:-) 

UK Carer of bedridden Severe ME/CFS Feb06. CPNi [1] dx. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi [2] Jan08.  300mg Roxi Apr08.

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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi [1] dx.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi [2] Jan08.  300mg Roxy Apr08 Stopped abxi [3] Nov/Dec08. Building up on Supps again.

Skin Poo! LOL.

Berkshire, UK. Diagnosed RRMSi [6] Feb 4th 2008.

NACi [7] 2400mg. All supplementsi [8]. Doxyi [2] 200mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [11] 20th April 2008.

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Berkshire, UK. Diagnosed RRMSi [6] Feb 4th 2008.

NACi [7] 2400mg. All supps. Doxyi [2] 200mg. Zithi [12] 250mg. Metroi [13] 400mg.
No GP/Neuroi [9] support. Self medicating with help from David Wheldoni [10].
Started CAPi [11] 20th April 2008. First pulse June 2008

Nor pleasantbut a good sign, happened to me too.   Now I'm waiting for the day when I can shave my legs again...

Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Out, damn'd spot! out, I say!— 

^{Daisy - Husband on CAPi [11] 5/07.   Roxyi [16], Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi [2], Azithromycin, Flagyli [13], Minoi [17]}

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Daisy - Husband on CAPi [11] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

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Paula has also mentioned to me today, that another symptom that she gets that is largely reduced this past month, is the lack of cold and painful feet and other extremeties.  I would continually have to put her bed socks on, no matter what the temperature was in the bedroom.  This rarely happens now.

UK Carer of bedridden Severe ME/CFS Feb06. CPNi [1] dx. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi [2] Jan08.  300mg Roxi Apr08.

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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi [1] dx.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi [2] Jan08.  300mg Roxy Apr08 Stopped abxi [3] Nov/Dec08. Building up on Supps again.

Well that is real progress....

Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Hi Sarah and all I too am growing more leg hair again!

Louise

CFSi [20]/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi [2], Roxi, Full tinii [21] 5 day, Pulse #5 day 8 in process now. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

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Louise  CFSi [20],CPNi [1]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [22] +fattyEndotoxins HS PRN, Wheldon CAPi [11] 6/07,all supps, Doxyi [2] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

I'm getting confused about all this leg hair growth talk

Does CPni [1] cause leg hair growth to stop?

UK Carer of bedridden Severe ME/CFS Feb06. CPN dx. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi [2] Jan08.  300mg Roxi Apr08.

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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi [1] dx.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi [2] Jan08.  300mg Roxy Apr08 Stopped abxi [3] Nov/Dec08. Building up on Supps again.

Well, hmmmm skin poo!

I have been having alot of skin poo, resulting from?? it could be a number of things, abxi [3], hormones.  I think it is the latter, I wish I wasn't shaving my legs, I am dying my eyebrows & bleaching my mustache!

Good news for Paula! the improvements come little by little.

CFIDSi [24]/ME 25yrs, FMSi [25], IBSi [26], EBVi [27], Cpni [1], (insomnia - melatonini [28], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [7] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [24]/ME 32 yrs, FMSi [25], IBSi [26], EBVi [27], CMV, Cpni [1], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [8] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [13]/day-3 days

In a number of people whose skin is affected by Cpni [1], hair growth stops, or is greatly reduced.   Not only does the hair on my head come and go (more coming than going now) but I have very little hair on my body, including my legs.   Now I know that for most women shaving our legs is a bit of a chore, but for me it would be a sign that I am really on the mend and nearing the end of my treatment.

Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Thanks everyone.  I'll tell Paula about the leg hair.  I understand now. 

UK Carer of bedridden Severe ME/CFS Feb06. CPNi [1] dx. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi [2] Jan08.  300mg Roxi Apr08.

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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi [1] dx.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi [2] Jan08.  300mg Roxy Apr08 Stopped abxi [3] Nov/Dec08. Building up on Supps again.

