Once again...

This time in the middle of the night.  Woke up with chills...lasted about 2 hours...then low grade fever.  Trying get up at 5am, and my legs were completely stiff.  I couldn't bend them at the knees.  I had to call the care attendents to get me out of bed and into my powerchair.  At 7am, I stood up to urinate and everything appeared normal.  We'll see how things are when I try to go to bed tonight.

This all puzzles me.  I'm still taking NACi, doxyi, and rithro daily.  Most days are pretty good.  I'm not walking any better, but its not any worse either.

I don't pulse anymore...last time my PA noticed my heart skipped beats and suggested I stop.  I did, and my last checkup two weeks ago showed no problems.

I wonder if every couple of months, CPNi crawls out of hiding in my cells and knocks me on my butt until the ABxi in my blood zaps it.

Comments

Maybe if you are not pulsing

Maybe if you are not pulsing this is the case: if you are aware of it and aren't getting any worse just keep on!..............Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.