Do we take Doxyi [5] on an empty stomach?

When we add Azith to Doxy do we take them at the same time?

Just mention that people will get different reactions to the CAPi [4].

I can state that only after the first week, the fog is lifting a little,

and headaches are the only nuisance so far.

Hope it's some help... 

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SPMSi [11]-2003 & told that's it. Much research - I Don't Believe Them.

I researched my own beliefs of probable causes and all the viable (of hundreds) suggested an infectious cause? There were quite a few but the strongest, backed up by other res

Michele, this is a most excellent idea.

Many times I want to direct a question somewhere where a more complete answer is located and searching this site is not my strong point.  This will give us another way to reference material here for the good of all. I will be thinking of basic questions that I struggled with and may add a few questions for this new section of the website.

Louise

CFSi [12]/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi [5], Roxi, TiniPulse#5 day 4 in process. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

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Louise  CFSi [12],CPNi [1]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [13] +fattyEndotoxins HS PRN, Wheldon CAPi [4] 6/07,all supps, Doxyi [5] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

A few more for the list. Brain isn't working too well this morning but I'll keep at it.

Chlamydia!!! Should I get a divorce?

Why is my urine bright yellow/dark brown/pink/purple/green.....

Do I have to take NACi [14]

Do I have to take all the supplementsi [15]

I started on Doxyi [5]/Azith and don't notice any reactions

Do I have to take all the abxi [16]

NAC flu what are the symptoms

I'm feeling nauseous what can I do

I have constipation/diahorrea

I always get thrush when taking abxi [17] can I prevent it

How soon can I expect to be cured

Can I take painkillers while on this

Am I allowed to drink alcohol

Can I go out in the sun

How do I get diagnosed 

My left leg just fell off, is this normal?

 

Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NAC 600mg Feb 9th. Increased to 2400mg Feb 19th plus all supplementsi [18].
No GP/Neuroi [19] support. Self medicating with assistance from David Wheldoni [20].
Started Doxy 100mg 20th April 200

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Berkshire, UK. Diagnosed RRMSi [7] Feb 4th 2008.

NACi [14] 2400mg. All supps. Doxyi [5] 200mg. Zithi [21] 250mg. Metroi [6] 400mg.
No GP/Neuroi [19] support. Self medicating with help from David Wheldoni [20].
Started CAPi [4] 20th April 2008. First pulse June 2008

1. I have started taking high dose of Vitamin B complex. I saw also on the supplement list as well as on Stratton's recommendation (B12). So guess it is good, isnt it? What exactly works for though?

2. I started ordering supplementsi [15](NACi [14], Probiotics...etc.) via internet (instead of buying them in local stores) It is about half price this way. Nothing wrong if it comes from the US to EU? (i mean shipping, heat on the road, cold in the flight...etc). Or it doesnt really matter?

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doxy200, azith250, NACi [14] 2400, Metroi [6] 1250(once a month), supplementsi [15], vitaminsi [18].

Timing of abxi [16] and supplementsi [15].

Which supplementsi [18] are OK to take at the same time as doxyi [5]/azith/metroi [6] (flagyll) and which are not?

What period of time should elapse between those that interact negatively?

 

New Forest, UK. Progressive MSi dx 12/06 LDNi [22] 3/07 CAPi [4] 6/07: Wheldon version.

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Progressive MSi [23] dx2006. LDNi [22] & CAPi [4]: Wheldon version. All supps. Doxyi [5] 200mg. Zithi [21] 250mg. Metroi [6] 400mg.Pulses #17...I can because I think I can.

Great minds and all that. The past few weeks, I've been feeling we cannot go on like this, with each new member asking the same questions. (It's not their fault, so of course we answer each and every one, regardless.) The site has become unwieldy and, though I continue to try to read each and every post, it's getting nigh on impossible, due to the influx of new members who can't find the answers to simple questions, thus they each post the same basic questions. This will be a godsend. Links to DW's pages are essential. "Why do I have to feel bad to feel good again" is a must. Oh, and 'when will my treatment end'. I'd be happy to write the 'you WILL revisit old symptoms as you progress, so don't think the protocol is failing you" section.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Samples of different members supplement and abxi [16] schedules in general.  Bot the once a day approach for abxi [17] and the devided dosing regimen.  Different ideas about coping with abx related (doxyi [5]) nausea and those with occasional outright stomach pain.

