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Any Facebook members on here?
By Andesine
Created 04/20/2008 - 5:06am

There are a number of MSi [1] groups on Facebook, I suspect there may be other groups for ME etc. As I find them I post info and send them here. If you have an account do a groups search and see what you can find.

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Berkshire, UK. Diagnosed RRMSi [2]i [2] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4]i [4] 200mg. Zithi [5]i [5] 250mg. Metroi [6]i [6] 400mg.
No GP/Neuroi [7]i [7] support. Self medicating with help from David Wheldoni [8]i [8].
Started CAPi [9]i [9] 20th April 2008. First pulse June 2008

‹ shit we lost the soccer em against spain... [10] On BBC News tonight › [11]

Yep I'm on Facebook. Never

Submitted by Brad W on Sun, 2008-04-20 07:46.

Yep I'm on Facebook. Never really thought of it for that purpose, but it's a great idea.

CFSi [12]i [13] and Prostatitis for 2 years.

Doxyi [4] 200mg/day. Azith 250mg MWF. NACi [3] 1200mg/day.

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CFSi [12]i [13] and Prostatitis for 2 years.

Doxyi [4] 200mg/day

Azith

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I am on Face as well, I will

Submitted by ruthless1 on Sun, 2008-04-20 18:45.

I am on Face as well, I will have a search for an ME/CFSi [12] group.

CFIDSi [14]/ME 25yrs, FMSi [15], IBSi [16], EBVi [17], Cpni [18], (insomnia - melatonini [19], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [3] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [14]/ME 32 yrs, FMSi [15], IBSi [16], EBVi [17], CMV, Cpni [18], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [20] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [6]/day-3 days

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Last night I went on Face &

Submitted by ruthless1 on Mon, 2008-04-21 20:48.

Last night I went on Face & joined all the big ME/CFSi [12], FMSi [15], Lymes groups & posted a brief reference to our site & how it has been helping me.  This should reach about 1500 people, if all the members read the wall.  I will do it again in a few more weeks. 

I actually posted one of my picss on Canada's Photo Contest sight & got 2 votes.  I am really excited, lol... I didn't think I would get one vote!

CFIDSi [14]/ME 25yrs, FMS, IBSi [16], EBVi [17], Cpni [18], (insomnia - melatonini [19], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [3] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [14]/ME 32 yrs, FMSi [15], IBSi [16], EBVi [17], CMV, Cpni [18], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [20] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [6]/day-3 days

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Careful not to push it too

Submitted by Andesine on Tue, 2008-04-22 07:07.

Careful not to push it too hard. Facebook are clamping down on what they consider spamming. Members can hit the report button and if the FB guys see several identical posts in a short space of time they will kill your account and delete all your posts and there's no arguing. Some friends got trashed for no real reason that I could see. 

Berkshire, UK. Diagnosed MSi [1] Feb 4th 2008.

NACi [3] 600mg Feb 9th 2008. Increased to 2400mg Feb 19th plus all supplementsi [20].
No GP/Neuroi [7] support. Self medicating with assistance from D W.
Started Doxyi [4] 100mg 20th April 2008

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Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [5] 250mg. Metroi [6] 400mg.
No GP/Neuroi [7] support. Self medicating with help from David Wheldoni [8].
Started CAPi [9] 20th April 2008. First pulse June 2008

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Thanks Ande, So far, so [21]

Submitted by ruthless1 on Tue, 2008-04-22 16:07.

Thanks Ande,

So far, so good!

I didn't send the same thing to each, which in hindsight, was more work, but, was for the best!

CFIDSi [14]/ME 25yrs, FMSi [15], IBSi [16], EBVi [17], Cpni [18], (insomnia - melatonini [19], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [3] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [14]/ME 32 yrs, FMSi [15], IBSi [16], EBVi [17], CMV, Cpni [18], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [20] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [6]/day-3 days

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Maybe we should have an

Submitted by Cesare on Thu, 2008-06-26 10:45.
Maybe we should have an cpni [18] group on facebook? Or is there already one ?

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Male 35 years (Hamburg-Germany),CFIDSi [14], IBSi [16], Enterovirus, Cpni [18] for years positive. Started Capi [9] on 02/19/08, Currently NACi [3] 2400, Doxyi [4] 2x100, azi 500 each day,Doxy 200, tini pulses , Oral Vancomycin for c.diff

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I just put up a group on

Submitted by Cesare on Thu, 2008-06-26 10:51.

I just put up a group on facebook . Just go to groups search for 

CPN - Chlamydia pneumoniae [22]

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Male 35 years (Hamburg-Germany),CFIDSi [14], IBSi [16], Enterovirus, Cpni [18] for years positive. Started Capi [9] on 02/19/08, Currently NACi [3] 2400, Doxyi [4] 2x100, azi 500 each day,Doxy 200, tini pulses , Oral Vancomycin for c.diff

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Ummmm need to think about

Submitted by Andesine on Thu, 2008-06-26 11:42.
Ummmm need to think about joining that. My clients contact me via Facebook and I'm not sure what effect that'll have on business Undecided

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Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [5] 250mg. Metroi [6] 400mg.
No GP/Neuroi [7] support. Self medicating with help from David Wheldoni [8].
Started CAPi [9] 20th April 2008. First pulse June 2008

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