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Vitamin D, Iodoral and Waiting to See a New Dr
By Reenie
Created 04/25/2008 - 12:34pm

  • Vitamin D

I want to thank all of the responders to my questions on waiting or starting the CAPi [1] before my Dr's appt May 20th with a new infectious disease Dr. 

Since I have enough Zithi [2] and minoi [3] to start, I felt I had already made my mind up regardless of whether or not he's willing or wanting to get me started on a CAP but I decided to wait since I've been off abxi [4] now since Dec 2007 and don't want to alter my blood work with the addition of abxi [5]. 

So with that in mind, I've decided to ramp up Iodoral in the meantime to see if I continue to improve on that.  My endocrinologist has suggested I would need to be retested monthly now for thyroid functions and so I'll be doing so before I alter any of the thyroid meds I'm currently on.  (I take a combo of Synthroid and Cytomel)  I've read the book by Dr Brownstein on iodine and I have a better understanding now of the effects of it.  (thanks for being persistent about the book, Jim) 

In addition, my endo is monitoring my D levels which I've done for the past 4 yrs due to the MP.  I'm now working on increasing the 25D level back into the normal level, realizing the avoidance of D was prob a big part of the problem rather than the solution for me.  I get that it's a complicated hormone precursor and can be an issue for certain folks and 1,25D can be elevated causing inflammatory probs but I think it was wrong for me anyway, to keep it so low.  

In light of my new realization to raise the D, my endo has suggested an rx of D2 for 50,000 iu's/week which I'm naturally refusing.  I will continue to get sun exposure (felt good to actually wear short sleeves in the daytime again) and take a small amount of supplemental D3 for now while monitoring my levels.  So far, my 25D level has come up (8.5 to 13.5) even w/o much supplementation just from NOT avoiding light.  I have no doubt the healthiest way to increase levels into the normal range would be to get natural light which I can living here in sunny Phoenix, AZ.  

BTW, aside from the low 25D my other blood tests were more within normal ranges than they had been for the past several years, other than my thyroid still being a little off from the past odd accounts I was having right before stopping the extremely high dosing of Benicar before stopping it on March 1st.  (I had increased dosing from 40 mg/q6h to q3-4h for the past several months before stopping, which is the time when my labs got the worst)

 

MP for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [7]i [8]i [9]/FMSi [10]i [10], Hashimoto's, Psoriasis, PA, IBSi [11]i [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12]i [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

Reenie - Sounds like you

Submitted by Daisy on Fri, 2008-04-25 19:06.

Reenie - Sounds like you have a good plan.

The one thought I will add that it will take a long time to bring your D back up to a normal level with just daily sun exposure in Phoenix unless you are planning on becoming an igunana and parking on a sand stone in the desert  or life guarding at one of the chichic resorts in Scottsdale.

Google any paper by Vieth on Vitamin Di [13] - very enlightening - will answer tons of questions.  The Best Bet Diet site has several audio/video/slide presentations by Dr. Vieth on Vitamin D.  Science is impeccable in his presentations. 

Also try reading through this post [14] from THISISMS website on Vitamin D.  Jimmylegs there is an absolute guru on any and everything Vitamin d.  Know you aren't MS but the data is the data.

You may want to reconsider your doctors suggestion on the D.  It would seem that getting D built up prior to starting antibioticsi [4] could theorectically help you tolerate a CAPi [1] treatment with less issues.  Bumping up D after starting antibiotics has increased unpleasant reactions by many here.  Best I think to elevate as much as possible before hardcore CAP.  All just my opinion.

All just food for thought - totally respect whatever you decided.

Daisy - Husband on CAP 5/07.   Roxyi [15], Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi [16], Azithromycin, Flagyli [17], Minoi [3]

___________________________________________________________

Daisy - Husband on CAPi [1] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

»

Daisy, thanks for the link

Submitted by Louise on Fri, 2008-04-25 20:09.

Daisy, thanks for the link and Reenie I will be looking forward to your update from your appointment with this new doctor.

Louise

CFSi [18]/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi [16], Roxi, TiniPulse#5 day 6 off Tini. Cholestyramine now two packets at Bedtime for Phorphoria & liposacaride Endotoxini [19] Die-OffExperiences.