Listing of absolute most essential supplementsi [15] for those who are financially challenged and paying their own way with all the treatment both supplementsi [18] and abx.

Full list of porphoria type symptoms so that brain foggled folks can see themselves in the symptoms.  I know it is here yet in foggled times not so easy to locate.

I'll keep adding more as I think of them.

This is wonderful.

Louise

CFSi [12]/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxy, Roxi, TiniPulse#5 day 4 in process. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

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Louise  CFSi [12],CPNi [1]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [13] +fattyEndotoxins HS PRN, Wheldon CAPi [4] 6/07,all supps, Doxyi [5] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

1. What tests can determine if I have Cpni [1] and can distinguish a latent from an active infection?

2. What are the different types of symptoms (e.g., porphyriai [13], endotoxini [24], cytokinei [25]) associated with this disease and what can I take that will provide some relief from each type? Is there a way to tell them apart?

CFSi [12] since 1/07. Pall anti-oxidant protocol since 8/07 with IM hydroxo-B12. Dx 3/08: Cpn, EBVi [26], CMV. Valtrex since 3/08. CAPi [4] since 4/08: Zithi [21] MWF, Flagyli [6] pulse 3 weeks.

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CFSi [12] since 1/07. Pall anti-oxidant protocol since 8/07 with IM hydroxo-B12. Dx 3/08: Cpni [1], EBVi [26], CMV. Valtrex since 3/08. CAPi [4] since 4/08: Biaxin 500 mg BID, NACi [14] 1200 mg BID, Flagyli [6] 500 mg BID pulse every 3 weeks. 

This business of porphyriai [13], I thought that was a separate disease, why do I have to for it while treating for my condition?

What is the difference between side effects of the drugs and die off symptoms and how can one know if they are allergic or just getting die off effects? 

Supplementsi [15] & NACi [14], starting CAPi [4] soon.

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SPMSi [11]< Supplementsi [15] & NACi [14], Doxyi [5] 200 mg, Azith 250 mg 3X/wk, most suppliments, currently Flagyli [6] 1500 mg x 4 days once per month

Michelle, this is going to be the cat's meow!

Great idea, at times I too, have been feeling a bit overwhelmed with the wonderful inquiring minds that are coming on stream.

I have steered a few to the search option but we certainly don't want to deter people from a chance at getting well.

Well done!

CFIDSi [27]/ME 25yrs, FMSi [28], IBSi [29], EBVi [26], Cpni [1], (insomnia - melatonini [30], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [14] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [27]/ME 32 yrs, FMSi [28], IBSi [29], EBVi [26], CMV, Cpni [1], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [15] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [6]/day-3 days

Michele,

Is there a way to create an FAQ tab on the top of the site for all of these questions to be answered?  That would be the easiest way to do this, IMOi [32]. 

PS ... and so far, I still have both of my legs attached but I think my nose is falling off.

 

MPi [33] for 3 1/2 yrs. NACi [14] 1200 mg/2x day, Iodoral 12.5 mg, myco+ I (still) want my life back! CFIDSi [27]/FMSi [28], Hashimoto's, Psoriasis, PA, IBSi [29], Secondary Addison's

When I change what I believe I change what I do

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NACi [14] 2.4g, Zithi [21] 250mg/MWF, minoi [34] 200mg, Tinii [35] 5day/1g/5 pulses, Valcyte
Iodoral 12.5mg, Supps, CFIDSi [27]/FMSi [28], Hashimoto's, Psoriasis, PA, IBSi [29], Sec Addisons

Don't believe everything you think!  

Thank you old timers on CPnhelp.org for hanging in there with us newbies and being so very, very patient and kind in answering all our repetitive questions. What you are proposing makes a lot of sense, I'm sure there is much commonality and redundency among questions from folks recently diagnosed and just getting started on a CAPi [4]. Hope you know just how much good you are doing as our mentors! Every question answered is encouragement and possibility for improved health, plus your obvious kindness and welcoming approach are mana from heaven, as many of us have struggled long and hard all ready in an adversarial medical system. No real way to say thanks, except to let you know that your extending a helping hand to those folks coming after you is worth it's weight in gold.

