Marcia, Your bio information won't appear at the bottom of blog entries, no matter what you try; it's a program glitch, it's not you. Try 'responding' to your blog and entering it there. As for the NACi [6], I'd hold at one 600mg capsule a day, unless the NAC flu is truly unbearable for you. You know what it is, you know what is causing it, so the question is really how much inconvenience you can tolerate in your normal routine. I slept a lot with NAC at first, but was off work for a couple of weeks then, so I just went with the flow and slept.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Marcia, I'm with Mac. Stay with the 600mg daily, if you can tolerate it..however, if you just cant tolerate it.. I would recommend 300mg a day instead of 600mg every other day.  

Mphs, TN. CFSi [3], hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpni [5], myco, EBVi [4], CMV. NACi [6] 4000mg, doxyi [7] 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyli [8], tinii [9]<

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Mphs, TN. CFSi [3], hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80, right arm neuropathy. + cpni [5], myco, EBVi [4], CMV. Capi [10] began in 6/07. NACi [6] 2400mg, doxyi [7] 100-bid, biaxin 500mg bid since 7/08, progesterone, synthroid, flagyli [8] pulses

Mac and Sharon-Ok, I'll try to hang in there with 1 600mg a day.  Actually, I've been thinking about when I began CAPi [10] with just 1 NACi [6] per day last Oct.  I was flat on my back for 3 days and in and out of bed for 2 more days.  This time, even though I've gotten sick, its after taking 2 per day.  And, I'm not nearly as sick as I was then.  However, I wouldn't be able to work if I had to (am on disability).  Sharon, I like your suggestion about 300mg.  In fact, my new NAC is a caplet and I can't think of any reason not to break it in half????  Maybe that would minimize the reaction?  Any thoughts??     

 

FMSi [11]/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On CAP since 10-1-07, Currently on NAC only, From Memphis-USA

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 FMS/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, EBVi [4], CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On and off CAP since 10-1-07, Currently on NACi [6] & Delta Fr. E Doxyi [7]., Cipro, Acyclovir, Cymbalta, Lyrica, Celebrex, Synthroid, Lipitor,

I find that, now that I have stopped taking NACi [6], the quality of my life has improved. It wasn't the flu but it was constantly burning and tearing eyes and a runny nose and even more fatigue than I always deal with. If you can't handle it, don't sweat it. Take a look at this recent link from Sarah: http://www.cpnhelp.org/the_truth_about_nac 

 

PPMSi [12]-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi [13]. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi [10] 3/2/07 - 200 doxyi [7]; azith MWF. 4 pulses. Rockville,Md. Loo

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PPMSi [12]-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi [10] 3/2/07 - 200 doxyi [7]; azith MWF. 5 pulses.

I vote yes.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I vote yes.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

300mg a day sound like a good idea, do it for as long as you need to and then gradually increase your dose.   Luckily this adaptation process usually takes less time than adapting to antibioticsi [16].

Michèle (UK) GFAi [17]: Wheldon CAPi [10] 1st May 2006. Daily Doxyi [7], Azi MWF, metroi [8] pulse. Zoo keeper for Ella, RRMSi [18], At worse EDSSi [19] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [17]: Wheldon CAPi [10] 1st May 2006. Daily Doxyi [7], Azi MWF, metroi [8] pulse. Zoo keeper for Ella, RRMSi [18], At worse EDSSi [19] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

On the whole, the main advantage of starting with NACi [6] is that it is OTC and that it supports the liver, an organ often stressed by Cpni [5] infection. But in terms of it's effect on how you will feel, the antibioticsi [16] will have far more impact. EBi [1]'s aren't metabolizing, so they are not using up any of your resources as are the RB's replicating in the cells. So while starting with NAC has some advantages, feeling better faster is not one of them. Sarah's post alludes to this, as she didn't do the anti-EB agents until well into the protocol. But she also did not appear to have a huge EB load, as is suggested by the strength of your reactions. Some of us have built up a big tissue loadi [20] of EB's and these can potentially make on-going infection or reinfection of cells a big issue, i.e. slow the impact of the CAPi [10] because new infected cells are countering what you kill or clear with the antibiotics.

That said, since you are awaiting the antibiotics it is a reasonable thing to bring down the EB load and help limit further infection of tissues. I don't think it matters whether you take 300mg a day or 600 every other day until you can tolerate it. You could experiment to see which is better for you: a bigger hit and then recovery day, or a continuous but tolerable milder hit.

You could do this also with Delta Fraction Tocotreinol (see forum post on this) which apparently will limit the ability of EB's to infect cells, but with a milder die-off effect than NAC. I've not noticed any dramatic difference using it, but I think it's a wise thing to add given the solid research into it, especially if your cholesteroli [21] numbers are high. Just an opinion.

