Minai's recent post elicited me to submit this info (Minai has MSi [1], is treating for CPNi [2] and stated she had Bell's Palsy at one time). My mother had Bell Palsey when I was about 12. Most of our weekends were spent in activities like fishing, picnics or mushroom hunting... all outdoor or in the woods.
I just recently discovered the state I grew up in is ranked 16th in the nation for Lyme disease. I still sometimes question if I have lyme even though my test (it wasn't a Western IG Blot) was negative.
Someone on this cite took their daughter to this doctor -- (Dr. Virginia Sherr). I researched her as she is located near my city.
I know this is a CPN board not lyme but the information was rather interesting:
Bell's palsy signifies paralysis of facial muscles related to inflammationi [3] of the associated seventh Cranial Nerve. Physicians may not realize that this syndrome is caused by the spirochetal agent of Lyme disease until proven otherwise
Link [4]
Jeanneroz
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JeanneRoz~CPNi [2] diagnosed & started protocol 4/2007, also HHV6, EBVi [5]i [5]. CFIDSi [6]i [6]/FM diagnosed: 6/07; 100mg/doxyi [7]i [7]/BID ~ 250 mg AZITH M/W/F ~1st Tinii [8]i [8] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup
Links:
[1] http://www.cpnhelp.org/taxonomy/term/6
[2] http://www.cpnhelp.org/glossary/term/167
[3] http://www.cpnhelp.org/taxonomy/term/67
[4] http://www.lymenet.de/literatur/vtsherr_gut.htm
[5] http://www.cpnhelp.org/glossary/term/120
[6] http://www.cpnhelp.org/glossary/term/164
[7] http://www.cpnhelp.org/taxonomy/term/39
[8] http://www.cpnhelp.org/chlamydia_pneumoniae/an_0
[9] http://www.cpnhelp.org/taxonomy/term/63
[10] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[11] http://www.cpnhelp.org/glossary/term/116
[12] http://www.cpnhelp.org/glossary/term/163
[13] http://www.cpnhelp.org/glossary/term/168
[14] http://www.cpnhelp.org/glossary/term/175
[15] http://www.cpnhelp.org/taxonomy/term/26
[16] http://www.cpnhelp.org/taxonomy/term/44
[17] http://www.cpnhelp.org/print/4478#comment-33483
[18] http://www.mult-sclerosis.org/Bellspalsy.html
[19] http://www.cpnhelp.org/glossary/term/171
Addendum: this doctor is a
Addendum: this doctor is a psychiatrist, not an MD.......but she herself had Lyme for many years before it was diagnosed... she knows the frustrations we go through!
Jeanneroz ~CPN diagnosed and started protocol 4/2007, also have HHV6, EBVi [5]. CFIDSi [6]/FM diagnosed: 6/07; Protocol: 200 mg/doxyi [7] daily~ 250 mg AZITH M/W/F ~1st Tindi pulse 4/17/08- 1 250 mg. tab for 2 days. supplementsi [9]
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JeanneRoz~CPNi [2] diagnosed & started protocol 4/2007, also HHV6, EBVi [5]. CFIDSi [6]/FM diagnosed: 6/07; 100mg/doxyi [7]/BID ~ 250 mg AZITH M/W/F ~
1st Tinii [8] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. SupJeanne, Phychiatrist in the
Jeanne, Phychiatrist in the US are MDs. Psychologists are not MDs. FYI.
Louise
CFS. CPnPositive. BbPositive. WheldonCAP began6/24/07. NACi [10],Doxyi [7], Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxini [11] Die-OffExperiences.
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Louise CFSi [12], CPN+/Bb+,Wheldon CAPi [13] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [14] & Endotoxinsi [15] PRN, Doxyi [7] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support
Eek, thanks Louise... I knew
Eek, thanks Louise... I knew that! (psychiatrists treat mental issues and have the MD license to prescribe meds... and psychologists do not).
I was just wanted to be sure that no one thought she was an MD to go to for CPNi [2]....(hmm.... at least I don't believe so!)
Jeanneroz ~CPN diagnosed and started protocol 4/2007, also have HHV6, EBVi [5]. CFIDSi [6]/FM diagnosed: 6/07; Protocol: 200 mg/doxyi [7] daily~ 250 mg AZITH M/W/F ~1st Tindi pulse 4/17/08- 1 250 mg. tab for 2 days. supplementsi [9]
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JeanneRoz~CPNi [2] diagnosed & started protocol 4/2007, also HHV6, EBVi [5]. CFIDSi [6]/FM diagnosed: 6/07; 100mg/doxyi [7]/BID ~ 250 mg AZITH M/W/F ~
1st Tinii [8] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. SupI have not been tested for
I have not been tested for lymes. when I was 21 (and just started pediatric nursing which involved taking care of cystic fibrosis patients), in one year I had strep throat, bells palsy, and somekind of virus where I got ulcers all in my mouth. I have always felt that I contracted CPNi [2] with one of these. probably where i got my ebvi [5] and cmv, and mycoplasma pneumoniae also.
Mphs, TN. CFSi [12], hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpn, myco, EBV, CMV. NACi [10] 4000mg, doxyi [7] 100-2xday, azith 250 m/w/f/sun, progesterone,
estriol, synthroid, pulseflagyli [16],tinii [8]<___________________________________________________________
Mphs, TN. CFSi [12], hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80, right arm neuropathy. + cpni [2], myco, EBVi [5], CMV. Capi [13] began in 6/07. NACi [10] 2400mg, doxyi [7] 100-bid, biaxin 500mg bid since 7/08, progesterone, synthroid, flagyli [16] pulses
Bell's Palsy can be [17]
Bell's Palsy can be caused by a number of things, not just lyme disease:
http://www.mult-sclerosis.org/Bellspalsy.html [18]
I had it for a couple of weeks when I was still relapsing remitting and it took several months before the droop on one side of my face completely went. In multiple sclerosis it is caused by a lesion in the pons area of the brainstem, leading to the seventh cranial nerve damage.............Sarah
An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [1] in June 2007, after nearly four years, three of which intermittent. Still slowly improving and no exacerbation since starting. EDSSi [19] was 7, now 2, less on a good day.
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