I love this song at the moment if you have come across Newton Faulkner yet he is very moving....

http://www.youtube.com/watch?v=zFFhV9wMei8 [4]

Malcolm

Doxyi [1] 200mg since 13 Sep 07 (100mg since 26 July 07), Naci [2] 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi [3] Aug 06.

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Malcolm

Wheldon Protocol since July 07. Doxyi [1] 200mg since 13 Sep 07 (100mg since 26 July 07), Naci [2] 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi [3] Aug 06.

Malcolm-very encouraging to hear that! It is good for all to help going with those efforts. Some for so many years!

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doxy200, azith250, NACi [2] 2400, Metroi [5] 1250(once a month), supplementsi [6], vitaminsi [7].

Congratulations Malcolm, to be playing tennis at all is some feat with your diagnosis, let alone with vigour.   I look forward to hearing the results of your MRI.

Michèle (UK) GFAi [8]: Wheldon CAPi [9] 1st May 2006. Daily Doxyi [1], Azi MWF, metroi [5] pulse. Zoo keeper for Ella, RRMSi [10], At worse EDSSi [11] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [8]: Wheldon CAPi [9] 1st May 2006. Daily Doxyi [1], Azi MWF, metroi [5] pulse. Zoo keeper for Ella, RRMSi [10], At worse EDSSi [11] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Malcolm,  It's heartwarming to hear this from you.  Keep up the good work,

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [12]).  CAPi [9] since August 06, Cpni [13], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infectionsi [15], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [12]).  CAPi [9] since August 06, Cpni [13], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infectionsi [15], elevated heavy metals, gluten+casein sensitivity. 

Oops---double post

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [12]).  CAPi [9] since August 06, Cpni [13], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infectionsi [15], elevated heavy metals, gluten+casein sensitivity. 

Malcolm, this is so great! You are one of the best examples of this site - you are getting your life back BEFORE you lost too much of it! If you continue the war, you will end up after due diligence on the list of those who "used to have MSi [3]"! Playing tennis is amazing!

 

Rica PPMSi [16] EDSSi [11] 6.7 at beginning - now 2. Began CAPi [9] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [1] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [5] total 50 pulses NC USA

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Rica PPMSi [16] EDSSi [11] 6.7 at beginning - now 2. Began CAPi [9] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [1] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [5] total 55 pulses LDNi [17] Rifampin 8/08 again NC USA

Wow, good for you.  Keep pushing on, thats the right attitude.  I hope the mri reflects positive changes, wouldnt surprise me if it did.

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CPNi [13] pcri [18] and antibody positive , treating MSi [3], CFSi [19], TMJ, trigeminal neuralgia, IBSi [20] neutropenia, pus found in facial bone, Doxyi [1] 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi [5] pulses each month.

Malcolm - I so hopeful that you have arrested this hideous disease early before you sustained a lot of long term damage and that you can play tennis with vigor for decades to come!

Cheers !

^{Daisy - Husband on CAPi [9] 5/07.   Roxyi [21], Diflucan round three 4-4, Rifampin, Bactrim DS, Mepron 4-6, Prednisone, Novantrone, Doxyi [1], Azithromycin, Flagyli [5], Minoi [22]}

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Daisy - Husband on CAPi [9] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

I will chime in here tooo Malcolm,

enjoy, how wonderful you are playing tennis with vigor no less!

Keep at it!  I too, look forward to hearing about your MRI.

CFIDSi [23]/ME 25yrs, FMSi [24], IBSi [20], EBVi [14], Cpni [13], (insomnia - melatonini [25], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [2] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [23]/ME 32 yrs, FMSi [24], IBSi [20], EBVi [14], CMV, Cpni [13], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [6] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [5]/day-3 days

It is amazing how a few days can make such a difference. I started this thread on Tuesday and I had been feeling great. I was particularly buoyed by my tennis which really seemed back to my pre-dx days. On Monday though, I started my 8th full flagyli [5] pulse and by Wednesday I was feeling pretty crap.

So this time I can really see the contrast and although there is no one thing that is very bad, the overall effect of the flagyl is to leave me feeling low, unmotivated and generally down; quite a contrast to last week.

Malcolm

Doxyi [1] 200mg since 13 Sep 07 (100mg since 26 July 07), Naci [2] 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi [3] Aug 06.

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Malcolm

Wheldon Protocol since July 07. Doxyi [1] 200mg since 13 Sep 07 (100mg since 26 July 07), Naci [2] 1200mg since 27 July 07 (600mg NAC since 9 July 07), Azi 250mg 3xweek since 31 Aug 07, Flagy pulses started 3 Oct 07, diagnosed MSi [3] Aug 06.

Yes, but now you know it will pass....

Michèle (UK) GFAi [8]: Wheldon CAPi [9] 1st May 2006. Daily Doxyi [1], Azi MWF, metroi [5] pulse. Zoo keeper for Ella, RRMSi [10], At worse EDSSi [11] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [8]: Wheldon CAPi [9] 1st May 2006. Daily Doxyi [1], Azi MWF, metroi [5] pulse. Zoo keeper for Ella, RRMSi [10], At worse EDSSi [11] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006