Playing Whack-a-Mole With Cpn

If you followed my posts this summer, I told how I was attacked by a virus that invaded my thyroid gland and sent me to hyperland. Not a nice place to be and I thought it would never end. It was sheer hell and now I truly feel for those who have a true hyperthyroid condition.

The thyroid is back to normal but my Free T3 is still low in relation to Reverse T3. TSH is a little low but I hear it takes a while to catch up. I took a little Iodoral  (half a 12.5mg tab) for a few days last week. It was OK.

What happened to Cpni during this episode? Even though I was on 3 antibiotics, I think cryptic Cpn emerged from hiding in my bones (hyperthyriodism accelerates bone remodeling and I know I have had it in my leg bones) The last pulse  of Tindamax I did in October created as strong a reaction as one of my first year pulses, Bone and muscle pain, muscle cramps and fleeting nerve sensations in ankles lower legs and the middle of my spine. I told my doctor about this and he agreed. How can Cpn resist all that juicy energy flowing around because of the hyperthyroid?

Anyway I feel like I am playing Whack-a-Mole with this nasty bug. My last pulse was better but I still have inflammationi in my legs and the nerve sensations from time to time along the middle of my spine. I am taking extra niacinamide and alpha lipoic acid">i and that seems to be helping. I tried moving my pulses closer together like I did before but at this poin, there is too much inflammation. I will have to wait.

I saw the naturopath last week. She gave me some test results for tests:

Food allergies: I have about 15 foods to avoid for now

Stool test: No candida but positive for cryptosporidium and an unknown parasite (gave me an herbal treatment Allacyn for that)

Hormones are too high--she wants to adjust the dosage.

DHEAi is very low: I tried to take 25 mgs for a couple of days but it stimulated my thyroid too much--will have to take a much smaller dose.

Cortisol is low: I'm taking Isocort now 4x a day

Also she gave me some Transfer Factor to boost immunei system and a shake mix called MediClear Plus from Thorne.

We will be testing for Lyme and those co-infectionsi next week. I am impressed by her knowledge.

Just unfortunate that this had to happen. I almost feel like I am back to year one again. The problem is

Cpn is hiding in a place that must be hard for the abxi to penetrate--the bones. Good news is that a lot of fat is gone. Wonder if Cpn hangs out there also. Naw, nice juicy bone marrow sounds like its a lot more attractive than fat for this energy vampire!!

Raven

 

Comments

Kitty is now all better. He

Kitty is now all better. He bounced back from all the vomiting and is happily snarfing down salmon and Newman's organic cat food. Bad news is he brought some fleas home from his visit to the vet. Have to deal with the fleas tomorrow.

Saw the naturopath today and we discussed Lyme tests and tests for the co-infectionsi.

I told her how much energy I got from just one dose of DHEAi. My old hormone doctor gave me 50mg caps of DHEA but it was way too strong and I quit taking it. She gave me a DHEA spray from Metagenics called BioSom--you just spray into the mouth and it is 5mg per spray. This way it is easy to take a little and add some later.

I like her cautious approach. I asked if such a low test level of DHEA could affect my immunei system and she said of course.

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Raven, So glad you are

Raven, So glad you are getting some answers and happy to hear kitty is feeling better too. I can't believe he is 21 - awesome! I hope you don't have bartonella, as that is what they think I have. Yes, its joint pain, hard to diagnose and also in my case weird skin issues - like different skin tones in calves and feet. Its difficult to erradicate but aren't they all! ES - at first I thought Sarah Wheldon changed her name to english sarah, but now we have 2 english Sarah's to keep us on our toes!

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Thanks Mac, you are so

Thanks Mac, you are so sweet! More inflammationi today. I think because I am boosting my immunei system with Transfer Factor and Epicor at the same time. I believe that taking Isocort for adrenal support has been beneficial but that may also be boosting my immune system. I am not fatigued but feeling inflammation in all the sore spots.

Shabbah, I am also anxious to get the tests done for Lyme and co-infectionsi. Will keep you posted.

ES, I am stunned at the link between Cpni and thyroid. I was making a huge amount of Reverse T3 when I first began the CAPi. My doctor thinks that Cpn causes the liver to slow down and convert T4 to reverse T3 as a survival mechanism for the bugs. He calls it "Human Dormancy Syndrome"

I am so glad to hear you are doing better. What a wonder! If it wasn't for the Internet, we would never know about all this. I also found David Wheldoni's site. I emailed him and asked him if he knew anyone who was using Dr. Stratton's protocol for Cpn in the US. He told me about my doctor I see now. 

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Oh, wow, this should be

Oh, wow, this should be interesting. ES, you're going to be confused A LOT with 'Sarah', David Wheldoni's wife. She posts here under 'Sarah'. Be prepared for many misdirected private messages in the future.

That being said, welcome to our little corner of the world. Wink  Sounds like you're another success story.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Raven, I can't wait to hear

Raven, I can't wait to hear about your lyme results, my guess is that your muscle pain etc come from bartonella and neurotoxins, but hey that's only my guess.
Diagnosed with MSi on March 2009, started CAPi on Jan 2010. Doxyi 200mg- Roxyi 300mg- NACi and all major supplementsi.