___________________________________________________________

Louise  CFSi [18],CPNi [20]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [21] +fattyEndotoxins HS PRN, Wheldon CAPi [1] 6/07,all supps, Doxyi [16] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

»

While I also think you

Submitted by Norman Yarvin on Fri, 2008-04-25 20:43.
While I also think you would do well to get more vitamin Di [13], refusing the D2 was a good idea; there's no reason to screw around with D2 when D3, the molecule the body makes naturally, is readily available in 5000-IU pills from high-quality sources.
»

Norman - Excellent point (as

Submitted by Daisy on Fri, 2008-04-25 20:54.

Norman - Excellent point (as usual) !  I totally missed the D2 reference. 

Daisy - Husband on CAPi [1] 5/07.   Roxyi [15], Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi [16], Azithromycin, Flagyli [17], Minoi [3]

___________________________________________________________

Daisy - Husband on CAPi [1] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

»

Daisy, Norman,

Submitted by Reenie on Fri, 2008-04-25 21:38.

Daisy, Norman, Louise, 

Thanks for your comments.   

According to Vieth and other D researchers, I only need to spend 20 mins a day in the sun to get 10,000 iu's/day of D.  Then, the body shuts off any further production. Cool

My 25D level was 57 pre-MPi [22] and I did this w/o alot of supplementation just some in my cal/mag and multi vites, sun and diet.   

I've studied THIS [23] chapter by Vieth and converted the figures to our American numbers and according to my calculations if I'm getting adequate sun and some D in my diet, I'll be up within a healthy range very quickly.  

I'll be rechecking my D levels along with increasing my supplementation if necessary, but not without accurate testing.  I think it may be more difficult to get enough D if you're living in a colder climate or not outside enough but I really don't think that's an issue for me here.

 

MP for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

Hi Reenie, Don't forget that [24]

Submitted by Red on Sat, 2008-04-26 11:28.

Hi Reenie,

Don't forget that the time of the day, the season of the year, and your latitude alter the the amount of UVB rays (the Vit D3 producing rays) you are exposed to as the following study from India points out:

UVA and UVB in sunlight, Optimal Utilization of UV rays in Sunlight for phototherapy [25]

Even at high noon, UVB exposure varies so much by season, that you may have trouble getting enough Vit D3 in the near winter and winter months depending on your latitude as the diagrams of UVB exposure in various US cities by month in the following article show:

Estimations of the human vitamin D UV exposure in the USA [26]

That said, this time of year in Phoenix, if you're out in the sun around noon, you should be making decent amounts of Vit D3. You may want to think about supplementing from Oct - Mar though...

Hang in there, and most of all best of luck. Keep us posted on your progress!

On Combined Antibiotic Protocol for Cpni [20] in Rosaceai [27] 01/06 - 07/07, On Vit D3 + NACi [6] since 07/07 and daily FIRi [28] Sauna since 08/07

___________________________________________________________

Treatment for Rosaceai [27]

  • CAPi [1]:  01/06 - 07/07
  • High-Dose Vit D3, NACi [6] & FIRi [28] Sauna Only:  07/07 - 11/08
  • Intermittent CAP, High-Dose Vit D3:  11/08 - Present

»

Red, Thank you for the [29]

Submitted by Reenie on Sat, 2008-04-26 12:52.

Red,

Thank you for the great links. Smile

Yes, the main objective right now is to get my 25D level up as naturally as possible. This will help me prove that I don't have a dysregulation as previously told as well as cause me the least amount of ill effects from immunei [30] stimulation from high supplementation.

We are just barely getting into our spring weather and so I have plenty of time to increase my 25D level naturally. I also have a great endo which will keep tabs on my blood levels.

Once the fall and winter comes, I'll have had (hopefully) quite a bit of CAPi [1] healing along with (some) symptom resolution and might be able to enjoy the fall and mild winter riding season which will enable me to continue to naturally get my weekly dose of D. Of course I'll be wanting to be outside for longer periods of time then, but that would be the objective anyway... to be able to spend more time outside living life.

If need be, I'll supplement more, but that's a long way off right now. Wink

BTW, it took me a couple of years of deliberately avoiding sunlight and D foods to lower my 25D below 30. It wasn't a very easy task so whether it be where I'm living or my own body's ability to hang on to the D, I have lots of data on how my body responded.