 

With much gratitude,

 

Andrea 

 

DX: Borrelia, Babesia, CP, suspected Bartonella CAP: Omnicef, Minocycline, Tindamax

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DX: Borrelia, Babesia, CP, suspected Bartonella CAPi [4]: Omnicef, Minocycline, Tindamax

Andrea, We've all been exactly where you are right now and we know how it feels to be dismissed, so rest assured we will ALWAYS be happy to answer more questions! Thank you for the kind words..

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

OK peeps, thanks for your contributions... Still a few days left before I have finished with this so if you think of something else, add it to the list.  

What we are doing at the moment will not mean that we won't be there to support, it will just make it a lot simpler to get the answers people need.

As Mac says we have all been there and felt the need for comfort and support at one time or another, so that is what we want to do for others too.

Michèle (UK) GFAi [3]: Wheldon CAPi [4] 1st May 2006. Daily Doxyi [5], Azi MWF, metroi [6] pulse. Zoo keeper for Ella, RRMSi [7], At worse EDSSi [8] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [3]: Wheldon CAPi [4] 1st May 2006. Daily Doxyi [5], Azi MWF, metroi [6] pulse. Zoo keeper for Ella, RRMSi [7], At worse EDSSi [8] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Absolute (and simple) clarity on practically dealing with porphyrins.

1.  what it is and why it is important to deal with.

2.  the symptoms of porphoria - i.e. so you know you got it!

3.  practical steps e.g. vitamin C flush, water, charcoal, other medical possibilities.  Described clearly with instructions to avoid confusion.

Good idea to do this.  The CPNi [1] Handbook is great, a joy to read, and still fascinating but it is also contains philosophical meanderings, general discussions and theories with the clearer practical stuff all jumbled in: so you can blink and miss something.  

 

(Even after 6 months I was doing the wrong thing - mixing up what Emergen C is for with what Bufferred Vitamin C is for.)

Ciao ....

 

M.E./CFSi [12] 20 years, intermittent.  Wheldon Protocol - Started NACi [14] and supplementsi [15] Sept 2007. Doxyi [5] and Roxy full dose by Dec '07.  First Flagyli [6] pulse January 2008.

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M.E./CFSi [12] 20 years, intermittent.  Wheldon Protocol - Started NACi [14] and supplementsi [15] Sept 2007. Doxyi [5] and Roxy full dose by Dec '07.  First Flagyli [6] pulse January 2008.

 Susan- You are so right about the Handbook. Badly needs a rewrite but no time! Michele's CAPi [4]-At-A-Glance should really help give a clear outline that will help folks follow the the meandering better!

CAP for Cpni [1] 11/04. Dx: 25yrs CFSi [12] & FMSi [28]. Protocol: 200mg Doxyi [5], 250mg MWF Azith, Tinii [35] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [4] for Cpni [1] 11/04. Dx: 25yrs CFSi [12] & FMSi [28]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [35] 1000mg/day pulses; Vit D2000 units, T4 & T3

 Collect your gems! A lot of you have tracked or collected "gems" i.e. short explanations of something you or someone else asked about that isn't easily available in the Handbook or elsewhere. I'd like to start a thread to post these quotes so we can have a running list to contribute to the FAQ's. I just answered a question about low-blood sugar and Cpni [1], for example, and realized this is one of those questions I've answered a bunch of times, but really isn't in the Handbook in a clear and succint way. So I'm going to use that one as an example of a "gem" and cut/paste just the essence of it.

So, look for the thread and post your gems! 

CAPi [4] for Cpn 11/04. Dx: 25yrs CFSi [12] & FMSi [28]. Protocol: 200mg Doxyi [5], 250mg MWF Azith, Tinii [35] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [4] for Cpni [1] 11/04. Dx: 25yrs CFSi [12] & FMSi [28]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [35] 1000mg/day pulses; Vit D2000 units, T4 & T3