So sorry to hear of your dad! Yes when I get upset or scared i get really tight too! Hope you feel better soon it is so hard! Barbar

NACi [5] and glutathione push for years all supplementsi [6] in protocol)IV vitaminsi [7] b1-12,C50gm,magDoxy200 10-/14/07, NAC 2400Doxy200mgAzithMWF10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli [8] 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days

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NACi [5] and glutathione push for years all supplementsi [6] in protocol)IV vitaminsi [7] b1-12,F10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli [8] 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days 7/08 finished 10th pulse on 300 rifamp bid, doxybid 7/2008

KK2, I can't begin to tell you how sad I am. A good father is a wonder, and you appreciated him. And you know he loved you, as we who had a wonderful father know. (It has been 50 years since my own father died and here I sit with tears down my face as though it were last week.) Enjoy your memories and your children - your crisis will pass and your legs will bend again.

 

Rica PPMSi [9] EDSSi [10] 6.7 at beginning - now 2. Began CAPi [2] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [11] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [8] total 49 pulses NC USA

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Rica PPMSi [9] EDSSi [10] 6.7 at beginning - now 2. Began CAPi [2] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [11] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [8] total 55 pulses LDNi [12] Rifampin 8/08 again NC USA

KK2, I'm so sorry. It is sobering for me as my father will be 86 next month and my parents have been begging me to visit them in Florida. But I'm not well enough to travel and so I keep telling them to hold on until I'm better. Of course you're very very sad and broken.  And your body is connected to your soul -- neither can move right now.  But tomorrow you will run with your grandchildren.

PPMSi [9]-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuroi [13]. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAPi [2] 3/2/07 - 200 doxyi [11]; azith MWF. 4 pulses. Rockville,Md. Loo

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PPMSi [9]-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi [2] 3/2/07 - 200 doxyi [11]; azith MWF. 5 pulses.

((((((HUGS)))))))... 

Mphs, TN. CFSi [15], hypoT (Hashi), weak adrenals, 37 w/hormones of 80 yo. right arm neuropathy. + for cpni [16], myco, EBVi [17], CMV. on NACi [5] 5000mg, doxyi [11] 100-2xday, azith 250 m/w/f/sun, estriol, progesterone, synthroid, and pulsing w/flagyli [8].

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Mphs, TN. CFSi [15], hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80, right arm neuropathy. + cpni [16], myco, EBVi [17], CMV. Capi [2] began in 6/07. NACi [5] 2400mg, doxyi [11] 100-bid, biaxin 500mg bid since 7/08, progesterone, synthroid, flagyli [8] pulses

Oh,  KitKat, I am so, so sorry to hear. Just remember when you're feeling angry that no one, and nothing, can ever steal away from you what you shared with your father. Your love, your appreciation...your memories...they are yours, and yours alone.

 

He sounds like a wonderful man. Thank you for sharing all that you have, about him, with us. I hope you will be feeling physically better, soon.

 

--Minai

 

RRMSi [3], diagnosed 2/04. NACi [5] 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAPi [2] with NAC and Doxy 2/07. LDNi [12] 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

KK2, These painful goodbyes are another rock along the bumpy road.   You will never loose your memories of the active, optimistic man that made a difference to the world.   His life after the stroke would not have been the same and although he would have born it with courage and dignity it would have been sad for his loved ones to see him reduced to infirmity.

Regarding the legs, I remember Sarah telling me once that the only times her legs would not work properly was when she was emotionally upset, so take heart on that account.   Time heals things, both grief and legs.   Consider yourself group hugged.... 

Michèle (UK) GFAi [18]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [11], Azi MWF, metroi [8] pulse. Zoo keeper for Ella, RRMSi [3], At worse EDSSi [10] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [18]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [11], Azi MWF, metroi [8] pulse. Zoo keeper for Ella, RRMSi [3], At worse EDSSi [10] 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006

Loss of a loved one, especially a parent, knocks you for six whether you're ill or not. My father died in 1974 when I was 18 and the shock sent my thyroid condition into overdrive.

The grief will subside and as your father was such a rock, you'll find you'll eventually just be left with happy memories of him which will be more of a comfort than a source of pain.

Berkshire, UK. Diagnosed MSi [1] Feb 4th 2008. NACi [5] first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.

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Berkshire, UK. Diagnosed RRMSi [3] Feb 4th 2008.

