Ditto on kudos to Michele!  Dear friend, you are warm, generous, and amazing. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [2]).  CAPi [1] since August 06, Cpni [3], Mpn, B. burgdorferi, systemic candidiasis, EBVi [4], CMV & other herpes family viral infectionsi [5], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [2]).  CAPi [1] since August 06, Cpni [3], Mpn, B. burgdorferi, systemic candidiasis, EBVi [4], CMV & other herpes family viral infectionsi [5], elevated heavy metals, gluten+casein sensitivity. 

Go Michele! You do do an amazing job! Thank you very much blessings marie On CAPi [1] since Sept '05 for MSi [6], RAi [7], Asthmai [8], sciatica. EDSSi [9] at start 5.5. Currently on: Doxyi [10] 200, Azith 3x week, Tinii [11] cont. since April '07, all supplementsi [12]. "Color out side the lines!"

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On CAPi [1] since Sept '05 for MSi [6], RAi [7], Asthmai [8], sciatica. EDSSi [9] at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyi [10] 200, Azith 3x week, Tinii [11] cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithromy

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Words cannot even describe all that she does/is doing for us :-) Beautiful pic of her can be found in the user list beside her name...

Very much appreciated, Michèle!! Many thanks for all you do. The work you and many others do here is changing my life.

Corinna 

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May 2008. NACx1200mg, D3x2000mg, B12x1000mcg. Allergies, chronic inflamation, eczema, long-term steroid use, sinusitis/cysts, BL/TN, FM, CF, arthritis, rosaceai [14].

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Corinna | GFAi [15]. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Yes indeed.   Thanks so much, Michele...

On Combined Antibiotic Protocol for Cpni [3] in Rosaceai [14] 01/06 - 07/07, On Vit D3 + NACi [16] since 07/07 and daily FIRi [17] Sauna since 08/07

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Treatment for Rosaceai [14]

• CAPi [1]:  01/06 - 07/07
• High-Dose Vit D3, NACi [16] & FIRi [17] Sauna Only:  07/07 - 11/08
• Intermittent CAP, High-Dose Vit D3:  11/08 - Present

 I hope you all understand what a mission this is for Michele. She and I have been talking about rewriting the Handbook for quite a while, but other projects ensued like life and work! With the influx of lots of new people, all of whom get a personal contact from her to guide them onto the site, she really got galvanized on generating the First Steps (it's coming name) handbook and guide, and now is working away at the Second Steps. I've been designing a new site layout to present a much clearer front page (home page) for new arrivals, and an easier management of navigation, and I'm guided by Michele's vision about what new folks need to see as she has the real touch and dedication to this issue. She's been the "managing partner" here in growing ways and I'm very, very grateful for her presence and work here.

CAPi [1] for Cpni [3] 11/04. Dx: 25yrs CFSi [18] & FMSi [19]. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii [11] 1000mg/day pulses; Vit D2000 units, T4 & T3

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CAPi [1] for Cpni [3] 11/04. Dx: 25yrs CFSi [18] & FMSi [19]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [11] 1000mg/day pulses; Vit D2000 units, T4 & T3

THANKS VERY MUCH MICHELE AND JIM FOR ALL THE WORK YOU DO!!

Maria

Thanks so much! On Wheldon protocol for MSi [6] since April, 2006.  doxyi [10] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [21] Pulses start end Sept., LDNi [22] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

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On Wheldon protocol for MSi [6] since April, 2006.  doxyi [10] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [21] Pulses start end Sept., LDNi [22] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Thank you for everything you do Michele... :)!!! 

 

Jeanneroz ~CPN diagnosed & started protocol  4/2007, also HV6, EBVi [4].  CFIDSi [23]/FM diagnosed: 6/07; 200 mg/doxyi [10]/day~ 250 mg AZITH M/W/F ~1st Tinii [11] pulse 4/17/08- 1 250 mg. tab for 2 days. 2nd Tini pulse 5/24/08: 1-250 mg 4 days,supplmnts

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JeanneRoz~CPNi [3] diagnosed & started protocol 4/2007, also HHV6, EBVi [4]. CFIDSi [23]/FM diagnosed: 6/07; 100mg/doxyi [10]/BID ~ 250 mg AZITH M/W/F ~1st Tinii [11] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

again, Thank you very much Michele, Jim K & bleu & others, you know who you are.  Without you all this site would never have happened.

