Louise CFSi [3]/ME. CPnPositive. BbPositive. WheldonCAPbegan6/24/07. Now NACi [9], Doxyi [6], Roxi, Full Tinii [10] Pulse#5 post pulse day 10 in process. Cholestyramine at Bedtime for Phorphoria & liposacaride Endotoxini [11] Die-Off Experiences treatment and prevention during pulse cycle days 5 - 14 one to two packets with an extra glass of water afterwards.

___________________________________________________________

Louise  CFSi [3],CPNi [2]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [4] +fattyEndotoxins HS PRN, Wheldon CAPi [5] 6/07,all supps, Doxyi [6] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

Louise,  Everytime I see one of those commercials advertising drugs to control restless legs, high cholesteroli [12], or urgent bladder problems, I think "if only the widespread existence of chronic infections  and their connection to these conditions were known to the general public and the mainstream medical community."

It doesn't require much time to read enough on this site to realize that many of us have more than one chronic condition, sometimes several chronic conditions.  The one chronic condition doesn't cause the other.  Of course it's the bugs!   

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [13]).  CAPi [5] since August 06, Cpni [2], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

___________________________________________________________

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [13]).  CAPi [5] since August 06, Cpni [2], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infectionsi [15], elevated heavy metals, gluten+casein sensitivity. 

RLS? It would not surprise me if a huge majority of the members of this site have this - mine was muscle spasms from my MS, Richard's from ?. Neither of us ever gave it a thought - it just was. Now it is gone. Surely it was invented by the Name-it committee of a drug companie that had a drug that needed selling. Really, I'm not as cynical as that sounds.

 

Rica PPMSi [16] EDSSi [17] 6.7 at beginning - now 2. Began CAPi [5] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [6] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [18] total 50 pulses NC USA

___________________________________________________________

 

Rica PPMSi [16] EDSSi [17] 6.7 at beginning - now 2. Began CAPi [5] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [6] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [18] total 55 pulses LDNi [19] Rifampin 8/08 again NC USA

I've had RLS since age 26, some 37 years now, off and on. Several years ago, I came close to participating in a Johns Hopkins study RLS study, and the medical profession there had me on gabapentin for over a year. (That ended when I realized that I was getting both clumsy and a little more dopey than I'd ever been). Now with CAPi [5], my RLS has changed. It's at times more severe -- my legs actually jump around, and at times absent just when I would expect it to act up (airplane rides, long or boring movies). I haven't been able to understand how the timing of this relates to pulses. We'll see. Sue Ulcerative colitis diagnosed 11/05, arthritis, rosaceai [20]; CAP starting 02/07: minocyline 200mg x 2, azithromycin 250 mg MWF, NACi [9] 1200 mg x 2, pulses of metronidazolei [18] 500 mg x 2 five days starting 04/07. Cured of colitis 11/07.

___________________________________________________________
Ulcerative colitis diagnosed 11/05, arthritis, rosaceai [20]; CAPi [5] starting 02/07: minocyline 200mg x 2, azithromycin 250 mg MWF, NACi [9] 1200 mg x 2, pulses of metronidazolei [18] 500 mg x 2 five days starting 04/07. Cured of colitis 11/07.

Sue, I am looking at your signature line and see "Cured of colitis" 11/07 are you perhaps atributing this to your 9 months on CAPi [5] 7 of which you had been pulsing Flagyli [18].  Would you be willing to say more about your changes since starting CAP? It sounds like you have had some real symptom reversals.   Thanks for sharing,

Louise

CFSi [3]/ME.CPnPositive.BbPositive.

WheldonCAPbegan6/24/07. NowNAC,Doxyi [6], Roxi, Full TiniPulse#5 pulse cycle day 10 today. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

___________________________________________________________

Louise  CFSi [3],CPNi [2]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [4] +fattyEndotoxins HS PRN, Wheldon CAPi [5] 6/07,all supps, Doxyi [6] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

Well, I agree as mentioned above, no surprise RLS & cardiac related.  I still have the arythmia going on, but-- the RLS & the migraines, pretty much gone, hopefully for good.

CFIDSi [21]/ME 26yrs, FMSi [22], IBSi [23], EBVi [14], CMV, Cpni [2], chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi [9] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8

___________________________________________________________

CFIDSi [21]/ME 32 yrs, FMSi [22], IBSi [23], EBVi [14], CMV, Cpni [2], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [24] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [18]/day-3 days

Louise, see this thread [25] for a few more details.

One trick, by the way, with these forums, is to click on a person's handle, to get to their "user" page, and then click on the "track" tab. That gets you a list of threads to which that person has posted (although it doesn't get directly to the messages they wrote in that thread).

Yes, Louise, I consider myself cured of ulcerative colitis, as I had hoped. I'd had GI tract problems for years, then came down with rectal bleeding in the fall of 2005. A gastroenterologist diagnosed me with Crohn's diseasei [26] after administering a colonoscopy, started me on a light dose of Asacol, which had to be increased as my symptoms returned and worsened. He had me try steroid enemas, then prednisone, which worked beautifully, but had to be tapered off to avoid its side effects. A second gastroenterologist later diagnosed me with ulcerative colitis, but in the meantime I had started CAPi [5] in February of 2007. Improvement came last November, and in the late winter I started cutting down on Asacol, then eliminating it altogether. I've been fine since, though I continue on CAP. Sue Ulcerative colitis diagnosed 11/05, arthritis, rosaceai [20]; CAP starting 02/07: minocyline 200mg x 2, azithromycin 250 mg MWF, NACi [9] 1200 mg x 2, pulses of metronidazolei [18] 500 mg x 2 five days starting 04/07. Cured of colitis 11/07.

___________________________________________________________
Ulcerative colitis diagnosed 11/05, arthritis, rosaceai [20]; CAPi [5] starting 02/07: minocyline 200mg x 2, azithromycin 250 mg MWF, NACi [9] 1200 mg x 2, pulses of metronidazolei [18] 500 mg x 2 five days starting 04/07. Cured of colitis 11/07.

Thanks Norman and Sue,  Guess I missed that early April posting.  Definitely worth noting.  Looking forward to when you and Sue can write Patient stories of success for the files

Louise

CFSi [3]/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi [6], Roxi, full TiniPulse#5 day 11 in process. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

___________________________________________________________

Louise  CFSi [3],CPNi [2]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [4] +fattyEndotoxins HS PRN, Wheldon CAPi [5] 6/07,all supps, Doxyi [6] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

Mine is already there, although it could use updating.