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BADD
By Andesine
Created 05/01/2008 - 9:08am

  • The Back Porch Off- Completely Topic Musings

No, nothing to do with Michael Jackson.

Every year, May 1st is Blogging Against Disablism Day and loads of people sign up and post whatever is bugging them. You get a lot of hits as it's all linked back to Diary of a Goldfish.

This year you may have an idea of my subject [1]. Laughing

It may result in more people, it may result in brickbats but the links are there in what I hope is a logical order. 

 

 

 

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Berkshire, UK. Diagnosed RRMSi [2]i [2] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4]i [4] 200mg. Zithi [5]i [5] 250mg. Metroi [6]i [6] 400mg.
No GP/Neuroi [7]i [7] support. Self medicating with help from David Wheldoni [8]i [8].
Started CAPi [9]i [9] 20th April 2008. First pulse June 2008

‹ Upcoming Seminars re: Alternative Treatments for Chronic Illness, Autism [10] New Break › [11]

Excellent piece!  You say

Submitted by cypriane on Thu, 2008-05-01 10:14.

Excellent piece!  You say you think it will get alot of hits...how much is alot?

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [12]).  CAPi [9] since August 06, Cpni [13], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infectionsi [15], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [12]).  CAPi [9] since August 06, Cpni [13], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infectionsi [15], elevated heavy metals, gluten+casein sensitivity. 

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The links stay there all

Submitted by Andesine on Thu, 2008-05-01 10:51.

The links stay there all year. My 2007 post got over 10,000 hits. Talking of which, the first reply is on their way over. :o)

Got to keep monitoring for approvals. Catch you all later.

[Edit] 126 hits in the first 15 minutes after I published. 

Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

NACi [3] 2400mg. All supplementsi [16]. Doxyi [4] 200mg.
No GP/Neuroi [7] support. Self medicating with help from David Wheldoni [8].
Started CAPi [9] 20th April 2008.

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Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [5] 250mg. Metroi [6] 400mg.
No GP/Neuroi [7] support. Self medicating with help from David Wheldoni [8].
Started CAPi [9] 20th April 2008. First pulse June 2008

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The difference between what

Submitted by MacKintosh on Sat, 2008-05-10 13:18.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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Spot on! as you Brits (I

Submitted by jeanneroz on Sat, 2008-05-10 17:59.

Spot on! as you Brits (I think ;) say... fantastic blog and information... what a way to get the word out. 

I actually read and related to some of your other blogs as well....

Jeanneroz ~CPN diagnosed and started protocol  4/2007, also have  HHV6, EBVi [14].  CFIDSi [17]/FM diagnosed: 6/07; Protocol:  200 mg/doxyi [4] daily~ 250 mg AZITH M/W/F ~1st Tindi pulse 4/17/08- 1 250 mg. tab for 2 days. supplementsi [16]

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JeanneRoz~CPNi [13] diagnosed & started protocol 4/2007, also HHV6, EBVi [14]. CFIDSi [17]/FM diagnosed: 6/07; 100mg/doxyi [4]/BID ~ 250 mg AZITH M/W/F ~1st Tinii [18] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

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So you're basically saying

Submitted by Andesine on Sat, 2008-05-10 19:36.

So you're basically saying you're nuts like me? Wink

Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

NACi [3] 2400mg. All supplementsi [16]. Doxyi [4] 200mg. Zithi [5] 250mg M/W/F.
No GP/Neuroi [7] support. Self medicating with help from David Wheldoni [8].
Started CAPi [9] 20th April 2008.

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Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [5] 250mg. Metroi [6] 400mg.
No GP/Neuroi [7] support. Self medicating with help from David Wheldoni [8].
Started CAPi [9] 20th April 2008. First pulse June 2008

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Wow! Very nice and [19]

Submitted by kitkat2 on Sat, 2008-05-10 21:15.
Wow! Very nice and thorough, Andesine. We's better batten down the hatches to prepare for the influx to come! :)

 

[Doxyi [4], Azith, Biaxin and Flagyli [6]]  for rrmsi [2] since October '05.  Added Amoxicillini [20] 1gm twice daily and LDNi [21] 4.5mg qhs October '07; Added Inositol[1gm] and Calcium Pyruvate[4-6gm] daily February '08, EDSSi [22] was 6.5,

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Wheldon Protocol for rrmsi [2] since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi [23]'s for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

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That was fabulous Adesine!

Submitted by Arttile on Sat, 2008-05-10 22:25.

That was fabulous Adesine! You are such a good writer! And laugh out loud funny. Thank you!

Nancy 

PPMSi [24]-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi [7]. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi [9] 3/2/07 - 200 doxyi [4]; azith MWF. 4 pulses. Rockville,Md. Loo

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PPMSi [24]-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi [9] 3/2/07 - 200 doxyi [4]; azith MWF. 5 pulses.

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Source URL (retrieved on 01/08/2009 - 10:58am): http://www.cpnhelp.org/badd

Links:
[1] http://www.jbvisions.co.uk/voices/archives/125
[2] http://www.cpnhelp.org/glossary/term/184
[3] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[4] http://www.cpnhelp.org/taxonomy/term/39
[5] http://www.cpnhelp.org/taxonomy/term/41
[6] http://www.cpnhelp.org/taxonomy/term/44
[7] http://www.cpnhelp.org/taxonomy/term/7
[8] http://www.cpnhelp.org/taxonomy/term/36
[9] http://www.cpnhelp.org/glossary/term/168
[10] http://www.cpnhelp.org/upcoming_seminars_re_alte
[11] http://www.cpnhelp.org/new_break
[12] http://www.cpnhelp.org/glossary/term/183
[13] http://www.cpnhelp.org/glossary/term/167
[14] http://www.cpnhelp.org/glossary/term/120
[15] http://www.cpnhelp.org/taxonomy/term/58
[16] http://www.cpnhelp.org/taxonomy/term/63
[17] http://www.cpnhelp.org/glossary/term/164
[18] http://www.cpnhelp.org/chlamydia_pneumoniae/an_0
[19] http://www.cpnhelp.org/print/4342#comment-32607
[20] http://www.cpnhelp.org/taxonomy/term/49
[21] http://www.cpnhelp.org/glossary/term/170
[22] http://www.cpnhelp.org/glossary/term/171
[23] http://www.cpnhelp.org/taxonomy/term/53
[24] http://www.cpnhelp.org/glossary/term/185