 God Bless

CFIDSi [23]/ME 26yrs, FMSi [19], IBSi [24], EBVi [4], CMV, Cpni [3], chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi [16] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

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CFIDSi [23]/ME 32 yrs, FMSi [19], IBSi [24], EBVi [4], CMV, Cpni [3], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Oh shucks...  (blush-blush-blush)

I marvel at the depth of knowledge, humour, imagination and resources that all of you bring to this site.   My strengths lie else where, mostly in digesting and regurgitating material, a bit like a mother bird... So that is what I am doing.   It's taken me a while to know that I could and to have the courage to change things that, after all, have worked well for three years, but eventually I was pushed into it, not only by my own exasperation at constantly repeating myself but also at everyone elses frustrations.

In my life I'm always looking for ways of saving time, making things more efficient to allow myself dreaming time, creating time, and fun time, so in the end this is what prompted me to do what I did with the handbooks.  

Please do not hesitate to suggest things, proof read, point out errors of content or science.   I will change any real discrepencies, but reserve the right to spell in the Queen's English.  

I'm still interested in hearing about changes you would like to see, information you would like to read or how we could organise the more technical or scientific material.

I could not have done this without Jim's encouragement and discussions on content and guiding phylosophical principles.   In second steps most of the material will have been written by Jim and other people (Marie, Cypriane, Red, Sarah and others), I'm just drawing it all together in a sequential order.

And yes I have had time for creative stuff.  I've taken part in the Brighton Festival of Arts,  every May there is an extensive programme of theatre, dance, music in all shapes and sizes as well as a collection of 'open houses', where artist open up their homes to the public to show their and other invited artists' work.   I was in several venues and had my most successful selling May in 3 years.   Most due to the fact that I have done some work this year... I'll post a couple of images shortly to show you some of the things I have sold.   

How do I find the time?   I let Hamish do the house work... He seems to enjoy it and I loath it.   I am more the head under the 'hood' (bonnet of a car) kind of woman, I fix things that break, solve problems, design things, tell others what to do in the garden (much more fun than doing it yourself), listen to people's problems, try and keep a rational frame of mind, solve problems, solve problems (did I say solve problems?).   You get the picture.    

Thanks for your appreciation, I'll just keep busying myself in the background while all of you come up with new material for me to organise and categorise.    

Michèle (UK) GFAi [15]: Wheldon CAPi [1] 1st May 2006. Daily Doxyi [10], Azi MWF, metroi [21] pulse. Zoo keeper for Ella, RRMSi [25], At worse EDSSi [9] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [15]: Wheldon CAPi [1] 1st May 2006. Daily Doxyi [10], Azi MWF, metroi [21] pulse. Zoo keeper for Ella, RRMSi [25], At worse EDSSi [9] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michele, you have done a fantastic job of gathering in many of our suggestions and creating lucid manifestations of the concepts that are so important for working with CAPs.   You may even hae more time now to express more creativity and have a huge amount of work to share next May.  Will be looking forward to your sharing of the next Festival.    I wish someone here would enjoy the housework .

Louise USA.CFSi [18].CPn Positive.BbPositive.WheldonCAP6/24/07.NACi [16],Doxyi [10],Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsi [26]. 

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Louise  CFSi [18], CPN+/Bb+,Wheldon CAPi [1] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [27] & Endotoxinsi [26] PRN, Doxyi [10] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

yes, three cheers Michele!

 

M.E./CFSi [18] 20 years, intermittent.  Wheldon Protocol - Started NACi [16] and supplementsi [12] Sept 2007. Doxyi [10] and Roxy full dose by Dec '07.  First Flagyli [21] pulse January 2008.

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M.E./CFSi [18] 20 years, intermittent.  Wheldon Protocol - Started NACi [16] and supplementsi [12] Sept 2007. Doxyi [10] and Roxy full dose by Dec '07.  First Flagyli [21] pulse January 2008.

Yes, thank you very much.

CAPi [1] for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi [28] (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei [21] completed 5/10/2008.

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CAPi [1] for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi [28] (3 x week).  Fifteenth pulse metronidazolei [21] + INHi [29] completed 11/22/2008.

Though I am still flagyllized and was planning to wait till I am out of the water, so to speak, I have to add my thanks, Michele. Your last post clarified bits for me: Richard does the grocery and other shopping, straightens things up (which I am REALLY no good at) and gets a long list of essentials done while I am still standing looking lost. I am better at one big job - build a barn, repair a fence, etc. All this is a bewildered look at what you and "others" have done to update and reorganize. Dear mother of Ella, who would long ago have been lost without you, thanks to you.

 

Rica PPMSi [30] EDSSi [9] 6.7 at beginning - now 2. Began CAPi [1] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [10] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 51 pulses NC USA

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Rica PPMSi [30] EDSSi [9] 6.7 at beginning - now 2. Began CAPi [1] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [10] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [21] total 55 pulses LDNi [22] Rifampin 8/08 again NC USA