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Are there any non MS doctors prescribing at Vanderbilt?
By MacKintosh
Created 05/06/2008 - 1:16pm

  • Cpn and specific diseases
A puzzlement. On the Lyme board, where Andesine and I have been answering cpni [1] questions this week, more than one of the members has tested (yes! can you believe it?) positive for cpn. The question came up about visiting Vanderbilt for prescriptions. Is there anyone at Vanderbilt who sees patients who haven't been diagnosed with MSi [2], yet prescribes antibioticsi [3] for cpn infection? Second best would be nearby, as apparently several people on that board live in the same area and feel cpn testing and treatment would benefit them, too. PM me if you have particulars. Post here for general info. Thanks in advance!

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

‹ just diagnosed with peripheral vasculitis [4] antibiotics-stratton › [5]

Mac, please let me  if

Submitted by sharon on Tue, 2008-05-06 17:22.

Mac, please let me  if someone emails letting you know if someone at vandy treats outside of MSi [2].

Mphs, TN. CFSi [6], hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni [1], myco, EBVi [7], CMV. NACi [8] 4000mg, doxyi [9] 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli [10], tinii [11]<

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Mphs, TN. CFSi [6], hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80, right arm neuropathy. + cpni [1], myco, EBVi [7], CMV. Capi [12] began in 6/07. NACi [8] 2400mg, doxyi [9] 100-bid, biaxin 500mg bid since 7/08, progesterone, synthroid, flagyli [10] pulses

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Sharon, Will do! I've

Submitted by MacKintosh on Tue, 2008-05-06 17:47.

Sharon, Will do! I've already heard from one person who visited Vanderbilt and got nowhere, as he is not an MSi [2] patient and the doc he saw dismissed the idea of cpni [1]. You have to wonder if anyone, anywhere, talks to the people they work near/with? Wink

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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  Mack, as far as I know, [13]

Submitted by Sarah on Tue, 2008-05-06 17:48.
 

Mack, as far as I know, Stratton and Sriram developed the so called "Vanderbilt profile" and Sriram uses it for MSi [2] patients, but it is still at trial stage, so for people on a trial and anyone else with MS who can pay.There might be some other specialist who will prescribe, but not because they are at Vanderbilt, because as a University hospital they are doing tons of other research stuff as well...........Sarah

An Itinerary in Light and Shadow by a real "Painter of Light"...........Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [14] was 7, now 2, less on a good day.

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [2] in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [14] was 7, now 2, less on a good day.

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That's what I was afraid

Submitted by MacKintosh on Tue, 2008-05-06 17:51.
That's what I was afraid of! Okay, Sarah, I'll still keep my fingers crossed someone can come up with a prescriber, either at Vandy or in the geographical vicinity, at least.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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Why did I say "Profile" when

Submitted by Sarah on Wed, 2008-05-07 07:12.
Why did I say "Profile" when I meant "Protocol?"  
  
That's what happens when a lark works too late at night!............Sarah

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi [2] in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSSi [14] was 7, now 2, less on a good day.

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Sarah it wasnt you ..

Submitted by clammed_up on Thu, 2008-05-15 10:31.

Sarah it wasnt you .. it was the chlams..

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CPNi [1] pcri [15] and antibody positive , treating MSi [2], CFSi [6], TMJ, trigeminal neuralgia, IBSi [16] neutropenia, pus found in facial bone, Doxyi [9] 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi [10] pulses each month.

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Links:
[1] http://www.cpnhelp.org/glossary/term/167
[2] http://www.cpnhelp.org/taxonomy/term/6
[3] http://www.cpnhelp.org/taxonomy/term/38
[4] http://www.cpnhelp.org/just_diagnosed_with_perip
[5] http://www.cpnhelp.org/antibiotics_stratton
[6] http://www.cpnhelp.org/glossary/term/163
[7] http://www.cpnhelp.org/glossary/term/120
[8] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[9] http://www.cpnhelp.org/taxonomy/term/39
[10] http://www.cpnhelp.org/taxonomy/term/44
[11] http://www.cpnhelp.org/chlamydia_pneumoniae/an_0
[12] http://www.cpnhelp.org/glossary/term/168
[13] http://www.cpnhelp.org/print/4372#comment-32342
[14] http://www.cpnhelp.org/glossary/term/171
[15] http://www.cpnhelp.org/taxonomy/term/54
[16] http://www.cpnhelp.org/taxonomy/term/19