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new treatment question
By lee
Created 05/09/2008 - 7:30am

I am switching to the new protocol. I read where it says to check the titres for cpni [1] in the blood. My husband and I tested positive he for iggi [2] and igm me for just igm. I don't understand how you can use this as a guideline. I never test positive unless it is after a pulse. Dr. W also states that negative titres mean little. Any help here?

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zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagyli [3]i [3] every 3 weeks.

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Lee-whats the new protocol

Submitted by veressv on Fri, 2008-05-09 07:43.
Lee-whats the new protocol you are switching to? And from what? It would help a lot i think for others to help you...

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doxy200, azith250, NACi [6] 2400, Metroi [3] 1250(once a month), supplementsi [7], vitaminsi [8].

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 I'm not sure exactly Lee,

Submitted by Jim K on Fri, 2008-05-09 23:09.

 I'm not sure exactly Lee, but I think Dr. Stratton is feeling a bit more confidence in the Mayo Clinic tests for Cpni [1], so he may be referring to titers with that reference point in mind. I also think that this would not apply to all cases, as David's comments about difficulties of measuring Cpn in MSi [9], even with samples of cerebrospinal fluid, still hold. Personally, I would trust my personal reactions, or lack of them, to the regimen antibioticsi [10] more than a titer. Believe me, if you can do a course of rifabutin with no reaction, you are cooked and done!

CAPi [11] for Cpn 11/04. Dx: 25yrs CFSi [12] & FMSi [13]. Protocol: 200mg Doxyi [14], 300mg Roxithromycin, Tinii [15] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [11] for Cpni [1] 11/04. Dx: 25yrs CFSi [12] & FMSi [13]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [15] 1000mg/day pulses; Vit D2000 units, T4 & T3

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Lee, it would be

Submitted by nino pranzo on Sat, 2008-05-10 08:32.
Lee, it would be interesting to know the titres, as to be able to compare. The last check I had was IgGi [2] 1:1024, DNA negative; before that IgG 1:256, DNA positive. I think (but it is only my idea) that when you kill enough Cpni [1], the fragments go around and (being antigens) they push your system to produce IgG. I would like also to compare the pulse length of others. Thanks. Nino: French Riviera, Cpn pneumonia june05 (misdiagnosed). Self diagnosed-treated. Sept.06 found doctor who confirmed Cpn, prescribed Zit 500mg every sec.day. I added NACi [6], supplementsi [7], metron.pulses, 200mg Doxi. Now Roxi instead of Zit.

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Nino: French Riviera, Cpni [1] pneumonia june05 (misdiagnosed). Self diagnosed-treated. Now on Roxi 150mg bid, NACi [6] 1200 to 2400, vitaminsi [8]. Rifampin 300mg, calcium pyruvate 3 g.

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