NACi [5] 2400mg. All supps. Doxyi [11] 200mg. Zithi [19] 250mg. Metroi [8] 400mg.
No GP/Neuroi [13] support. Self medicating with help from David Wheldoni [20].
Started CAPi [2] 20th April 2008. First pulse June 2008

 KK -

Having lost my grandfather, my mother-in-law and 16 yr old dog all in the past 60 days, I feel your pain and sorrow.  No matter how old you are - to lose your daddy is painful.  My Mom is still reeling pretty hard from the loss of my grandfather Jan 31 and he was 96 yrs old. 

I have found for me at least it's been very important to be gentle with myself and to give myself time each day as needed to greive.  Some days I sit on my bed and look at pictures.  Lots and lots of pictures of happy times leaving me with fresher happier memories of those I have lost. 

My thoughts and prayers with you and your family.

Please be kind to yourself KK and let others help and comfort you - this one is a very hard thing.

Daisy  - Husband on CAPi [2] 5/07.  Minoi [22], Roxy, Diflucan round two 1-31, Rifampin, Bactrim DS,  Prednisone, Novantrone, Doxyi [11], Azith

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Daisy - Husband on CAPi [2] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

KK2,  My father was the pillar of strength for our family, had a terrific sense of humor, and we thought he was indestructible.  He was a major part of my underpinning.  Minai's words strike a chord for me especially.  Our fathers live on in our memories, and their legacies are the underpinnings that continue to hold us up long after they are gone.  Allow yourself to grieve, know that he is still with you, and go on to face life's challenges with him in your underpinning.  Bless you and your family, 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [23]).  CAPi [2] since August 06, Cpni [16], Mpn, B. burgdorferi, systemic candidiasis, EBVi [17], CMV & other herpes family viral infectionsi [24], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [23]).  CAPi [2] since August 06, Cpni [16], Mpn, B. burgdorferi, systemic candidiasis, EBVi [17], CMV & other herpes family viral infectionsi [24], elevated heavy metals, gluten+casein sensitivity. 

My thoughts and prayers  are with you during this difficult time. I needed reminding today how blessed I am to still have my father at age 90 eventhough he does not understand my MSi [1]. Thank-you.

Oh Kk2, I am so sorry to hear of this. Please buy some Ignatia it is a homeopathic which helps with grief and despair. It is in little sugar pellets so there is no alcohol to interact with Flagyli [8]. Please give yourself time and some tlc now. My thoughts and prayers are with you. Karen dx msi [1] 1996. started capi [2] 10/05. Started with tinii [26] pulses switched to flagyl pulses. Now almost on continous 500mg flagyl but do need breaks. On doxyi [11] 200mg/day azith 250 mwf and NACi [5] 700mg. ldni [12] 2.0mg.

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dx msi [1] 1996. started capi [2] 10/05. Started with tinii [26] pulses switched to flagyli [8] pulses. Now almost on continous 500mg flagyl but do need breaks. On minoi [22] 100mg/day biaxin 1000mg day and NACi [5] 600mg. ldni [12] 2.0mg.

KitKat...I am sorry to hear of your father's passing.... (I lost my father when I was 10)... it doesn't matter how old you are -- losing a parent is devastating.

Your memories of him are in your heart and will never leave you....... reflect on them when you need comfort.

May God be with you in your time of sorrow. 

Jeanneroz ~CPNi [16] 4/2007; HHV6, EBVi [17], CFIDSi [27]/FM- diagnosed: 6/07; IBSi [28], prior kidney infectionsi [24], food allergies, hypothyroid (RAI for Graves in 1998), Adrenal issues; prior bronchitis/sinus problemsi [29]. 200 mg/doxyi [11] daily & 250 mg AZITH M/W/F, supplmnts

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JeanneRoz~CPNi [16] diagnosed & started protocol 4/2007, also HHV6, EBVi [17]. CFIDSi [27]/FM diagnosed: 6/07; 100mg/doxyi [11]/BID ~ 250 mg AZITH M/W/F ~1st Tinii [26] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

KK2, So sorry to hear - hope you feel better soon. On Wheldon protocol for MSi [1] since April, 2006.  doxyi [11] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [8] Pulses start end Sept., LDNi [12] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

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On Wheldon protocol for MSi [1] since April, 2006.  doxyi [11] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [8] Pulses start end Sept., LDNi [12] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

 kk2- My deep condolences. You are blessed to have had such a vibrant man as a father. Your grief is understandably in measure. It will knock you off your feet, but you'll get back on them.