Thank you all again for your suggestions and thoughts on this.

 

MP for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

You're welcome Reenie. I

Submitted by Red on Sat, 2008-04-26 13:35.

You're welcome Reenie. I avoided sunlight for years due to its effects on my rosaceai [27] (not to mention my increased potential for sunburn while suffering from rosaceai [31] - probably due to excessive amounts of porphyrins in the skin as I now realize) and surprise, surprise, my rosacea just kept getting worse and worse with this sun avoidance.

I've been taking at lease 4,000iu of Vit D3 a day for @ 18 months now, at least 6,000 IU of Vit D3 a day for @ a year now, and 10,000 IU of Vit D3 a day for @ 4 months now with dramatically improved health so I'm a big believer in getting adequate Vit D3 levels myself.

I've managed to get most of my friends and family to start taking it, and even though some initially think I'm a bit wacky, almost all of them eventually have reported "strange" good health effects, although often after a period of worsening symptoms that may last a few months for some. One of my friends' migraines disappeared (probably not so coincidentally her sinus problemsi [32] cleared up too), a friend with fibromyalgiai [10] and rheumatoid arthritis no longer needs to take meds she had been taking for years, and even my @ 75 year old dad swears his stiff necks, seasonal allergies and even prostatei [33] troubles have all but disappeared Can't wait to see what his PSA levels have done. As one of my friends says, it almost sounds too good to be true, but it seems to work for almost everyone I convince to try it...

Be careful though, as Dr Stratton pointed out to me, Vit D3 likely dramatically inhibits the ability of the intracellulari [34] forms of Cpni [20] to parasitize cells by preventing normal apoptosisi [35], so Vit D3 can produce a big die-off effect. It will also likely increase secondary porphyriai [36] through the same mechanism (and via interactions with p450 enzymes), so be sure to increase your anti-porphyria regimine. I didn't do this at first and suffered greatly from secondary porphyria symptoms as I now realize. Even recently when I cut back on my FIR saunaing a bit (which I have found to be key in keeping secondary porphyria under control for myself personally), I had increased secondary porphyria symptoms...

Hang in there, enjoy that wonderful Phoenix sun, and get better! It's beautiful here in San Diego today too, btw, so I'm out to get some sun as well...

On Combined Antibiotic Protocol for Cpn in Rosacea 01/06 - 07/07, On Vit D3 + NACi [6] since 07/07 and daily FIR Sauna since 08/07

___________________________________________________________

Treatment for Rosaceai [27]

  • CAPi [1]:  01/06 - 07/07
  • High-Dose Vit D3, NACi [6] & FIRi [28] Sauna Only:  07/07 - 11/08
  • Intermittent CAP, High-Dose Vit D3:  11/08 - Present

»

The figures of

Submitted by Norman Yarvin on Sat, 2008-04-26 21:28.
The figures of 10,000+IU/day from the sun assume whole-body sun exposure. Just going out in short sleeves won't do it.
»

I think my little sun

Submitted by Reenie on Sun, 2008-04-27 13:18.

I think my little sun experiment will be quite interesting to see the results of sun exposure alone on my 25D levels w/o much supplementation.  I have no doubt it will be dramatic.  Cool

I can already tell something more is happening the past few days with my increase in symptoms, albeit good and nothng too drastic.  I'm using the porphyrian measures and they are improving my overall well being too so that's a good sign.  It's a fine balance between increasing porphyrian symptoms (from the sun) and getting increase in D to strengthen the immunei [30] system and cause more apoptosisi [35]. 

Yes, Norman, we are talking full body exposure.  I have lots of bikinis except I usually cover my head with a hat and sunglasses.  The intensity of the sun on my head and face is unbearable here in the summer.  

I have a privately enclosed yard with an in ground pool to float around on when it gets too hot.  I even have a really cool shade sail that provides some shade when it's just too much to be in full sun. 

And of course, to compensate for less than full body exposure or completely direct sunlight or sunblock (when used) the time element would be extended beyond the 20 mins.  

 

MP for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

I think there's a business

Submitted by Jim K on Sun, 2008-04-27 14:23.

