Rica PPMSi [9] EDSSi [10] 6.7 at beginning - now 2. Began CAPi [4] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [11] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [2] total 50 pulses NC USA

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Rica PPMSi [9] EDSSi [10] 6.7 at beginning - now 2. Began CAPi [4] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [11] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [2] total 55 pulses LDNi [12] Rifampin 8/08 again NC USA

I remember when you first joined Sue... and there you are cured.   I'm not cured of my IBSi [13] yet but I'm getting there....

Congratulations and well done both of you.

Michèle (UK) GFAi [14]: Wheldon CAPi [4] 1st May 2006. Daily Doxyi [11], Azi MWF, metroi [2] pulse. Zoo keeper for Ella, RRMSi [15], At worse EDSSi [10] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [14]: Wheldon CAPi [4] 1st May 2006. Daily Doxyi [11], Azi MWF, metroi [2] pulse. Zoo keeper for Ella, RRMSi [15], At worse EDSSi [10] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Good job Sue!  How does normal living feel?

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [16]).  CAPi [4] since August 06, Cpni [17], Mpn, B. burgdorferi, systemic candidiasis, EBVi [18], CMV & other herpes family viral infectionsi [19], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [16]).  CAPi [4] since August 06, Cpni [17], Mpn, B. burgdorferi, systemic candidiasis, EBVi [18], CMV & other herpes family viral infectionsi [19], elevated heavy metals, gluten+casein sensitivity. 

I'm so glad to hear this.  I will include my testimonial of high blood pressurei [20] being cured leaving my cardiologist although great, somewhat stumped.

take care

Brian

 Sue- that's a wonderful thing to hear! And a big thing to be able to come off of the Asacol, which I'm sure was expected to be a lifetime medication.

Perhaps you might put it together into a "patient story" for us? I'd be glad to post it. We can't know what percentage of IBSi [13] the CAPi [4] will help, but if your story gives someone an avenue to try before they end up with a colostomy you'll have helped a bunch of folks. 

CAP for Cpni [17] 11/04. Dx: 25yrs CFSi [21] & FMSi [22]. Protocol: 200mg Doxyi [11], 250mg MWF Azith, Tinii [23] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [4] for Cpni [17] 11/04. Dx: 25yrs CFSi [21] & FMSi [22]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [23] 1000mg/day pulses; Vit D2000 units, T4 & T3

Cured !  That word has a lovely ring to it ! 

Congratulations on your improved health !

^{Daisy - Husband on CAPi [4] 5/07.   Roxyi [24], Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi [11], Azithromycin, Flagyli [2], Minoi [25]}

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Daisy - Husband on CAPi [4] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Yeah Sue & Norm!

I am very happy for you.  My IBSi [13] since starting treatment has been better.  It was one of those niggly symptoms under the umbrellla of ME/CFSi [21]

CFIDSi [27]/ME 25yrs, FMSi [22], IBS, EBVi [18], Cpni [17], (insomnia - melatonini [28], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [5] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [27]/ME 32 yrs, FMSi [22], IBSi [13], EBVi [18], CMV, Cpni [17], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [29] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [2]/day-3 days

Hi, just wanted to say congratulations. For me its only been 3 weeks and Im already off my IBSi [13] meds and having very minimal pain. ( as compared to pain that left me doubled over and crying. Still a long way from cured but your story further confirms to me that bowel problems are such a huge part of cpni [17]. Thanks for the update and again congratulations.

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CPNi [17] pcri [30] and antibody positive , treating MSi [31], CFSi [21], TMJ, trigeminal neuralgia, IBSi [13] neutropenia, pus found in facial bone, Doxyi [11] 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi [2] pulses each month.