For those who have been reading about my progress, I have a report that will amaze even the cynic in you.
When I awakened yesterday morning I immediately thought, "I could run today." I have never thought that for years and why this day I do not know. I guess I was feeling a surge of strength and energy and made me think of running. I have been having running dreams for the last couple weeks off and on so maybe it was that. Anyways, I shared this feeling with my husband when he called home from his work at lunchtime to check in. When he got home from work, we had dinner and then he said, OK, lets for for a run. I have seen him run as he goes often and I could never imagine that I would ever run again in my whole life, let alone with him. We did some stretching then with his coaching, I started out very cautiously and slowly. I RAN!!! FOR OVER TWO BLOCKS!! Ya, ya, it was a slow jog, but it was a run, with no walking aides and no arm holding. (It was just a couple weeks ago that my husband said that I had to try to walk without holding his arm for at least a half a block.) After the two blocks of jogging, my left foot started to drop a bit and I became very scared that I was going to trip. We slowed to a walk and I was puffing pretty good. We continued our walk for a few more blocks and then I sat on a bench and waited while my husband did his run. We hooked up again on his return and walked the rest of the way home.
This may or not wow you, but to me, I never ever expected to run again. I have not done any kind of jog or run for over four years. Considering that I was SPMSi and unable to walk more than a little around the house, I am stoked!! Now I am waiting for the morning where I waken and think, I could ride a bike today. Something I have not done for years.
I won't overdo it, but I will run again. My husband is a wonderful motivator and my children the cheering squad!
I thank God for giving us the wisdom to find this treatment!!
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Lived with MSi since 1991. Completed 16 months of full CAPii plus supplementsii. Currently in full remission. Not on any antiobiotics anymore but taking all supplementsii incl NACi.
Great news Todybear!!So
Great news Todybear!!
So happy for you!!
Keep on running!!
Best Wishes, Maria
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Cpni since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acidi.All classic cpn,porphyriai and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NACi, high vitamin D3. Also treating with LIFE system and shaktimat
Give a bit more effort,
Give a bit more effort, then I will add your name to my miracle list.
YILMAZ.
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KEREM'S TAKECARER;
Suspıcıon of MSi (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.
Congratulation...run, run!
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On Wheldon protocol since 02/2006, added rifa 10/09 for CFSi and many problems 30 years (cpni and
mycoplasma)Music to my ears! I'm just
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This is such wonderful news
This is such wonderful news Todybear.
It makes another one of my sad weekends open on a bright note.
You are surviving well. On your behalf, my thanks to your supportive husband and kids.
You're doing it!!!! Bravo!!!
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diagnosed MSi Jan.2000 , chronic neurological lyme disease Nov.2002.
doxyi 100 mg. 1BID. roxyi.150 mg.? BIDi,adding rifampin soon, pulsed tinii. every 3 weeks, as of oct.17/08, rifampin,naltrexone (LDNi),NACi, nystatin, major wheldon supplemrnts daily,
Hallelujah! The new addition
Nancy
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - Now (1/10) doing 100 doxyi; 125
What incredibly good news!
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Todybear, I see you are
Todybear, I see you are online so I just want to give you a big kiss!!
Nancy
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - Now (1/10) doing 100 doxyi; 125
Absolutely wonderful news,
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Treatment for Rosaceai
Todybear How very wonderful,
Todybear
How very wonderful, incredible, and on and on and on. My memories of the unmatched thrill are still fresh. I am so, so happy for you!
Rica
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3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amoxicillini 1000, Doxyi 200, MWF Azith 250, flagyli 1000. Caffeine pills with AM abxi Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1
Todybear, that's wonderful,
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Ron
On CAPi for CFSi starting 01/06 (NE Ohio, USA)
Began rifampin trial 1/14/09
Currently: on intermittent
Good for you! I wish I could
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< SPMSi - EDSSi 7 > < NACi 600mg X 2, Doxyi 100 mg X 2, Azith 250 mg MWF, Flagyli pulses, green tea, curcumin, flavonoids + all the supplementsi listed on Wheldon's Protocol (and possibly more) >
How incredibly wonderful,
How incredibly wonderful, Tody, keep it up! I'm afraid I am jealous since as a former cross country runner, I haven't been able to run for about the last ten years................Sarah
An Itinerary in Light and Shadow
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keep us posted on the
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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini
3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU
2-09Intermit-CAPDoxi
RoxiClari,Tinii, 2-09LDN-CFS1-10-IT+Ursodiol300Bid+Lauricidin
Not just a one run
Not just a one run wonder.
