hd,  What's your temperature?  You might have had a "blind date" and didn't know it.  If your temperature is lower than normal, that's surely what happened.  Dame Endotoxini [1] is a cold bitch.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [6]).  CAPi [2] since August 06, Cpni [7], Mpn, B. burgdorferi, systemic candidiasis, EBVi [8], CMV & other herpes family viral infectionsi [9], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [6]).  CAPi [2] since August 06, Cpni [7], Mpn, B. burgdorferi, systemic candidiasis, EBVi [8], CMV & other herpes family viral infectionsi [9], elevated heavy metals, gluten+casein sensitivity. 

Hmmm -  seems she's highly enticed to show when you add Rifampin to the menu.

^{Daisy - Husband on CAPi [2] 5/07.   Roxyi [10], Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi [11], Azithromycin, Flagyli [4], Minoi [12]}

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Daisy - Husband on CAPi [2] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

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> What's your temperature?

Ever since I was a child, normal has been 97.8 degrees (F) and that's what I am right now (I just went and took it so I could answer your question and I use the same mercury thermometer each time to ensure consistency).    

 

CAPi [2] for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi [3] (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei [4] completed 5/10/2008.

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CAPi [2] for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi [3] (3 x week).  Sixteenth pulse metronidazolei [4] + INHi [5] completed 12/20/2008.

Were you on Roxi for the most part of the past two pulses?  I have only been on Roxi an as the macrolide so have no comparison however, I have been on full tinii [15] pulses starting with my second pulse and for a person with CFSi [16] that is not so common to get on to full pulses so quickly.

LouiseCFS/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi [11], Roxi, Full TiniPulses. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

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Louise  CFSi [16],CPNi [7]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [17] +fattyEndotoxins HS PRN, Wheldon CAPi [2] 6/07,all supps, Doxyi [11] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

Well, have you sensed any nuances of anything?   

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [6]).  CAPi [2] since August 06, Cpni [7], Mpn, B. burgdorferi, systemic candidiasis, EBVi [8], CMV & other herpes family viral infectionsi [9], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [6]).  CAPi [2] since August 06, Cpni [7], Mpn, B. burgdorferi, systemic candidiasis, EBVi [8], CMV & other herpes family viral infectionsi [9], elevated heavy metals, gluten+casein sensitivity. 

Ditto to that. I've been highly "tolerant" of tinidazole, in that it never really made me herx. I'm 5 days into my first post-rifampin tini pulse and its herx central here. 

CFSi [16]. Started CAPi [2] 03-07. Currently: Roxi 600mg + Doxyi [11] 200mg + Rifamp 300mg . Tini pulses 1000mg. Sauna QOD. D 8000IU. Niacini [18] 3 x 500mg. Mel 3mg.

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Hunter: Don't think - experiment

quick question to the more educated. What is a good thing to take for the endotoxini [1] die off and what is cholestyramin?

 

Learning from all your advice....thanks

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started Wheldon capi [2] 4/21/08 for Cpni [7], CMV, EBVi [8], CFSi [16]. Currently on: all supplementsi [19],Doxy200, added Azith.250mgs M/W/F on 6/30/08. Naci [20] up to 1200mgs.as tol.Vit.B12 injections daily, cholest. prn. Start Tinii [15]. in Jan. if all goes well.

Horse, cholestyramine is a resin that selectively binds to fat-soluble substances in your digestive tract. It was originally created to remove cholesteroli [21], but has come into off-label use as a way to remove fat-soluble toxins before they can be re-absorbed and re-cycled. Not sure who was originally credited with its use for that purpose, but Dr. Ritchie Shoemaker has been one of its more vocal proponents...primarily for the removal of mycotoxins in mold-related illness. Turns out to be pretty handy in other chronic diseasesi [22] for the same purpose.

Tennessee, USA - Bb positive w/neuroi [23] involvement, suspected CPni [7]
Doxyi [11]/Samento for Bb 2005-2007
Started CAPi [2] 4/19/08 - NACi [20] 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F

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Tennessee, USA - Bb positive w/neuroi [23] involvement, suspected CPni [7]
Doxyi [11]/Samento for Bb 2005-2007
Started CAPi [2] 4/19/08 - NACi [20] 2400mg, Pyruvate 6g, Doxy 200mg, Zithro 250mg M/W/F, Metroi [4] pulses @ 3x500mg

 HD- Oh you and your endotoxini [1]-love life. Can't love 'em, can't leave 'em alone. Hate the pain when it's here, miss the pain when it's gone. Can't get no satisfaction...

