For those currently on or completed a CAPi [1] who have been diagnosed with Chronic Fatigue Disorder or Myalgic Encephalitisi [2]:
Take the survey #6 on this page: http://www.cpnhelp.org/UCCASSv1.8.1/index.php [3]
It's open, and shouldn't require a password. This will only be around for a week, so get to it you tired and slow friends!
Once we accumulate the results, you can use the filtering system on the results page to look at subsets of the data, eg filter for only those on CAP for 1 year or more, etc.
We did a big and complex survey about a year ago, but the analysis demands expanded to meet the complexity of the survey and I bogged down on it completely. I'm very sorry about that. At least we can get some more simple updates via "Quick and Dirty" type small survey's. We'll do the same for MSi [5].
Links:
[1] http://www.cpnhelp.org/glossary/term/168
[2] http://www.cpnhelp.org/taxonomy/term/145
[3] http://www.cpnhelp.org/UCCASSv1.8.1/index.php
[4] http://www.cpnhelp.org/UCCASSv1.8.1/results.php?sid=36
[5] http://www.cpnhelp.org/taxonomy/term/6
[6] http://www.cpnhelp.org/print/3435#comment-23157
[7] http://www.cpnhelp.org/glossary/term/167
[8] http://www.cpnhelp.org/glossary/term/163
[9] http://www.cpnhelp.org/chlamydia_pneumoniae/supp
[10] http://www.cpnhelp.org/glossary/term/116
Only little comment: I have [6]
Hi lala, I would say over 20
Hi lala, I would say over 20 years it gets the point accross that it has been a long time for you!
Louise
CFSi [8]/ME. CPni [7] posititve, Bb positive. Started CAPi [1] 6/24/07 Doxy & NACi [9] 11/3/07 Macrolide 150mgBID added to Doxy100mgBID,NAC600mgBID 11/22/07 #1 Tini Full pulse 500mg BID 11/26/07Cholestyramine HS for porphoria/Lipo Endotoxini [10] sxs x 1 week after pulses.