OPINIONS PLEASE

Hello everyone,

This is intense and I have questions that someone may be able to answer or advise.

  1. My IJV,s are entrapped by the scalene muscles and sternocleidomastoid muscle. Vein compression by these muscles result in reflux of blood back to my brain. The only time I have had relief from tremors on my right hand, head, and my speech has been when I had venoplasty, and it lasted for 5 days before the symptoms returned. I have never heard of a person who has entrapped IJV’s and doesn’t have MS.  Does anyone think that by getting rid of CPNi the veins get stronger and become able to cope with the pressure and resume normal blood flow?
  2. My voice is very weak now. Has anyone experienced this?
  3. I lost my balance 3 years ago. Has anyone heard of balance returning after being compromised for 3 years?

This is a tough experience. I’m going to get resident care givers. The Cpn is chronic and active. When I was 2 years old, I got pneumonia  and was hospitalized when I was 8 with pneumonia again. I believe that the Cpn didn’t surface with symptoms until I was 20. The first symptom was optic neuritis. I seem to get a new symptom every 7 years. I'm 37 now.

My aunt has MS too, but does it matter?

All the best to everyone on the CAPi.

Comments

Rachel, there will be people

Rachel, there will be people with trapped internal jugulars who don’t have MSi: you just haven’t heard of any because it isn’t a normal test.  I can’t say whether mine were trapped or not, but I did have an enlarged vein on my right forehead which diminished after treatment.  Therefore I think veins must be capable of becoming stronger, resuming normal blood flow.  I think this because my blood has always been thin and free flowing: if I cut myself, I bleed in profusion.

The other questions I don’t know and I guess that nobody can answer for certain but I hope for your sake that your balance does improve…………………….Sarah

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.