CAPi [2] for Cpni [16] 11/04. Dx: 25yrs CFSi [15] & FMSi [31]. Protocol: 200mg Doxyi [11], 250mg MWF Azith, Tinii [26] 1000mg/day pulses; Vit D1000 units, INHi [32] 150mg, Magnascent Iodine 20 drps/day, T4 & T3

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CAPi [2] for Cpni [16] 11/04. Dx: 25yrs CFSi [15] & FMSi [31]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [26] 1000mg/day pulses; Vit D2000 units, T4 & T3

Hi KitKat,

I find it difficult at these times to say something to help; thanks for sharing your loss with us.  Your Dad is forever in your mind & heart. 

I hope you are back on your feet doing squats in no time!

CFIDSi [27]/ME 25yrs, FMSi [31], IBSi [28], EBVi [17], Cpni [16], (insomnia - melatonini [34], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [5] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-6-08 6th pulse 1 X 375 mg 5day

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CFIDSi [27]/ME 32 yrs, FMSi [31], IBSi [28], EBVi [17], CMV, Cpni [16], H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi [6] +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli [8]/day-3 days

KitKat, extending my deepest sympathies. I lost my Dad in March last year and it was very hard. I speak to him often and know that I will see him again if that's the plan of the universe. I hope you will take comfort in your good memories of him. regards, Raven CAPi [2] since 8-05 for Cpni [16] and Mycoplasma P. for MSi [1] and/or CFSi [15]

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Feeling 98% well and going for 100! Still testing + for Cpni [16] since June '08.CAPi [2] since 8-05 for Cpn and Mycoplasma P. for MSi [1] and/or CFSi [15]. Also EBVi [17] and HHV6 NACi [5], Iodoral, T3, BHRT, Methylcobalamin injections, Nitro patch, LDNi [12] and Methylation supplementsi [6]

KK2, thank for sharing and I am truely sorry for your current pain.

Louise

CFSi [15]/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyi [11], Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

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Louise  CFSi [15],CPNi [16]+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai [35] +fattyEndotoxins HS PRN, Wheldon CAPi [2] 6/07,all supps, Doxyi [11] 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM

KK2, All the best. Stay on course and know we are all here for you. Stay strong above it all. I wrote this back in '95. It always helped to keep me going ...... and be peaceful when the times are rough. I have travelled with silver moons over many nights in order to rest my spirit with yours, to find where you have been led, to find peace amid your hands. I shall ever strive in my heart when the doves take me to fly into headlong winds of life above the trials of each day. And, when my chest aches, I'll know it is your spirit calling on me to live with the passion of peace, in mind and heart... given by the doves effortlessly... beautifully.......... Karl 9/95

Uncommon inner strength must defy gravity...hanging on here....You all have the ability to do it!Diagnosed MSi [1] 5/4/06.  CPNi [16] past and new chronic infectionsi [24].  Lyme suspicious titers and Babesiosis found.  Started CAPi [2] 6/1/06.

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Uncommon inner strength must defy gravity...hanging on here....You all have the ability to do it!Diagnosed MSi [1] 5/4/06.  CPNi [16] past and new chronic infectionsi [24].  Lyme suspicious titers and Babesiosis found.  Started CAPi [2] 6/1/06.

 Tina-MSi [1] 37 years;EDSSi [10] 4.5

1/1/08 Wheldon CAPi [2]; Azith 250mg 3 x a week; Doxyi [11] 100mg, NACi [5] 2000 mg daily

KitKat,

My sympathy for the loss of your beloved father.  I lost my father in 1996.  His favorite bird was the Meadow Lark.  I remember as a child when he recorded the Meadow Lark song on a reel to reel tape deck and then slowed the the speed down so we could hear all the notes clearly.  On the day of his funeral there was a Meadow Lark sitting on an electrical wire above the cemetary singing.  I knew that he was there!  I have noticed that my MS symptoms always worsen during times of stress but improve as my stress reduces.

Blessings to you and your family

Tina

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 Tina-MSi [1] 37 years;EDSSi [10] 4.5   1/1/08 Wheldon CAPi [2]; Azith 250mg 3 x a week; Doxyi [11] 200mg daily, NACi [5] 2000 mg daily, started Flagyli [8] pulse 4/14/08.