Positive for Lyme

Just met with my naturopath to go over my Lyme and co-infectionsi tests. Co-infections came back negative but Lyme had many positive readings especially in the inflammatory markers. On the Western blot I had one band. My doctor is going to consult with an epidemiologist who specializes in Lyme and show him my tests before putting together a treatment plan for me.

This all makes so much much sense as I became ill soon after I began hiking in our local wilderness park.

I never noticed a bite but did find ticks on me after going there.

Raven

Comments

Good luck, Raven!   Let's

Good luck, Raven!   Let's hope this tackling this issue will resolve your remaining health problems soon!

 

 

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

I would say, it is not only

I would say, it is not only CD57 not being specific for lyme at all, but other inflammatory markers as well. Cytokinesi panels can tell us, whether we fight with big inflammationi, or how much intracellulari infectionsi messed our systems, cellular immunity markers can tell us, whether our IS is able to fight or how much it was destroyed or suppressed by intracellular pathogens, but it can hardly diagnose lyme. There are so many pathogens, that are causing the same disorders, cpni included. Sometimes lyme community and lyme MDs are too focused just on lyme, letting other very probable possibilities besides. Highly specific bands in WB, borrelia melisa and borrelia elispot LTT should be more accurate.

Letting this behind, I am glad, Raven, that you found someone, who is willing to examine further possible factors in this mystery illness.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFSi and many problems 30 years

Hey Raven , did I win my

Hey Raven , did I win my bet? I too tested positive for lyme and recognized so many of your symptoms that i was pretty sure you would test positive. The good thing is you have been on abxi for a long time already so I'm sure you knoked out most of it. Which bands do you test positive for? Also, do you have both your IGM and IGGi results?

I agree with the others about the CD57 not being really spcific to lyme, actually the CD75 are the natural killer cells which are part of our immunei system and any chronic infection kills them... What are our numbers?

As for me, lyme has eaten a lot of my joints cartilage and is causing my ligaments to to be quite loose, thus the pain I am experiencing from head to toes... I am now looking into prolotherapy to help repair that...

 

I would say this is all good news because it is all treatable.

Diagnosed with MSi on March 2009, started CAPi on Jan 2010. Doxyi 200mg- Roxyi 300mg- NACi and all major supplementsi.

Thanks for the advice

Thanks for the advice Timaca. I know I have a lot of homework to do. I have tested for the viruses you mention and had elevated HHV6. After four months on Lauricidin, my test levels went down by half. I feel that this supplement is one of the best anyone can take for viral infectionsi. Taking it along with Oregano oil amplifies the effect (according to some research I found).

As you say, I have been on several variations in the CAPi and followed the protocol with diligence. Either Cpni is morphing to escape the abxi or something else is present. The creepy crawly under the skin sensations in my left ankle and back are what remain as well as stiffness and pain under the skin of my scalp.The way this affliction came on is very suspicious--fever, stiff neck, headaches, muscle pain and later nerve involvement.

My Wilson's therapy appears to be working well at this point, although I am up to 30mcgs of T3 twice a day. It is great to feel warmer even in the winter. I'm boosting my immunei system with Epicor and Transfer Factor (occasionally using Thymic protein). So there have been some improvements lately but still--something remains.

Will have more information after the holidays. Whatever it is, I am determined to get at it and drive it out. Just like all of you, I want my life back--all of it!

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Raven, I read a chapter

Raven, I read a chapter every am and the book is like a thriller - somewhat horrific and hard to read, and it stays with you. It tries to help you understand the controversy. I hope it explains it all when I get to the end as I do not get it either. I'm also done with conventional medicine, sometimes my daughter worries she will end up in my shape. I tell her, "I would never let it go that far - I now know what Dr.'s to go to for help with this".

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

raven~  I've not ever heard

raven~  I've not ever heard of Lyme (and only Lyme) causing certain reactions in inflammatory markers.   Having only one band on a Western Blot does not indicate you have lyme, no matter what that band happens to be.  I would proceed very carefully before accepting a Lyme diagnosis.  Yes, there is lots of controversy in the Lyme world, but you want to proceed in a way that will help you. 

You've been on a lot of antibioticsi for Cpni, and those antibiotics would also do a good job of knocking back Lyme.  So, if you are still ill I would consider other pathogens such as Coxsackie B, echovirus, HHV-6 over a bacterial pathogen.

