Cpnhelp.org - Chlamydia Pneumoniae Treatment

Oh Wini, you need a hug. Worry and fear are getting to you. Your partner's tests could not be that revealing. People have tested negative and then went on the CAPi and had die off symptoms. Sometimes a positive test will follow as the Cpni infection is exposed to the immunei system. Does he have a reaction to NACi or any of the CAP abxi? Also, the viral diseasesi can cause these symptoms too. Believe me I know. I was whacked by Epstein Barr and it caused all these and more. As for your own reactions, each of us has a unique response depending on where we get hit.I'm so sorry you are having a hard time but it will get better. It is so hard to believe that when you are in the depths of misery. I have to say that I have never had to go for so long a time enduring such extended period of feeling rotten as the time I have spent on the CAP. It has to be a supreme test of patience and perseverance. But dang it all, look at the alternative!!Dying an early miserable death because of this ATP-sucking little bastard of a bacteria. If you think about it, anyone with a sane mind would choose to do battle with the beast, no matter how long and painful the struggle. In the back of my ever-hopeful soul, I envision a day when I will be able to go to a clinic and have any hitchhiking bugs beamed out of my body. Beam them out, Scotty. I want my life back. Hang in there, we are all here for you. And don't beat yourself up about infecting your loved one---you can pick up Cpn anywhere. Raven CAP since 8-05 for Cpn and Mycoplasma P. for MS and/or CFSi

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98% well and going for 100! CAPi since 8-05 for Cpni and Mycoplasma P. for MSi and/or CFSi Also EBVi and HHV6 My grateful thanks to all the CAP docs!!!

Did he get tested for mycoplasma too?

 

Asthmai, chronic sinusitis/rhinitis, chronic tendonitis, hypothyroid. Jan 9, '08 started Azithromycin 1000mg/week.

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GFAi - asthmai, sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli pulse started June 30, '08. Added Doxyi 200mg/day Aug 16.

Thanks Raven (sniff)

My sweetie Rick and I read Star Trek novels at night to cheer us up....  When I do my healing meditations, sometimes Dr McCoy shows up, or Dr Crusher, or even the obnoxious medical EMH from Voyager.....

As far as guilt, yeah I know... It's just that he was so vibrantly, energetically healthy before me --- !!!!  Except for the occasional brief cold, He. Had. Never. Been. Sick.  Now he's grey, and his eyes are full of pain and confusion.  He doesn't understand what's happening;  but I'm afraid he's going to be as sick as I am.  He used to leap out of bed at 6 AM, happy to be alive.  Now everthing hurts, and he doesn't complain, but it's hard for him to move --- he kind of shuffles and winces.  But he trusts me to fix it, and I don't know if I can!  It's breaking my heart!   He's been on doxyi now for 12 weeks, just getting worse.  We're gonna start Azith this week; he didn't react to the NACi that we noticed, but he's gonna start that again too. 

If it's the Lyme, which he tested equivocal for, then this protocol will help, I know.  But if it's all viral, and not bacterial....   Am I just messing him up more?!  Weakening his gut-based immunei system?  Driving some stealth bug into his heart, or worse--?!  I can second guess this forever.  We just did natural stuff and herbs for 7 years, I guess we have to try something else.  I am really scared.

Thanks for the hugs.... I feel them.  I am hangin' in there... sort of.  I feel way emotional since the "heart attack thing"; much weepier than just getting teary over Hallmark commercials.   Not my norm.

I will probably get back on the Abxi when the heart symptoms die down, because I hope to regain some of my life.  But since my porphyriai is genetic, I may just increase my neurological damage.  But you're right --- I choose the risk, every time.

Hugs back,

Wini

 

CFSi/MCS/Fibro; Lyme, babesia; Cpni; prim. & 2ndary porphyria;

NAC 600 mg; samento; charc./clay/Nanochitosan/betaSitosterol

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Wini (USA) CFSi/MCS/Fibro; Lyme, babesia; Cpni; herpes; prim. VP & 2ndary porphyriai; cardiac arrest Jan '08; 

cholestyramine; acyclovir; clonazepam

Sunni ---- no, he didn't.  Good idea.  I think I tested negative for it, whatever that's worth...   What kills mycoplasma, anyway, besides 100 years of Abxi..? 

