horses12          

It sounds like you experienced what I experienced when I first started out.  My first try at it was doing an empirical test with NACi [7].  I decided for the first 3 days to do a full 1200 mg/day dose.  Why not, right?  Not such a good idea.

On the morning of the third day, standing and walking was a challenge.  I couldn't see straight, couldn't walk unaided.  It sounds like you've had the same situation happen.

The way I got around it was going to a half dose - 600 mg - every other day for a while.  I think I did a month of it.  After that, I cautiously moved up to doing 600 mg/day.  Cautiously.  Then after a month of that, moved up to adding another 600 mg/day ever 2nd or 3rd day.  Still okay.  Then moved up to the full 1200 mg/day.  That was after about 4 months.  So it takes time.

Now, I'm at 2400 mg/day, no problems.  I've even bumped it up beyond that on occasion to 3000 and 3600 mg with no real effect.  So, I'm comfortable leaving it at 2400.

These things take time.  Give yourself the time.  You didn't get where you are now overnight, you won't get yourself back to where  you were before overnight either. 

all my best

John

RRMSi [8]/EDSSi [9] was 4.5, was 4.???, now 5 on Wheldon Protocol (nac, doxycycline, azithromycin, metronidazolei [10]) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi [11] 300mg/daily on 03/17/2008.

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all my best

John

RRMSi [8]/EDSSi [9] was 4.5, 5, now 6 on Wheldon Protocol (naci [7], doxycycline, azithromycin, metronidazolei [10]) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi [11] 300mg/daily 03/17/2008 stopped 05/08

Bonnie, you have already started the first stage of treatment with the recommended abxi [12] and NACi [7] for the Wheldon version of the CAPi [2]. John has good advice about going slowly with the dose of NAC - if you didn't have Cpni [3] then you wouldn't have such a reaction with it. I started off with NAC alone for a while and didn't add the doxyi [1] until I was handing 1200mg of NAC OK.

It really is essential that you read the Getting Started pages so that you don't get some nasty surprises with this treatment. The Reactions and Remedies section will help you a lot as you start treating yourself and in this particular case ie. inflammationi [13] you could try some turmeric, I find it really helps with things. 

New Forest, UK. Progressive MSi dx 12/06 LDN 3/07 CAP 6/07: Wheldon version. Pulses so far #10

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Progressive MSi [14] dx2006. LDNi [15] & CAPi [2]: Wheldon version. All supps. Doxyi [1] 200mg. Zithi [16] 250mg. Metroi [10] 400mg.Pulses #10/16...I can because I think I can.

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started Wheldon capi [2] 4/21/08 for Cpni [3], CMV, EBVi [4], CFSi [5]. Currently on: all supplementsi [6],Doxy200, added Azith.250mgs M/W/F on 6/30/08. Naci [7] up to 1200mgs.as tol.

Bonnie      

You're quite welcome.  Hang in there, pace yourself.  It definitely takes time as I well know from first hand experience. 

all my best

John

RRMSi [8]/EDSSi [9] was 4.5, was 4.???, now 5 on Wheldon Protocol (naci [7], doxycycline, azithromycin, metronidazolei [10]) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi [11] 300mg/daily on 03/17/2008.

___________________________________________________________

all my best

John

RRMSi [8]/EDSSi [9] was 4.5, 5, now 6 on Wheldon Protocol (naci [7], doxycycline, azithromycin, metronidazolei [10]) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. Added INHi [11] 300mg/daily 03/17/2008 stopped 05/08