I think there's a business opportunity here: Reenie's Natural Vitamin Di [13] Spa for Mad CAPi [1]'ers. Although I suspect you don't want to have to see some of us in our Speedo's or bikini's! Still, the image amuses. You'd get all of our Brit members flocking to the sunny clime of Phoenix, arising from the ashes of North Sea winter like the city's namesake. 

CAP for Cpni [20] 11/04. Dx: 25yrs CFSi [18] & FMSi [10]. Protocol: 200mg Doxyi [16], 300mg Roxithromycin, Tinii [12] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

___________________________________________________________

 

CAPi [1] for Cpni [20] 11/04. Dx: 25yrs CFSi [18] & FMSi [10]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [12] 1000mg/day pulses; Vit D2000 units, T4 & T3

»

Jim, On the contrary!  We [37]

Submitted by Reenie on Mon, 2008-04-28 01:39.

Jim,

On the contrary!  We can make it a "Speedo/bikini optional" site. Tongue out

Good God, did I say that???  Just kidding!!!  Smile

Seriously though... before I realized what damage I was doing with D deprivation only making matters worse I now suspect, I had considered moving away from this hot and dry climate.  Now I'm so glad I didn't.  

I would love to be able to accomodate a CAPer friend or two sometime here at Reenie's Natural Vit D Spa.  You just have to love Jack Russells and Harleys.  Cool

MPi [22] for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

The North Sea is one of the

Submitted by Elinor on Mon, 2008-04-28 03:01.

The North Sea is one of the most beautiful sights in any weather, it's visible from our bedroom windows and back garden.........and speaking of weather, don't underestimate our English version  Cool   I haven't left this part of the world for some years now yet this year my skin is already freckling and tanning (and hopefully making D) from our lovely April sunshine.

Elinor ..... from England  on CAPi [1], doxyi [16]/roxi/tini  for ME/CFSi [18]/lyme borreliosis, positive Cpni [20] and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

___________________________________________________________
Elinor ..... from England  on CAPi [1], doxyi [16]/roxi/tini  for ME/CFSi [18]/lyme borreliosis, positive Cpni [20] and borrelia. Started Aug05, stopped Jan06, started again Sept 06.

»

Elinor, That view sounds [38]

Submitted by Reenie on Mon, 2008-04-28 13:12.

Elinor,

That view sounds breathtaking! You might just need to compensate for the more northern climate with a little more time exposed each day and of course you sound quite fair skinned which also makes it easier to produce D on the skin.

On a different note...

I finally heard back from the Dr that was rx'ing me the MP today. He said he's not comfortable rx'ing me all of these abxi [4]. He's a naturopath by profession and though he treats patients with CFIDSi [7] and other symptoms which would be helped by CAPi [1], well, he's just not willing or wanting to proceed. Frown

I still have my ID Dr's appt 3 weeks from tomorrow although I tend to doubt he'll be much more helpful than to order some routine labs for me although he would be the kind of Dr to rx a CAP to treat chronic infection.

Anyway, I still have my plan and I still have a few more Dr options even if this one doesn't pan out. Wink

MP for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [18]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

Good job Reenie! I love the [39]

Submitted by ruthless1 on Mon, 2008-04-28 13:52.

Good job Reenie!

I love the terriers, we have an Irish Terrier who thinks he is a goat at times.  We have the "Grampa mobile" I call it, the Harley Ultra Classic with the comfie seat for me! 

Good grief, these bikes need to get with some horse power to go with those beefy pipes.  All that pomp & beefy stance with the Harley name & they are ALL slow!

the sun in AZ is intense indeed, unlike many warmer places I have experienced.  That with the doxyi [16] light sensitivity had me ducking in the shade often.  I love the desert though, it is sooo beautiful.

CFIDSi [7]/ME 25yrs, FMSi [10], IBSi [11], EBVi [40], Cpni [20], (insomnia - melatonini [41], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [6] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

___________________________________________________________

CFIDSi [7]/ME 32 yrs, FMSi [10], IBSi [11], EBVi [40], CMV, Cpni [20], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [42] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [17]/day-3 days

»

I was hoping the latest

Submitted by Reenie on Tue, 2008-04-29 00:45.

