Porphyria and sulphur

On this page from this site, it talks about avoiding foods with sulphur in, since they might precipitate Porphyriai.

http://www.cpnhelp.org/porphyria_and_foods<

But since NACi contains sulphur....could it be that it will make the Porphyria worse, and maybe it is worth using Amoxycillin instead? 

That's not an authoritative source; and lumping all sulphur compounds together is almost always a mistake. NACi helps protect the liver, and that probably helps with porphyriai.

Annelet

Amoxicillini is one of my five daily abxi, and I still take NACi.  Our bodies work very hard at this, and if NAC does all these amazing things, then we will both take it daily - and do! 

If I have learned anything about this whole thing, it is that we need to do all we can to stay healthy - the second is that there are no shortcuts.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

NACi protects the liver but amoxicillini can play havoc with your bowels and the people at Vanderbilt now use NAC in place of amoxicillin.  See the third paragraph here: http://www.cpnhelp.org/?q=strattonprotocolupdate< ........................Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.
Erica is allergic to many forms of sulfur: in wine, on dried fruit, to ripen fresh fruits, in medications. I wonder if that is why she has such an AWFUL time with NACi??  And, so far (3 mos. into treatment) her liver enzymes are fine.

What are her symptoms of allergic response?  So many of us have had "allergies" all our lives.  At some point they lessen or go away.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, she has true allergies to the sulfites in wine and some fresh fruits. Her reaction to NACi is sheer misery; quadrupled MSi pain and symptoms. She already feel awful. /When she takes NAC she feels so much more awful, she would rather be dead. Living is not worth it. She plans her suicide. I realize that is not an allergic reaction; it's overwhelming die off: emphasis on "over   whelming" Which may also be affecting mind and emotions, beside legs and arms and hands, etc.Anyway, for her, NAC will have to go on "hold" temporarily.

She is totally looking forward to the day all the allergies disappear. with the Cpni.

Cheer her up with the news that several people have reported allergies to dogs, cats and wool have disappeared on this treatment.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

And mosquito bites!......................Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Life without allergies sounds like paradise! 

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

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