Just an update, I went out last evening and did a repeat and a little more. I must emphasize that we are not talking about a full out run. We are speaking of jogging and not even a fast jog. I do have the flattest feet possible so running has never been my thing, but to even get my body to function in a run of any kind is what is blowing my mind. My feet are sore today and even throb a bit, but no foot drop, no body aches and fatigue.
Thanks everyone for your encouragement and words of support. It is indeed a wonderful thing. I truely hope that this is just a foreshadowing of good things to come.
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Lived with MSi since 1991. Completed 16 months of full CAPi plus supplementsi. Currently in full remission. Not on any antiobiotics anymore but taking all supplementsi incl NACi.
Bless your soul dear child!
Bless your soul dear child! Now just spread the wealth to the rest of us. I'm beginning to feel better too.
I just finished a (for once) uneventful pulse. But I'm still sitting indoors with a still healing broken ankle while everyone else glories in the beautiful weather, goes swimming or to 4th of July barbeques or works in the garden or whatever and then goes to fireworks tonight and I just got off Prozac (which gives you osteoporosis) and I AM PISSED! Or at least frustrated. Ah me. I have been a Sagitarrian without the fire for 7 years. The newfound anger will be stimulating. Maybe I'll run it off.
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - Now (1/10) doing 100 doxyi; 125
Arttile, you might want to
Arttile, you might want to wait until your ankle heals before you try running off your anger. Sorry that you have to miss the good stuff this summer. I too am a Sagitarrian and even though I do not subscribe to astrology beliefs, just a reminder, Sagitarrians are truth seekers. I guess sometimes it takes years to find the truth. Maybe now you are heading in the right direction and soon you will be glorying in whatever you choose.
I hope to start intermitant after July and August's pulses if all goes as planned. I still hate pulsing even though they are uneventful. I hate taking pills and the sooner that ends, the better.
Here's hoping that you get your fire back. It takes too much energy to be angry, so don't stay there too long.
Love Todybear.
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Lived with MSi since 1991. Completed 16 months of full CAPi plus supplementsi. Currently in full remission. Not on any antiobiotics anymore but taking all supplementsi incl NACi.
Actually Tody, I LIKE the
Actually Tody, I LIKE the anger. It's been years and it didn't feel like me. A real nice surge of anger gets me going and helps me make art. When I first started the Prozac I noted that i had less energy. I discovered that without nervous energy, there wasn't much else. Anyway, I worked on the art today, went to dinner with friends and saw "Gran Torino". Not too flimsy.
Tomorrow I'll go back to a fuller pt regime (I've been pulsing) and hope to be back on a cane (instead of a walker) in another week.
It turns out that the local fireworks this year were at the college I teach. Oh well.
Love,
Nancy
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - Now (1/10) doing 100 doxyi; 125
Go Nancy! I can relate so
Go Nancy!
I can relate so well to what you say. It is so great to "feel" again!
Rica
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3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amoxicillini 1000, Doxyi 200, MWF Azith 250, flagyli 1000. Caffeine pills with AM abxi Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1
wow. I'm a sagitarian too
wow. I'm a sagitarian too and used to run. I have met two other people online, and both have CFSi/fm and are sagitarians. Gosh, they should add that to our horiscope I guess! How strange.
mark
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CPNi off the charts, EBVi, Chronic fatigue 20+ yrs, , tinittus, Orthostatic intolerance, adrenal fatigue, excitotoxicty, porphyriai, anxiety, depression, doxyi, AMOX, and FLAGYLi since JAN 2009,
Tody and Nancy, I'm a
Tody and Nancy, I'm a non-believing Sagittarian as well. For several years I was a dumb mute thing but now I am awake and I feel anger, just like I used to. I must say it is good for me and like Nancy it is good for my art: so what if I can't run because I can kick and throw at full force without falling over and my aim is excellent.