This is of course, just my opinion, but I have spent some time in the Lyme world, the Cpn world and the viral world.  I would get all the facts and do some learning on your own before accepting the Lyme diagnosis based on a Western Blot with one band.

Best, Timaca

on valtrex 500 mg tid

http://whispersfromthefather.me/<

 

 

 

Thanks for the suggestion

Thanks for the suggestion Wiggy. I have been super busy this week and have some vacation time coming next week. Haven't had one minute to look into much of all this. I'm just turning it around in my mind.

Yes, Christian, she seems like a very knowledgeable one to me. She is always going to conferences and consulting with other specialists. I really respect that--a lifelong learner.

What is shocking to me is all the controversy surrounding Lyme disease. And Cpni is totally flying under the radar. Well, I'm done with conventional medicine. They are only good for putting in stitches should you get banged up in an accident or binding up a broken bone. 

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Raven, I'm reading "Cure

Raven, I'm reading "Cure Unknown" - a lyme book. It is really good and explains a lot - pick it up if you have time.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Raven, Well I am glad she

Raven, Well I am glad she found it - I was also tested 2 times for Lyme. 2006 and 2008 - the first test my MD said not CDC positive. The second test I had several bands, but I think it was bc I started Wheldon Protocol for CPNi and abxi bought Lyme out. The natural path sounds great! Keep us posted on your progress.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

wow....I'm getting really

wow....

I'm getting really curious about your naturopath in a good way. The only  LLMD I've seen so far pitched the CD57 to me, which I agree with lala, they can be unreliable. The dr's really do have to put together many diagnostics to come to some conclusion. I hope my new soon-to-be LLMD is good as this. If not, I'm going to be asking for the name of your naturopath. :)

Christian

Started CAPi on 06/29/2010 for RRMSi. Dxi w/ Brevundimonas Vesicularis in Jan '11 hiding in #20 tooth with root canal. Extracted 04/04/2011. Clinically dx with Bartonella at the same time. Recently found MPn.

Abxi: 100 mg Doxyi bidi<

I will know more after the

I will know more after the holidays as my doctor will be consulting with an epidemiologist who specializes in Lyme. She kept my test papers so I don't have them to refer to in order to answer your questions.

The inflammatory markers were a whole list of things specific to a reaction to Lyme. Cytokinesi was one I recall. My doctor said many of the immunei markers that were not showing up positive indicated a depressed immune response. She thinks that this is how Cpni went wildly out of control. Lyme depressed my immune system. However there were many marked high indicating reaction to Lyme.

She said conventional doctors often will not diagnose Lyme if all the bands are not showing positive. I never saw the test results from the neurologist who tested me on '04---he just blew it off as negative---probably this is the reason. I am going to request my medical records from the center I went to just to see.

Will have more information on treatment specifics in January. I am still pretty amazed but I knew deep down there was something else going on besides Cpn. Thanks for all the suggestions.

 

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Raven, I am new here but may

Raven, I am new here but may I ask what specific tests for Lyme your naturopathic doctor used?

Thank you.

My heart sank when I read

My heart sank when I read this. I didn't want you to have Lyme, but it is wonderful to have it discovered so you know how to proceed. I follow your progress and am glad you are 95% well.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

I wonder what specific

I wonder what specific inflammatory markers does lyme have?? CD57 is not specific at all, it can be positive with many other infectionsi as well, e.g. cpni. This was stated also at last ILADS conference.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFSi and many problems 30 years

Wow. I don't know if I

Wow. I don't know if I should say I'm sorry or congratulations. At least you can be thankful for a treatment plan and positive markers.

The inflammatory markers, were they CD57 or CD56 testings? If so, do you recall the number on the reading. If you have your labs the CD57 is shown as CD8-CD57+. Just curious.

Also, if this was a CDC Western Blot, don't be fooled by one band; there are many criticisms about neglicted bands that aren't even tested and sometimes even the missing bands don't show positive.

Here is an interesting article explaining the CDC Western Blot. http://www.lymenet.de/labtests/brenner.htm<

Most people don't recall a bite either. 

I wish you the best in your Lyme journey and keep us up to date.

Christian

Started CAPi on 06/29/2010 for RRMSi. Dxi w/ Brevundimonas Vesicularis in Jan '11 hiding in #20 tooth with root canal. Extracted 04/04/2011. Clinically dx with Bartonella at the same time. Recently found MPn.

Abxi: 100 mg Doxyi bidi<