This thread really intrigues

This thread really intrigues me, because I'm battling Hashimoto's disease (autoimmune thyroiditis) along with some other strange conditions, but it's the thyroid/cpni link that is really weird. I'm on thyroxine for the thyroid, which should give me more energy (it's replacement thyroid hormone) but when first put on the drug it sent me plummeting downwards, energy-wise - ie. it had the exact opposite effect it was supposed to have. Basically, I was in a severe reverse T3 state, so the hormone converted in such a way that it wiped out my energy levels, rather than increasing them.

However - after having surgery to remove part of a chronically infected submandibular gland, a huge lump formed in its place, and I was put on doxycycline. It took 3 months for the lump to subside, during which I came across David Wheldoni's site, and this one. Cut a long story short, I then added the azithromycin and flagyli, and the results were extraordinary. Not least that the thyroxine now works in the right direction (ie gives energy rather than taking it away). Plus old operation sites around my body that had hurt for years magically stopped hurting.

While the infection is really bad, the body seems to turn down the thyroid system by making it run in reverse. This seems wild, but it's definitely what happened to me, and it seems to make sense: if the bacteria are using our own energy to replicate themselves - the only way to slow down the bacteria is to slow down the whole system. Once I'd thrown the whole Wheldon protocol at them, and whacked the bacteria hard, my thyroid system started to function correctly again. And the autoimmune antibodies (symptom of Hashimoto's) lowered dramatically. 

 Sorry for such a long post - but any news on thyroid/cpn connections would be great to hear!

Plus I should say that I honestly feel this site has saved my life.

Hashimoto's disease; Eagle's syndrome; Chronic sub-mandibular infectionsi; 90% improved since starting Wheldon protocol Nov 09; doxyi, azith, NACi + flagyli pulses from 09 to 2012, then made the mistake of thinking I had the allclear. Restarted 3abx protoc

I'd just signed on to post a

I'd just signed on to post a question on how you and kitty are faring today, and here I find my answer already posted! Well, this is good news - on both counts!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Kitty ate a small bowl of

Kitty ate a small bowl of goat yogurt last night and a tiny plate of wild salmon. Another two plates this morning and only threw up a tiny bit today. He just finished cleaning up another small plate of left over salmon. So he is felling better and so am I.

I had to back off a bit on the Isocort--take 2 pills instead of 4 a day. In some people it can make you feel hyper. Taking my temp three times a day to test for Wilsons. My inflammationi is going down. Have been using glutathione cream, curcumin, magnesium chloride  (magnesium oil) and taking 3,000mgs of niacinamide. Nerve pain and sensations are subsiding.

I am optomistic that between my two doctors, we will find all the clues to the puzzle. I already feel we are on the right track.

Give the goat girls a kiss for me, Rica. Their yogurt is indeed delicious and helped settle my poor little kitty's tummy. Did I mention he is 21 years old? Looks great and plays like a kitten. He is so precious!

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

One of the really good

One of the really good things I see in your post (among several) is "sore legs", not legs that don't work, either at all or undependably.  With "sore", At least you can walk - for many of us, a very big thing. 

Most people - 70% - who can't tolerate cow milk have no problem with goat milk.  It is the milk of choice for all orphan mammals.  We regularly save lives that would undoubtedly be lost without its magic.  I hope your sweet cat realizes what a home she has and doesn't eat any of the representatives of the 6,000 species of songbirds who are sliding to extinction.

And may you get your difficulties straightened out.  You are certainly giving it a hard-fought battle.  That seems to be our collective specialty.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Raven, You are a trooper. It

Raven, You are a trooper. It appears you are doing a fine job working through this bump in the road. Your neuropath sounds fantastic, and well educated.  

 Lyme can hide as one of the coinfections with CPNi and it's good to be retested.

 You and kitty, feel better : )

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

Thanks, you two. I had a

Thanks, you two. I had a Lyme test way back before I began on CAPi. It was negative. I am sending for those records to determine what kind of test it was. My naturopath is pretty knowledgeable about Lyme as she just came from a Lyme conference and keeps up with the research. She also focuses on endocrine issues.

My energy took a dive on Sat. when I felt like I was swinging back to hypothyroid. Taking DHEAi gave me enough energy on Sunday to hike the two hills down to the beach and back (about 2 miles). After I came back, I did some Yoga. Didn't feel the least bit tired but Monday and today, my legs were sore--probably because I haven't worked out in a while.

I may move those B12 shots closer together to help my nerves repair. Already taking B12 Extreme from ProHealth.

Haven't had a real great nights sleep the last few nights because our kitty has been sick and throwing up at 3am. He had his teeth cleaned and they put him on Amoxycillan. It wreaks havoc on the stomach. I gave him some plain goat yogurt yesterday and today he ate some salmon I cooked for our dinner. So maybe I will get some sleep tonight. BTW, I can have some goat yogurt even though I am supposed to avoid cow's milk. Lets hear it for the girls, Rica! Yummy stuff.

Raven

Feeling 98% well-going for 100. Very low test for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NACi,BHRT, MethyB12 FIRi Sauna. 1-18-11 begin new treatment plan with naturopath

Fingers crossed for you,

Fingers crossed for you, Raven.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Raven,so sorry you have

Raven,

so sorry you have trouble again. You know that you need an LLMD to do the right testing for lyme?

If not please check lymenet.org. I hate it if you waste time and money for the wrong labs. Also only send the tests in

on Monday or Tuesday overnight so the blood is not sitting in the lab too long.

Kayla