Tody, if you have flat feet, try Egyptian belly dancing, which is done with flat feet...............Sarah
An Itinerary in Light and Shadow
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Best wishes to all of you.
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Cured of multiple sclerosisi, stopped the Wheldon's protocol in Nov,2008, but still occasionally pulsing. EDSSi 0 for over 6 years.
Tody this is great news.
Tody this is great news. And to be able to do it two days running is a mark of real progress. I'm really happy for you and it gives the rest of us hope that we may one day become whole again.
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.
Hear, hear!!!
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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - Now (1/10) doing 100 doxyi; 125
Glorious news to hear you
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2002:FM/CFSi. 2008-2009:CPNi - CAPi/5 pulses. 2010: BB - Restart CAP: 400Doxy/250Zith-MWF. Plan: 3/29 Tinii pulse. Lauricidin/Yaeyama/all supplementsi recommended/firi sauna/2,000 IU vit D. Stop charcoal.
Pulse time so going to lay
Pulse time so going to lay off the jogging for a few days. I find that pulsing makes me short tempered and emotional as well as needing a lot more rest. I think I will return to my walks for now as my family are the ones that end up suffering my emotional fallout. My husband does not appreciate my outbursts and my shortness of patience.
I think I am on pulse number 13 now. My husband and I find that wherever I really feel the pulse is where I get the greatest improvements in the coming month. My feet still get it during the pulse sometimes but that has two sides. Sure it is crappy to endure but then we know that some kind of improvement is not it's way. After a year of this I have found that trend. Also, after a year I have discovered that one does not need to be a martyr. Just let your family and friends know that you are occupied with the process and they can fend for themselves. They will still love you and they will definately survive. Ya, they will get ticked at you, but they will get over it.
Talk to you soon.
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Lived with MSi since 1991. Completed 16 months of full CAPi plus supplementsi. Currently in full remission. Not on any antiobiotics anymore but taking all supplementsi incl NACi.
The process as you call this
The process as you call this Tody, is perfect. How to get anyone to be on the same wave length as me, seems to the most major hurdle ,I am facing.
Yes, I am talking about my immediate family, none of whom are even at home with me.
That is why this website is so important. The feeling of aloneness is quite unbearable a lot of the time.
Keep on going and thank you Tody.
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diagnosed MSi Jan.2000 , chronic neurological lyme disease Nov.2002.
doxyi 100 mg. 1BID. roxyi.150 mg.? BIDi,adding rifampin soon, pulsed tinii. every 3 weeks, as of oct.17/08, rifampin,naltrexone (LDNi),NACi, nystatin, major wheldon supplemrnts daily,
My dear Loulou, This can
My dear Loulou,
This can be a lonely journey at times and I feel you sadness. You should keep your head held high because you have a fighting spirit that will get you to the mountain top.
I have a dear friend who also has neurologicl lyme disease and has endoured the lonelyness of friends and family not understanding her illness. She is a fighter and my best cheer leader and yet she has her own struggles.
Maybe you could find a lyme group in your area, after all they can understand how you feel and it could bring new friendships into your life.
My friend is envolved in a group and it's been very helpful to her and family.
you do have many here who care and are glad to see your posts.
Bonnie
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started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell. Nitro patch, restore gut, vit.d3, supplementsi, T3, Monolaurin, 1/13/10 biofilm protocol, 1/10 Amoxicillini 500mgs. 1/23 Azith.
Tody, you go girl! Your news
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Feeling 95% well-going for 100. Still testing + for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.for MSi and/or CFSi. Also EBVi and HHV6. Doxyi, Azith, Tinii pulses. NACi, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch, LDNi, FIRsauna, methylation supps
WOW!!! This is soooo
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Mary Ann
SPMSi. Dxi 1991. EDSSi
6.0, 6.5,6.9; Weldon CAPi. started 3/08. All supps, NACi, Doxyi, Azrith, 13 flagy pulses, 5th tini pulse 11/13/09, 19 total pulses, no improvements, worsening condition