I was hoping the latest increase in Iodoral would give me a little more energy boost like the initial one I felt when starting, but I think between the Vit D increase from the sunbathing and probably releasing some toxins from the Iodoral, I'm feeling more antimicrobial effect than anything else.

It's nothing too severe and I'm definitely feeling better than last week even before increasing Iodoral so I'll just continue on with my game plan. All good. Cool

MPi [22] for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

 Hang in there, Reenie...

Submitted by Red on Tue, 2008-04-29 09:26.

 Hang in there, Reenie...

On Combined Antibiotic Protocol for Cpni [20] in Rosaceai [27] 01/06 - 07/07, On Vit D3 + NACi [6] since 07/07 and daily FIRi [28] Sauna since 08/07

___________________________________________________________

Treatment for Rosaceai [27]

  • CAPi [1]:  01/06 - 07/07
  • High-Dose Vit D3, NACi [6] & FIRi [28] Sauna Only:  07/07 - 11/08
  • Intermittent CAP, High-Dose Vit D3:  11/08 - Present

»

Thanks Red, I could sure [43]

Submitted by Reenie on Tue, 2008-04-29 16:30.

Thanks Red,

I could sure use the encouragement today.  I feel puny. Frown

I think it's more of the same antimicrobial effect with an exacerbation of fluish feeling along w/fatigue and a few sneezes and runny nose.  I skipped the sunbathing today too and am in bed resting.     

I wonder if taking minoi [3] and/or Zithi [2] will make me feel better or worse.  I know there's some modulatory effect we get from  taking daily doses of some of the abxi [4].  I'm counting on something like that happening as I begin to take mino in a few weeks since I don't want to be afraid to proceed to the abxi [5]! 

 

MPi [22] for 3 1/2 yrs. NACi [6] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

"Reenie's Natural Vitamin

Submitted by Reenie on Fri, 2008-05-30 20:06.

"Reenie's Natural Vitamin Di [13]i [13] Spa for Mad CAPi [1]i [44]'ers" is a success! Cool

I'm happy to report that my D metabolism appears to be working just fine by my latest 25D test I received today. My 25D is back up to 49.2 and I must say it has got to be mainly from the sunbathing.

There's no way taking the amount of D3 I'm taking would have raised it up from 8.3 which it was on my previous test in Feb 08 and 13.5 in April 08. I began taking 400 ius in a multi vite the end of March and added 1000 ius tab of D on 4/30/08. I'll d/c the extra D tab for awhile and monitor the D levels, maybe add it back in the fall.

So folks, Phoenix, AZ seems to be a good place to naturally get your sunshine vitaminsi [45].  UV index was 12 today!  Cool

My thyroid tests have come back much more "normal" again now as well, even with taking 25 mg/day of Iodoral. I think it would be fine to increase that dose.

3/08 NACi [6] 2400 mg, 4/08 Iodoral 25 mg, 5/08 minoi [3] 100mg, myco+ CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Secondary Addison's

When I change what I believe I change what I do

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

Deleted... double post.  

Submitted by Reenie on Fri, 2008-05-30 19:35.
Deleted... double post.  

___________________________________________________________

NACi [6] 2.4g, Zithi [2] 250mg/MWF, minoi [3] 200mg, Tinii [12] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [7]/FMSi [10], Hashimoto's, Psoriasis, PA, IBSi [11], Sec Addisons

Don't believe everything you think!  

»

 Wow. That's great to hear

Submitted by Jim K on Fri, 2008-05-30 21:57.

 Wow. That's great to hear Reenie. You really have come a full 180 degrees!

CAPi [1] for Cpni [20] 11/04. Dx: 25yrs CFSi [18] & FMSi [10]. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii [12] 1000mg/day pulses; Vit D2000 units, T4 & T3

___________________________________________________________

 

CAPi [1] for Cpni [20] 11/04. Dx: 25yrs CFSi [18] & FMSi [10]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [12] 1000mg/day pulses; Vit D2000 units, T4 & T3

»

Great news, Reenie!   Glad

Submitted by Red on Fri, 2008-05-30 22:50.

Great news, Reenie!   Glad to hear it!

