an update...

I thought I would post something about where things are at the moment. I began taking INHi [1] over two weeks ago. I haven't noticed anything dramatic but there are differences, though subtle. I don't know if it's my imagination or a genuine difference, but things are a little different. I stress a little. It might just be that I want things to be different so much that I'm making in different in my head.

In any case, I go on. I also started something else new just this week. Saturday, I cracked open my first shipment of Calcium Pyruvate and began to prime myself before taking my second dose of Rifampin each day which is also when I take INH for a given day. I decided to take it this morning as well, 45 minutes before I took the days first dose of Rifampin, which is also when I take my first dose of Azithromycin (MWF) and my daily dose of Doxycycline (200mg). I did notice that I felt a bit more "normal" when I began walking later in the morning, which may just be the additional energy from the Pyruvate and probably is.

Anyway, just thought I would put something down so that I have it in print to remember down the road.

RRMSi [2]/EDSSi [3] was 4.5, was 4.???, now 5 on Wheldon Protocol (nac, doxycycline, azithromycin, metronidazolei [4]) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INH 300mg/daily on 03/17/2008.

RRMSi [2]/EDSSi [3] was 4.5, 5, now 6 on Wheldon Protocol (naci [5], doxycycline, azithromycin, metronidazolei [4]) since 04/12/2006. Added Rifampin 2x150mg/daily 08/19/2007. ~~Added INHi [1] 300mg/daily 03/17/2008~~ stopped 05/08

John, I have had similar [6]

Submitted by kitkat2 on Mon, 2008-03-31 20:14.

John, I have had similar good results with the pyruvate. 4-6GMS of it seem to stop spasticity dead in it's tracks for me. Now if I can just get to strengthening these timid muscles of mine... -kk2

On Wheldon regime [Doxyi [7], Azith, and Flagyli [4]] for rrmsi [2] since October '05. Added Amoxicillini [8] 1gm twice daily and LDNi [9] 4.5mg qhs October '07; EDSSi [3] was 6.5, now 5.5. United States.

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Wheldon Protocol for rrmsi [2] since Oct '05. Added LDN 4.5mg qhs Oct '07. All supp's. Positive IGGi [10]'s for Lyme Disease,Babesia, & Erlichiosis Sept. 2008. Currently: Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

I take 3 gms a day but don't

Submitted by ruthless1 on Mon, 2008-03-31 22:38.

I take 3 gms a day but don't have MS. I had a noticable increase in energy in the beginning. It went down & I increased my dose & then it got a little better.

In 2 weeks I will be back home & contending with the temperature difference. I will increase it at that time to help the transition.

Though, I might be killing more critters! That is good too.

CFIDSi [11]/ME 25yrs, FMSi [12], IBSi [13], EBVi [14], Cpni [15], (insomnia - melatonini [16], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [5] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

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CFIDSi [11]/ME 32 yrs, FMSi [12], ~~IBSi [13]~~, EBVi [14], CMV, Cpni [15], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [17] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [4]/day-3 days

Ruth, as well as the

Submitted by Mark Hall on Tue, 2008-04-01 05:41.

Ruth, as well as the Pyruvate, do you take D-ribose and/or glucose for your energy. Or is the Pyruvate instead of these?

Mark

UK Carer of bedridden Severe ME/CFS Feb06. CPNi [15] dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi [7] Jan 08.

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UK Carer of bedridden Severe CFS Feb06. Tick bites Summer04. CPNi [15] dx.Apr07. Borrelia dx Sept08. ~~Samento 15 drps daily July07. 200mg Doxyi [7] Jan08. 300mg Roxy Apr08~~ Stopped abxi [18] Nov/Dec08. Building up on Supps again.

Mark

Submitted by farandwide on Tue, 2008-04-01 11:30.

Mark

I'm not Ruth but I take Ribose. I started it about 2 months ago or so and haven't noticed any energy boost from it whatsoever. However, the Pyruvate does help.

all my best

John

RRMSi [2]/EDSSi [3] was 4.5, was 4.???, now 5 on Wheldon Protocol (naci [5], doxycycline, azithromycin, metronidazolei [4]) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INHi [1] 300mg/daily on 03/17/2008.

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all my best

John

I've never taken D-Ribose,

Submitted by Michèle on Tue, 2008-04-01 11:50.

I've never taken D-Ribose, but the Pyruvate is certainly effective for me. Glucose never did much for me but it helps Ella with the pain she gets in her arm. My choice would be pyruvate, especially as Paula is sensitive to glucose.

Michèle (UK) GFAi [19]: Wheldon CAPi [20] 1st May 2006. Daily Doxyi [7], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [2], At worse EDSSi [3] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [19]: Wheldon CAPi [20] 1st May 2006. Daily Doxyi [7], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [2], At worse EDSSi [3] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Michelle You touch on [21]

Submitted by farandwide on Tue, 2008-04-01 13:07.

Michelle

You touch on something that had crossed my mind to bring up, so I'll use this opportunity to do so. My understanding is D-Ribose/Ribose is for energy production; however, the lingering question is whether it might provide some assistance with porphyriai [22] as glucose does. For that matter, whether Pyruvate might also help. Both are involved in supplementing the process leading to ATP, so I wonder if they might be alternative therapies to deal with Porphyrins.

Just one of those questions this lay person wonders...

all my best

John

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all my best

John

Good question John - anyone

Submitted by Mark Hall on Thu, 2008-04-03 13:00.

Good question John - anyone know?

Mark

UK Carer of bedridden Severe ME/CFS Feb06. CPNi [15] dx. Apr07. Samento 15 drops per day July07. 2400mg NAC 200mg Doxyi [7] Jan 08.

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