Thanks,

Wini  

 

CFSi/MCS/Fibro; Lyme, babesia; Cpni; prim. & 2ndary porphyriai;

NACi 600 mg; samento; charc./clay/Nanochitosan/betaSitosterol

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Wini (USA) CFSi/MCS/Fibro; Lyme, babesia; Cpni; herpes; prim. VP & 2ndary porphyriai; cardiac arrest Jan '08; 

cholestyramine; acyclovir; clonazepam

Wini, Just a thought, but if he's been on doxyi and not doing NACi, that could be why he feels trashy. NAC will help protect liver function and might make the difference between flushing the die-off debris and recirculating it through his system. Hopefully, he's doing some of the supplementsi, as well?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mac---

Good reminder to double-check supplement list/specific uses.   He's taking some, but looking at the "remedies" for stuff, I bet he needs B12 and maybe some C flushes and... I'm printing out the chart, and my ND and I can make up a grocery list.  Thank you!

Wini

 

CFSi/MCS/Fibro; Lyme, babesia; Cpni; prim. & 2ndary porphyriai;

NACi 600 mg; samento; charc./clay/Nanochitosan/betaSitosterol

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Wini (USA) CFSi/MCS/Fibro; Lyme, babesia; Cpni; herpes; prim. VP & 2ndary porphyriai; cardiac arrest Jan '08; 

cholestyramine; acyclovir; clonazepam

Wini, sorry to hear you are going through a rough time.   Please don't add guilt to your load.   Cpni can has infected a person for a long time without great effect until there comes a point when all these symptoms appear.   So your Ricky may well have been infected a long time before you met him it just happens to have errupted recently.   #

An example: I believe from my family and medical history to have contracted Cpn in utero or when very small, (I had asthmai, bowel discomfort and operations on my sinuses when I way fourteen etc) but I was enenrgetic, 'healthy', very active and enthusiastic, not often 'ill' until I showed signed of pre-eclampsia and alopeciai in my thirties.   Since then every year seems to have brought more illness and the older I get (now in my 60's) the more symptoms appeared.  

I think it was Russ Farris that said (in his book the Potbelly Syndrome) that Cpn may have been advantageous to us in our short lives when we were cavemen/women because it enabled us to react more quickly to danger, but we no longer live short lives and the longer we live the more Cpn will affect our well being. 

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Wini, I'm sad you're feeling so bad you had to quit your job. I'm sending more hugs. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

hugs Win;

try not to feel guilty.  I may have given it to my husband; he is in complete denial about treatment.  He went on the NACi & reacted but he is of the mind that there is alot of crap on the internet.  He won't read anything I give him from this site!

At this time, he prefers to think of his career over his health & mine; I just want to give him one of those V8 boofs on the forehead (have you seen the commercial).  He pops over the counter cold & flu ALL the time as well as suffering from chronic insomia as I do.

At least your man is going on treatment, that will save his life!  Just go slow & do it carefully.  He is a big boy.  What are his options, he is sick; treat - get better with time, not treat & die from this.

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

Ruthless1, I know how you feel. My husband has high bp, has anxiety attacks, sleep problems, migraines, mysterious aches and pains, but I can't even talk to him about Cpni. He blames his ailments on age and genetics and there's nothing you can do about that, end of discussion. He thinks I'm nuts for taking all the supplementsi I take. Now if I buy a new supplement I feel like I need to sneak it in and hide it in the cupboard real quick before he sees it. I don't even tell him about my going to a doc for abxi treatment for Cpn because he'll just think I've lost my mind. I just tell him I'm getting another round of abxi for another sinus infection and leave it at that. Doesn't it stink that you can't even share your health opinions and experiences with your partner? And it's so heartbreaking to know abx might help him feel better too but he won't even try it so you just watch him suffer with little hope of improvement. I just hope that abx treatment will resolve a lot of my issues and when it does I will have shown him I was not crazy after all and maybe then he'll be convinced it wasn't all nonsense and give it a try. Until then, I walk this road alone .... well, except for the company and advice from all the great people on this website!

Asthmai, chronic sinusitis/rhinitis, chronic tendonitis, hypothyroid. Jan 9, '08 started Azithromycin 1000mg/week.

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GFAi - asthmai, sinusitis/rhinitis, tendonitis, low back pain, hypothyroid. Started azi 1000mg/week Jan 9, '08. Increased azi to 250mg/day, added 20mg Benicar daily Mar 13, '08. First Flagyli pulse started June 30, '08. Added Doxyi 200mg/day Aug 16.

