Please Help, I Need Input....

As you may know, my 85 yr old father in AZ had a stroke several weeks ago. His recovery has been stinted by a chronic infection[sound familiar?] He had developed sinus infection/bronchitis in early January, then had the stroke while on his eighth day of nebulizers and Levaquin. The stroke doc at the hospital knew nothing about the infection so he deteriorated. He had brain inflammationi which made him sleepy and non-interactive and he could not get rid of the increasing secretions on his own. The doc eventually honored my request to restart and complete the Levaquin. To me, there is a clear pattern of antibiotic=more alert=improving. Unfortunately, the 10-day course was not enough as my dad worsened early this week and an mri revealed increasing brain inflam. At my urging, they restarted antibiotic/nebulizers three days ago and again, my dad is having a much better outcome. Anybody have any thoughts/suggestions?? Thanks, -kk2

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Wheldon Protocol for rrmsii since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGii's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

Oh, shoot; you KNOW my

Oh, shoot; you KNOW my response without asking for it. First, my sympathy on the situation and the UNsympathetic medical staff there. If your dad is doing better on the meds, why would these people even CONSIDER taking him off them? Especially if the daughter, ahem, was standing there insisting she has had SO much improvement herself on abxi that it's simply unthinkable that they take him off the abxi. Like you don't have enough to deal with, but you're his best advocate and hope for recovery right now, so be calm but stand your ground.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

KK2,  If you aren't ready

KK2,  If you aren't ready to lose your father, keep up with the urging for continued antibioticsi.  Your dad is caught-up in a sweep of health events that plays out the wrong way for the elderly too much of the time.  If you don't get cooperation, I think you know what to do.  You are his advocate.  Stick up for him as you stick up for yourself---nobody else will do it.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Hey KK2 sorry to hear about

Hey KK2

sorry to hear about your Dad, I agree with MacK & Joyce; he deserves to be as well as possible in the circumstance! Why not keep him on the meds for quality of life, as long as it is helping him.  Stopping & starting, as we know, can't be good for the elderly.

Best wishes for his recovery

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Is there any way they would

Is there any way they would consider changing the abxi to ...say Doxyi and Azith? Those drugs are good longterm (even in mainstream medicine - at least Doxy) or maybe Doxy and you could slip in the Azith 3x week.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 49 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

Oh KK, I'm sorry to hear

Oh KK, I'm sorry to hear he's so ill. We have such a good example in Daisy's treatment of her husband's brain disease, and if the antibiotics are helping your father you could even make the argument that they are acting as legitimate immunomodulators (if the infection thing doesn't wow them). Keep stubbornly pointing to the evidence and to the obvious fall back when abxi are withdrawn. Tell them you don't care how the antibiotics are working, only that they are and should not be stopped for a long time, and may never if they maintain him.

CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

KK2, I am glad he has you

KK2, I am glad he has you looking after him and I say keep him on antibioticsi as long as you can! I hope 2008 turns around for you soon as enough is enough - you must be tired. On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

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On Wheldon protocol for MSi since April, 2006.  doxyi 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli Pulses start end Sept., LDNi 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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