Paula said to me that this is interesting cos she has never had to shave her legs in her life.  She is 42 now.  But she put it down to being blonde and with very fine hair.  She says she would hate to have to shave her legs.

But she did always wonder why the the hair on her head took so long to grow.  She would only need a trim once per year! Recently she has noticed her head hair has grown much quicker after having it hacked off by not even an amateaur hairdresser last July - me! It must have grown 3 inches in the last 10 months which for Paula is a hell of a lot.

UK Carer of bedridden Severe ME/CFS Feb06. CPNi [1] dx. Apr07. Samento 15 drops per day July07.  2400mg NAC 200mg Doxyi [2] Jan08.  300mg Roxyi [16] Apr08.

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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04.  CPNi [1] dx.Apr07. Borrelia dx Sept08. Samento 15 drps daily July07.  200mg Doxyi [2] Jan08.  300mg Roxy Apr08 Stopped abxi [3] Nov/Dec08. Building up on Supps again.

Congratulations! There may be 100 symptoms to choose from, but there are also at least 100 "I am getting better" signs. This is one that so many of us, including me, have seen. It is interesting that it shows up so early.

 

Rica PPMSi [29] EDSSi [15] 6.7 at beginning - now 2. Began CAPi [11] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [2] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [13] total 50 pulses NC USA

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Rica PPMSi [29] EDSSi [15] 6.7 at beginning - now 2. Began CAPi [11] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [2] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [13] total 55 pulses LDNi [30] Rifampin 8/08 again NC USA

Leg hair -- wait a minute!  I've been told by many people older than myself that as you get older you stop growing hair on your arms and legs. I assumed that was one of the rare bonuses of aging.

PPMSi [29]-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi [9]. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi [11] 3/2/07 - 200 doxyi [2]; azith MWF. 4 pulses. Rockville,Md. Loo

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PPMSi [29]-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi [11] 3/2/07 - 200 doxyi [2]; azith MWF. 5 pulses.

I heard that too Nancy.  I have never had much hair on my legs, not much on my brows & quite blonde (I dye it to match my hair) & very little blonde hair on my arms.  My scalp hair is fine & not that much of it too!  But, God has a sense of humour, he has given me some new hair growth on my upper lip & hair where women don't really want it!!! LOL

This is probably more information than you all needed to know.

CFIDSi [24]/ME 26yrs, FMSi [25], IBSi [26], EBVi [27], CMV, Cpni [1], chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi [7] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8

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CFIDSi [24]/ME 32 yrs, FMSi [25], IBSi [26], EBVi [27], CMV, Cpni [1], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [8] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [13]/day-3 days

This is good news Paula.  Perhaps the beasts are leaving the skin.  Is Paula taking biotin as this is supposed to help the hair!

I have been sweating like crazy, lots of skin poo - 2 shower days!  Good thing husband is 8 days on sun up to sun down right now as it gets a little gamey around here!  So, I am dry brushing & just started the Lymph cleanse.

I am so glad we had this little talk, lol

CFIDSi [24]/ME 26yrs, FMSi [25], IBSi [26], EBVi [27], CMV, Cpni [1], chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi [7] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#9 750mg 5.5 day, 4-25-8

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CFIDSi [24]/ME 32 yrs, FMSi [25], IBSi [26], EBVi [27], CMV, Cpni [1], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [8] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [13]/day-3 days

I don't sweat. In my 20s I stopped having to shave my legs. By my early 30s I didn't have to shave my underarms and now the only real body hair I have anywhere is my forearms, face and head. I learn so much on this site!  I look forward to getting all sweating, and  furry. :)

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Corinna | GFAi [14]. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Great news Paula, It is encouraging to see something happening.   I always look upon the condition of my hair as a mirror of what is going on inside.

Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [14]: Wheldon CAPi [11] 1st May 2006. Daily Doxyi [2], Azi MWF, metroi [13] pulse. Zoo keeper for Ella, RRMSi [6], At worse EDSSi [15] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006