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Thinking of changing protocols................
By doglover
Created 05/15/2008 - 12:17pm

I've been on the Wheldon protocol since 2-4-2006 and am thinking of switching to the Sriram protocol to see if it jumps starts anything (have an appointment with Dr. Sriram in August, they gave me an appointment for June but I have too much going on the next couple of months to get there that soon). Should I switch or wait to see Dr. Sriram? Just got my liver test results today and they are all well within limits so that's good news Linda

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If there is no wind..............row New Hampshire USA on CAPi [1]i [1] since 2-4-2006 for MSi [2]i [2] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

If there is no

Submitted by doglover on Thu, 2008-05-15 12:18.
If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on doxyi [3] 100mg 2x day, rifamapin 150 mg 2x day, azithromicin 250mg, m,w,f and 500mg flagyli [4] 3x a day for five days every three weeks, NACi [5] 2400 mg, most of the sup

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If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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Linda,  Could you please

Submitted by cypriane on Thu, 2008-05-15 12:23.

Linda,  Could you please spell out what the Sriram protocol is, bit by bit?  Thanks, Joyce 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [6]).  CAPi [1] since August 06, Cpni [7], Mpn, B. burgdorferi, systemic candidiasis, EBVi [8], CMV & other herpes family viral infectionsi [9], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [6]).  CAPi [1] since August 06, Cpni [7], Mpn, B. burgdorferi, systemic candidiasis, EBVi [8], CMV & other herpes family viral infectionsi [9], elevated heavy metals, gluten+casein sensitivity. 

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It's the protocol under

Submitted by doglover on Thu, 2008-05-15 12:35.
It's the protocol under "getting started". Rifamapin 150mg twice a day Azithromyacin 250mg m-w-f Metronidazolei [4] 500mg 3x day for 15days Sodium or Calcium Pyruvate 4-6 gram-2x day before taking antibioticsi [10] If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on doxyi [3] 100mg 2x day, rifamapin 150 mg 2x day, azithromicin 250mg, m,w,f and 500mg flagyl 3x a day for five days every three weeks, NACi [5] 2400 mg, most of the sup

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If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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It's very similar to what I

Submitted by doglover on Thu, 2008-05-15 12:38.
It's very similar to what I am taking now-just takes doxyi [3] out and adds more metronidazolei [4] and the pyruvate. Just wondering if the change would be enough to maybe show more results. Linda If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on doxy 100mg 2x day, rifamapin 150 mg 2x day, azithromicin 250mg, m,w,f and 500mg flagyl 3x a day for five days every three weeks, NACi [5] 2400 mg, most of the sup

___________________________________________________________
If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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Linda, if you are seeing

Submitted by Sarah on Thu, 2008-05-15 12:39.

Linda, if you are seeing him in August, I would stay with what you are on until then, because I know that Sriram uses rifampin as standard at the moment and that isn't something to mess around with by yourself.................Sarah

An Itinerary in Light and Shadow........... Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [2] in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [11] was 7, now 2, less on a good day.

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [2] in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [11] was 7, now 2, less on a good day.

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Ah, I see you are on

Submitted by Sarah on Thu, 2008-05-15 12:42.
Ah, I see you are on rifampin already: David doesn't have that as part of his regime because of restrictions in this country..........Sarah

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [2] in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [11] was 7, now 2, less on a good day.

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 Linda- it seems like a

Submitted by Jim K on Thu, 2008-05-15 16:56.

 Linda- it seems like a wise decision to be in good hands medically with someone experienced in treating with a CAPi [1]. He can also be a good judge of any modifications that would fit you better and such. If you can see him, by all means. I hear nothing but good things about him.

CAP for Cpni [7] 11/04. Dx: 25yrs CFSi [12] & FMSi [13]. Protocol: 200mg Doxyi [3], 300mg Roxithromycin, Tinii [14] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [1] for Cpni [7] 11/04. Dx: 25yrs CFSi [12] & FMSi [13]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [14] 1000mg/day pulses; Vit D2000 units, T4 & T3

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Linda My 2 cents is that you [15]

Submitted by loriyas on Fri, 2008-05-16 11:13.
Linda
My 2 cents is that you should wait to change until after you see Dr. Sriram.  He may or may not have other thoughts at that time and since you made an appointment to see him you should go with what he has to say and not start doing things on your own.  Plus, it is not that long until August.
Glad you got an appointment to see him.  I have my follow up visit in June.  I think you will be happy you made the appointment.
Lori
 
Started Vanderbilt protocoli [16] 1/9/08  Rifampin twice a day, azithromycin MWF, flagyli [4] 7 days/month,  b12 injection monthly NACi [5] daily, DHA, calcium pyruvate, prilosec

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Started Vanderbilt protocoli [16] 1/9/08  Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day,  b12 injection monthly NACi [5] daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

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Guess I'll wait to see Dr.

Submitted by doglover on Fri, 2008-05-16 12:07.
Guess I'll wait to see Dr. Sriram in August. Thanks for the advice. Linda If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on doxyi [3] 100mg 2x day, rifamapin 150 mg 2x day, azithromicin 250mg, m,w,f and 500mg flagyli [4] 3x a day for five days every three weeks, NACi [5] 2400 mg, most of the sup

___________________________________________________________
If there is no wind..............row New Hampshire USA on CAPi [1] since 2-4-2006 for MSi [2] Currently on rifamapin 150 mg 2x day, azithromicin 500mg, m,w,f and 100mg tinidazole 3x a day for seven days 2x a month, 3g calcium pyruvate 5 days, 50000 units vit D

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