How did you find your doctor? Perhaps your friends could use that as a model. Most of us here have had to work hard to find someone. They could arm themselves with the letters so well written by some members and ask anyone (doctor) interested to email or call Dr. Stratton if the information printed is not enough. You may already have read the Handbook; you can only guide people here - you can't do this for them. Good luck; we will try to answer all your questions.

 

Rica PPMSi [4]  EDSSi [5] 6.7 at beginning - now 2.  Began CAPi [6] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [7] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith,  cont. flagyli [8]  total 38 pulses NC USA

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Rica PPMSi [4] EDSSi [5] 6.7 at beginning - now 2. Began CAPi [6] Sept, 2004 with Rifampin 150 mg 2xd, Doxyi [7] 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli [8] total 52 pulses LDNi [9] Rifampin 8/08 again NC USA

For anyone with MSi [1] approaching an uninitiated doctor, I would suggest presenting this package:

1. The letter.

2. The "overview" section from Dr. Wheldon's site with the introductory/index page as a cover.

3. Some supporting articles.

4. The Cpni [3] Handbook in a binder.

It's not a good idea to stick too much paper in the doc's face at once. D W's main section includes his CAPi [6] given in a much clearer format than the CAP format on Cpnhelp.org. Paper-clip the critical pages or highlight the most critical information. The doctor can zero-in on a concise description of the protocol. At the end of the visit, you can pass the doc the handbook saying that it's a more detailed reference source if needed. That way, the necessary reading won't seem too daunting. If the doc is truly open to the idea and interested, the handbook will be used and Dr. Wheldon's site will be visited for further reading. Best wishes to you and your friends,

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [10]) / Cpn indicated by reactions; Mpn, EBVi [11], CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDNi [9].

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [10]).  CAPi [6] since August 06, Cpni [3], Mpn, B. burgdorferi, systemic candidiasis, EBVi [11], CMV & other herpes family viral infectionsi [12], elevated heavy metals, gluten+casein sensitivity.