[Doxyi [14], Azith, Biaxin and Flagyli [15]]  for rrmsi [16] since October '05.  Added Amoxicillini [17] 1gm twice daily and LDNi [18] 4.5mg qhs October '07; Added Inositol[1gm] and Calcium Pyruvate[4-6gm] daily February '08, EDSSi [19] was 6

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Wheldon Protocol for rrmsi [16] since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi [20]'s for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

It is possible that this young woman knew what was in store for her, there is a chance that she was the kind of person who valued her physical ability to such an extent that the possibility of losing it meant an end to a life she was prepared to live, there could also have been relationship issues.   Someone she loved would not be able to cope.   If she was psychologically savvy, she would realise that should she become disabled she would probably loose all the things that she valued in her life.  

Ella did, I think the only thing that saved Ella from doing the same thing initially was that she and Rich chose to be optimistic about her prospects.   In the end that optimism about the progression of her disease was misplaced as she went from mild to significant disability in less than 6 years.

What saved her from suicide after her last relapse was the CAPi [12] and the hope that she might be able to rebuild her life.

Everyone diagnosed with MS, especially young people should get mandatory counselling. 

Michèle (UK) GFAi [22]: Wheldon CAP 1st May 2006. Daily Doxyi [14], Azi MWF, metroi [15] pulse. Zoo keeper for Ella, RRMSi [16], At worse EDSSi [19] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [22]: Wheldon CAPi [12] 1st May 2006. Daily Doxyi [14], Azi MWF, metroi [15] pulse. Zoo keeper for Ella, RRMSi [16], At worse EDSSi [19] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

I am with Michèle here, everyone who gets a diagnosis of MSi [11] should receive immediate counselling. I watched my cousin, to whom I was very close, die from the progression of MS. Soon after that I was diagnosed myself and I had many thoughts about suicide. I believe that part of the reason I am still here is a dogged angry determination that this illness will not have me, but it certainly wasn't anything to do with the (non-existent) help from the medical profession.

So I am with Mac here, I try to spread the message of Cpni [24] and this site whenever I see the need. Why should anybody have to go through the misery of this illness if there is hope in this treatment.

Robert - MS for 16yrs. CAPi [12] since Jul 07, NACi [4] 2400mg, Doxyi [14] 200mg daily, Azith 250 mg MWF, Flagyli [15] 7th pulse.

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Robert - MSi [11] for 16yrs. CAPi [12] since Jul 07, NACi [4] 2400mg, Doxyi [14] 200mg daily, Azith 250 mg MWF, Flagyli [15] 10th pulse.

 Mac- I was struck speechless by this story. Such a waste. Of course, one never knows all the variables the press leaves out that would make different sense of a story. A year or so ago I posted the mortality figures for CFSi [6]/ME patients, which were quite grim considering that it's not even considered an illness by many. In these a Cpni [24] related diseasesi [25] people often don't die of their diagnosed disease, but of "unrelated factors" like suicide and increased mortality due to other conditions--- which are of course Cpn related as we know. So, I do understand your strong stand on this although my own style is to let the information speak for itself. Your having made up the business cards is great!  

CAPi [12] for Cpn 11/04. Dx: 25yrs CFS & FMSi [7]. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii [10] 1000mg/day pulses; Vit D2000 units, T4 & T3

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CAPi [12] for Cpni [24] 11/04. Dx: 25yrs CFSi [6] & FMSi [7]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [10] 1000mg/day pulses; Vit D2000 units, T4 & T3

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As I was sitting in the chair, my stylist in AZ doing my foils, I felt like I was punched in the stomach.  Rhonda told me she was going to a funeral of a friend who died from a lengthy illness no one knew what to do with; she was about 40.  It became quite clear to me then, that I must keep telling people about this site & for some, be insistent they visit here.

My father had a disabling hockey injury when he had the worst shoulder seperation specialists had ever seen.  He fell into depression, though he seemed to be handling things, but he still, quite methodically, attempted suicide.  By the grace of God he was not successful.  Psychiatric counselling made him realize he placed value on himself by the things he did; so he was hockey, he was golf & without doing things, he was no use to anyone.

The suicides of people with illness like our MS, ME/CFIDSi [3] etc is the reason I am adament about people here rushing this treatment & then suffer depression & suicidal thoughts.  This is not something to be taken lightly.

So, to all of us & especially the new visitors, forget about jumping into this with both feet or head first with a "what the hell attitude";  we don't need a loss of life here on this site.

This is a site for hope & this word keeps us going.  I thank God for sending me here & I pray for everyone here.

peace

r

CFIDSi [6]/ME 26yrs, FMSi [7], IBSi [8], EBVi [28], CMV, Cpni [24], chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi [4] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

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CFIDSi [3]/ME 32 yrs, FMSi [7], IBSi [8], EBVi [28], CMV, Cpni [24], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

I wonder how many folks with chronic illnesses that are suffering from depression and anxiety that can lead to suicide are actually suffering from secondary porphyriai [29].

3/08 NACi [4] 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi [5] 100mg, 6/08 Zithi [9] 250mg 1/wk, myco+ CFIDSi [3]/FMSi [7], Hashimoto's, Psoriasis, PA, IBSi [8], Secondary Addison's

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NACi [4] 2.4g, Zithi [9] 250mg/MWF, minoi [5] 200mg, Tinii [10] 1g/day pulses, Iodoral 25mg, Supps, CFIDSi [3]/FMSi [7], Hashimoto's, Psoriasis, PA, IBSi [8], Secondary Addisons

In which case one should get themselves to GROUP THERAPY. According to my (ex) doctor, this is just the ticket for folks like us. We shouldn't try to get better, we should learn how to live with it (or die from it). grrr. 

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Corinna | GFAi [22]. Wheldon Protocol: 4–8/08. Can't kill the yeast.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I wasn't meaning to be funny. Sorry if I came across that way. I feel angry, outraged even, at this. We get cast aside too easily, it's a lot of work dealing with chronic illness, but we always need to know that there is hope, and that we are not alone. 

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Corinna | GFAi [22]. Wheldon Protocol: 4–8/08. Can't kill the yeast.

yes, i have wondered too ...

M.E./CFSi [6] 20 years, intermittent.  Wheldon Protocol - Started NACi [4] and supplementsi [30] Sept 2007. Doxyi [14] and Roxy full dose by Dec '07.  First Flagyli [15] pulse January 2008.

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M.E./CFSi [6] 20 years, intermittent.  Wheldon Protocol - Started NACi [4] and supplementsi [30] Sept 2007. Doxyi [14] and Roxy full dose by Dec '07.  First Flagyli [15] pulse January 2008.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei [15] for muscle pain, insomnia, interstitial cystitisi [32], sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Janice,

It's not whether or not we feel the symptoms of porphyriai [34] such as you did, but it's in the knowing where it's coming from that gives us hope and wisdom on how to handle them.  

I believe it's said that 50% (or more) of the solution is found in identifying the problem!

Like you, I feel much more hopeful when I KNOW what my options are because I feel empowered even when I'm still sick or miserable.   

3/08 NACi [4] 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi [5] 100mg, 6/08 Zithi [9] 250mg 1/wk, myco+ CFIDSi [3]/FMSi [7], Hashimoto's, Psoriasis, PA, IBSi [8], Secondary Addison's

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NACi [4] 2.4g, Zithi [9] 250mg/MWF, minoi [5] 200mg, Tinii [10] 1g/day pulses, Iodoral 25mg, Supps, CFIDSi [3]/FMSi [7], Hashimoto's, Psoriasis, PA, IBSi [8], Secondary Addisons