On Combined Antibiotic Protocol for Cpni [20] in Rosaceai [27] 01/06 - 07/07, On Vit D3 + NACi [6] since 07/07 and daily FIRi [28] Sauna since 08/07

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Treatment for Rosaceai [27]

  • CAPi [1]:  01/06 - 07/07
  • High-Dose Vit D3, NACi [6] & FIRi [28] Sauna Only:  07/07 - 11/08
  • Intermittent CAP, High-Dose Vit D3:  11/08 - Present

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I was pretty amazed today

Submitted by denise on Wed, 2008-06-25 23:33.

I was pretty amazed today when I got my blood test results back -- my level of 25 hydroxy was SIX. Yikes. This test was done several months ago and I just wasn't able to get back to my MD til today.

Over the last two weeks, I started taking D3 -- going from 2000IU/day to today's dose of 6000IU/day.

Had another blood test today, so will be interested to see if any change in D3 levels and Cpni [20], etc.

Thanks so much everyone for all the great info re D and other things.

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63 year old woman feels like 80!  CFSi [18] since 1998.  Severe fatigue and awful reverse sleep main symptoms.  No Fibro.  Tested positive for CPN 3/07.  Severe reaction to azithro (begun slowly in 5/07) - stopped. 

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Good stuff but I notice

Submitted by Andesine on Thu, 2008-06-26 04:02.

Good stuff but I notice you're not taking Doxy. There's no way Doxy will allow you to sunbathe. 5 minutes and I'm bright red and tingling. 15 minutes and it starts to hurt. I have to do gardening in long sleeves, gloves, hat and sunglasses.

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Berkshire, UK. Diagnosed RRMSi [46] Feb 4th 2008.

NACi [6] 2400mg. All supps. Doxyi [16] 200mg. Zithi [2] 250mg. Metroi [17] 400mg.
No GP/Neuroi [47] support. Self medicating with help from David Wheldoni [48].
Started CAPi [1] 20th April 2008. First pulse June 2008

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Reenie, Does Minocyclinei

Submitted by Louise on Thu, 2008-06-26 07:02.

Reenie, Does Minocyclinei [3] have no known sunsensitivity effect to your knowledge and investigation of the literature?

Louise

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Louise  CFSi [18],CPNi [20]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [21] +fattyEndotoxins HS PRN, Wheldon CAPi [1] 6/07,all supps, Doxyi [16] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

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Jim, I enjoy reading your

Submitted by Louise on Thu, 2008-06-26 07:35.

Jim, I enjoy reading your signatures and following along with your adjustments to your treatment plan. 

I see you have increased your Vit D.  My loading dose of 6000IU and 4000IU current dose of D3 now has my level of Vit D 25-hydroxy up from 22 in 12/07 now at 43 ng/ML,  Ref Range for my local lab [30 - 80] so I have room to take it a little higher without getting ino what that lab considers the toxic range.  

I had the complete D3 profile done 1 year ago prior to start of CAPi [1] , in the midst of all the doctor switching the results went to the back of the list of needs to be addressed both the D3 25 and the D3 1,25 were in range, the 1,25 was at the mid range and the 25 at the lower end of range. 

My primary question for you, dovetails on a question I asked Daisy about  Bactrim DS in her husbands signature.   She responded that they were advised to use it regarding non-cyctic forms of Borrelia, not CPn per say.  Would you be willing to share what your understanding of it's application is for your treatment plan?

Thanks, Louise  

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Louise  CFSi [18],CPNi [20]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [21] +fattyEndotoxins HS PRN, Wheldon CAPi [1] 6/07,all supps, Doxyi [16] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

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[6] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[7] http://www.cpnhelp.org/glossary/term/164
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[21] http://www.cpnhelp.org/glossary/term/175
[22] http://www.cpnhelp.org/glossary/term/174
[23] http://www.direct-ms.org/pdf/VitDVieth/Vieth CHAPTER 61.pdf
[24] http://www.cpnhelp.org/print/4281#comment-31590
[25] http://www.ijdvl.com/article.asp?issn=0378-6323;year=2002;volume=68;issue=4;spage=198;epage=201;aulast=Balasaraswathy
[26] http://www.rsc.org/delivery/_ArticleLinking/DisplayArticleForFree.cfm?doi=b404957h&JournalCode=PP
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