CAPi [2] for Cpni [7] 11/04. Dx: 25yrs CFSi [16] & FMSi [24]. Protocol: 200mg Doxyi [11], 300mg Roxithromycin, Tinii [15] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [2] for Cpni [7] 11/04. Dx: 25yrs CFSi [16] & FMSi [24]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [15] 1000mg/day pulses; Vit D2000 units, T4 & T3

I still haven't had a bad reaction to flagyli [4]. Heck, even my monthlong flagyl pulse brought minimal (though noticeable, at least) reaction. Hdwhit, can you wait 32 months like I have???? Even without huge distress, I've had great improvements.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Jim K....Oh boy, I am thinking a country & western song is in this somewhere, just add the dog & it would almost be complete!

HD, pulse #10 here 1000 mg day 3 & I am hanging on the edge of the Troll Queen's kiss!  Cranky today & sinuses & pain, abdominal & stomach upset, taste the metal.  I better go get some glucose!

CFIDSi [25]/ME 26yrs, FMSi [24], IBSi [26], EBVi [8], CMV, Cpni [7], chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi [20] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8

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CFIDSi [25]/ME 32 yrs, FMSi [24], IBSi [26], EBVi [8], CMV, Cpni [7], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [19] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [4]/day-3 days

MacK, have you always been on ALL the supplementsi [19] and taking the porphyriai [17] stuff as a preventative? I ask because I am and so far I've had little problem. Admittedly I'm not taking Flagyli [4] yet but the other abxi [27] have only resulted in minimal reactions.

Berkshire, UK. Diagnosed RRMSi [28] Feb 4th 2008.

NACi [20] 2400mg. All supplementsi [29]. Doxyi [11] 200mg. Zithi [3] 250mg M/W/F.
No GP/Neuroi [23] support. Self medicating with help from David Wheldoni [30].
Started CAPi [2] 20th April 2008.

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Berkshire, UK. Diagnosed RRMSi [28] Feb 4th 2008.

NACi [20] 2400mg. All supps. Doxyi [11] 200mg. Zithi [3] 250mg. Metroi [4] 400mg.
No GP/Neuroi [23] support. Self medicating with help from David Wheldoni [30].
Started CAPi [2] 20th April 2008. First pulse June 2008

There's a whole section on this in the CPni [7] Handbook and I can't summarize it and do it justice in a blog posting, so I'll just point you to it.

In addition to charcoal for removing fat-soluble toxins, I also use WelChol.  It is a bile acid sequestrant like Questran, but it comes in pill form rather than as a powder and that can make it more convenient to take.   

 

CAPi [2] for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi [3] (3 x week) ceased 3/2008, restarted 5/2008, 150 mg Roxi (2 x day) starting 3/2008, ended 5/2008. Eighth pulse metronidazolei [4] completed 5/10/2008.

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CAPi [2] for M.S. since 8/2007. Currently: 100 mg Dox. (2 x day), 250 mg Zithi [3] (3 x week).  Sixteenth pulse metronidazolei [4] + INHi [5] completed 12/20/2008.

Andesine, I started the supps three to four weeks ahead of the antibioticsi [27], only because I had to wait for prescriptions and for an allergy test to make sure I was good with azithromycin. I've always taken everything on Dr. Wheldon's supplementsi [19] list except evening primrose oil, which I gave up early on. (One too many huge capsules to swallow and it seemed redundant to fish oil.) I have never done anti-porphyric remedies and have an untouched two year old bottle of charcoal and a bottle of glucosamine tabs to prove it. The most I've ever resorted to (and that was only for the first few months) was extra CoQ10, which always made me feel less crummy almost instantly. Here's hoping it continues the same way for you!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Msi [13]. endtoxin doesnt bother you anymore because shes over here buzy trying to kill me. I invited her over this week for flagly cookies and before i knew it I founmd myself in the hospital toxic and, vomiting my cookies. Somehow she also managed to taint my armoury- My doxyi [11] is now being used against me via allergy. How did you manage to get rid of her? She was spassiming my body like the exercist when i tried to get her to leave. I was doing full body jerking! Shes still resting passivly in my vegas nerve and post nasal area I can sense her- yeah she is a " b". Shes getting a big suprized next time though! "Come on over for flagly cookies but do try some of my charcol baked chlorestramine when you arrive". That woman is going to get it from me next time believe me.

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CPNi [7] pcri [31] and antibody positive , treating MSi [13], CFSi [16], TMJ, trigeminal neuralgia, IBSi [26] neutropenia, pus found in facial bone, Doxyi [11] 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi [4] pulses each month.