CAP for Cpn 11/04. Dx: 25yrs CFSi [3] & FMSi [11]. Protocol: 200mg Doxyi [7], 500mg MWF Azith, Tinii [9] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [10] for Cpni [5] 11/04. Dx: 25yrs CFSi [3] & FMSi [11]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [9] 1000mg/day pulses; Vit D2000 units, T4 & T3

Marcia,

I will just add, this sounds like the die off toxin curse of the CPni [5].  Remember to pop the glucose, eat more complex carbs, take lots of C, charcoal caps (I have been using Chitosan - fat absorber but it is made from shellfish).  Your symptoms will subside, just give your body the tools it needs to get rid of the toxins.

Happy Easter everyone!

CFIDSi [23]/ME 25yrs, FMSi [11], IBSi [2], EBVi [4], Cpn, (insomnia - melatonini [24], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [6] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 8th Pulse 2 X 375 mg 3day,375 2 d

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CFIDSi [23]/ME 32 yrs, FMSi [11], IBSi [2], EBVi [4], CMV, Cpni [5], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [25] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [8]/day-3 days

 Artile-Thank you for the link to Sarah's info. regarding NACi [6].  Great information!  I'm desparate to get to feeling better, so armed with this information, I may change direction.  My eyes are already very dry-add the burning and it gets difficult to tolerate when you already feel miserable. 

FMSi [11]/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On CAPi [10] since 10-1-07, Currently on NAC only, From Memphis-USA

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 FMS/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, EBVi [4], CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On and off CAP since 10-1-07, Currently on NACi [6] & Delta Fr. E Doxyi [7]., Cipro, Acyclovir, Cymbalta, Lyrica, Celebrex, Synthroid, Lipitor,

Ruth-I agree that my illness is die off.  I'm slowly getting it together on the supplementsi [25] on Weldon's list. I'm taking Chlorella instead of charcoal.  Not sure yet if that is best for me.  I don't have glucose tabs yet.   Just now, in brain fog, I've forgotten why we need those.  Thanks for the reminder.  

FMSi [11]/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On CAPi [10] since 10-1-07, Currently on NACi [6] only, From Memphis-USA

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 FMS/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, EBVi [4], CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On and off CAP since 10-1-07, Currently on NACi [6] & Delta Fr. E Doxyi [7]., Cipro, Acyclovir, Cymbalta, Lyrica, Celebrex, Synthroid, Lipitor,

Jim-Well, my body made the decision for me.  I should have taken NACi [6] Friday night if I was going to try to stick to 600mg a day.  I fell asleep (more like lost consciousness) on the sofa Friday night and didn't know a thing until around 8:00 am Sat.  I staggered to my bed and slept 10 more hours.  I could not move to eat, drink, or take meds. In all, I slept about 20 hours straight.  Today is better.  At least I could shower and get dressed. 

I read all of the info. about Delta Fraction Tocotreinol.  Though I did take 300 mg of NAC last night, I'm ordering Tocotreinol asap.  Maybe I can manage a small dose of NAC with Tocotreinol.  And, my Cholesteroli [21] was very high.  Lipitor has gotten it down, but, I'd love to get rid of that. 

 I already have my Doxy so I can start when I want.  I am going with family to Charleston, SC next week for Spring vacation so won't make a major change till after.  However, I would value suggestions about how to proceed from here.  At this point, I'm more interested in getting back on Doxy asap.  I want to feel better!    

FMSi [11]/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On CAPi [10] since 10-1-07, Currently on NAC only, From Memphis-USA

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 FMS/CFSi [3] 12 yrs., IBSi [2], Hypothryoid, EBVi [4], CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [5], On and off CAP since 10-1-07, Currently on NACi [6] & Delta Fr. E Doxyi [7]., Cipro, Acyclovir, Cymbalta, Lyrica, Celebrex, Synthroid, Lipitor,

 Marcia- expect some reaction to the Toco initially, but it seems to quickly fade as it's effect is to inhibit but not outright kill stuff. I really know the burning dry eyes Nancy speaks of. And you are probably having a potentiated effect from the Lipitor, which Dr. Stratton says has some anti-chlaymdial affect. 

Glucose is to counter secondary porphyriai [26]. I don't think we get any porphyria from killing EBi [1]'s, but when you start the doxyi [7] keep it in mind. Just start gradually. Have a good vacation.  

CAPi [10] for Cpni [5] 11/04. Dx: 25yrs CFSi [3] & FMSi [11]. Protocol: 200mg Doxy, 250mg MWF Azith, Tinii [9] 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

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CAPi [10] for Cpni [5] 11/04. Dx: 25yrs CFSi [3] & FMSi [11]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [9] 1000mg/day pulses; Vit D2000 units, T4 & T3