Thanks Ruth.,

 Wow, your guy's health stance sounds .. frustrating.  Have you considered the (totally karmically wrong!!!!!) idea of .... slipping him some Abxi in his.... OTC cough meds?  Just an idea, a fantasy, a vision to while away the sleepless hours of the night, when head-boofing seems more and more .... inevitable.

(Good thing he doesn't read anything on the internet....)

Yeah, my guy's a "big boy", and he is willing to try just about anything now, tho he was more like your fella at first. 

He used to be this loud, vivacious, tall-dark-&-handsome (Apache) long-haired ex-rocker, who danced and sang and belly-laughed through his days.  Didn't  take vitaminsi or even aspirin, just thought they were for wimps.  He would ignore me or scoff at my suggestions of "natural help", like Vit C, when he got his yearly cold or flu ---  he would just go to sleep for a few hours, and wake up perfectly well.

NOW --- he's sort of ...faded.  Tired all the time, and grey in the face.   He's getting too sick to be in denial, so he sadly swallows whatever our ND or I put under his nose.  He doesn't blame, he's not bitter, he takes responsilbility for his life.  But he has no experience with chronic illness, and because I have, he believes that I can help him.  He trusts that I will help him, because I love him.  And he has way too much faith in my poor foggy brain... Today he said, quietly, "please don't let me die".

Well, shit.

I know there are caregivers on this site, and everyone seems very .... brave.  Maybe stoic.  I know we have to be, to function.

But this illness is bloody heartbreaking, ya know?

Win      

 

CFSi/MCS/Fibro; Lyme, babesia; Cpni; prim. & 2ndary porphyriai;

NACi 600 mg; samento; charc./clay/Nanochitosan/betaSitosterol

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Wini (USA) CFSi/MCS/Fibro; Lyme, babesia; Cpni; herpes; prim. VP & 2ndary porphyriai; cardiac arrest Jan '08; 

cholestyramine; acyclovir; clonazepam

I understand your sentiment "this illness is bloody heartbreaking"

I can't imagine the millions of people out there who have no hope.  I am sooo glad that our techy webbies have our site popping up for searches.  The word is geting out, albeit, slowly.

Sometimes it just plain sucks to be pioneering, I suspect this might be the flagyli talking, last day of my weee baby pulses yesterday.  My sinuses & head are bothering me today, tired, folded some laundry, went for a slow walk (building up gradually) & I am bushed!!

It is very hard for your love & men generally to become sick.  They just aren't as prepared as we are having had to deal with the hormones, etc. etc.

My spouse & I have retreated to our respective corners (he went home about 2000 miles away) for the moment, he recently told me I don't have any say so in his health, to which I replied, who does he think is going to take care of him when he REALLY gets sick!  You know, he has problems with word retrieval too & that scares me!  He just doesn't trust me I am thinking.  Anyway, I will try again!

You tell your man, sign him up here; you will not let him die, not without the fight of his life.  The gloves are down on the ice, the dukes are up; it is time for him to kick some serious CPni ash!  Slay the critters!

Look after yourself Win, stay in touch.

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpn, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

As I look at the counter where my supplementsi are lined up, it is quite daunting, from a lay person's point of view.

I ordered some more yesterday & was thinking yikes, when I get home I am going to the natural QXCI lady in my M.D.'s building to have all of these tested for me again. 

My husband actually doesn't think I have made any improvement & he doesn't like the Troll Queen .  I have problems with depression, the die off just exascerbates this further so my ups & downs are a bit more severe than they were.  My pain levels are down & that is substantial progress in my view.

ooops, I just realized we have hijacked this thread.

ok, bye for now!

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocyclopine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 1-3-08 5th pulse 1 X 375 mg 4day

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08

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 Thank you, Sarah! This bug is so ubiquitous, we can pick it up from someone coughing on an elevator! Looking for who passed it to whom is irrelevant, getting it treated isn't. I think the image of the two of you getting each other well, much to the surprise of both of you, is one of the great findings in this whole Cpni thing. It's what got Michele to look at her own GFAi syndrome when her whole focus was on treating Ella's MSi, same for Joyce and others. Take care of your spouse, Wini. If it isn't Cpn, there are other infectious bugs that cause the same inflammatory degeneration. There are ways to help.

CAPi for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 500mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3