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OMG!!!! I DID IT!!!!

Submitted by Kimscupoftea on Sun, 2009-09-13 15:32.
Kim Rides a Bike! It's Been Over Ten Years!

I rode a bike for the first time in 10 years today.  I feel like an eagle in flight!  Ken and I rented a tandem bike and after much testing, rode on our local bike trail.  Ken said I was euphoric!  My feet didn't slide off the pedals which was an issue when I was in physical therapy a year or so before starting abxi.  (my feet had to be strapped to the stationary bike when I did PT back them)

I was very tense and Ken gave me every opportunity to back-out, but I was determined to at least try.  The bike shop was really helpful.  The owner, John, showed us the MSi bracelet he was wearing - his daughter has MS.  John helped us to get acclimated to the bike and had Ken ride it around the parking lot a good bit first.

We rode about 3/4 of a mile before we turned around and went back.  My knees felt clicky but otherwise I know I could have gone further.  After we got back we went to lunch and  I told Ken that I was emotionally spent.  What an amazing day!!!!  Cool Kim   

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RRMSii since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagylii Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

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FAN TAS TIC

Submitted by Michèle on Sun, 2009-09-13 15:58.
FAN TAS TIC

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

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That's terrific! Good for

Submitted by mycoplasma1 on Sun, 2009-09-13 16:03.
That's terrific! Good for you!

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CAPi since 11/06 for Cpni, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infectionsi. Rifampin 600mg daily, Zithromax 500mg daily. NACi 2250mg daily. All other supplementsi. Now Bicillin LA 2.4 mil injection weekly.

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  YOU ARE A CANDİDATE FOR

Submitted by kerem aytan on Sun, 2009-09-13 16:11.

  YOU ARE A CANDİDATE FOR A NEW MİRACLE, CONGRULATİONS.

  YILMAZ.

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KEREM'S TAKECARER;

Suspıcıon of MSi (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.

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Way to go Kim... I finally

Submitted by jeanneroz on Sun, 2009-09-13 16:31.

Way to go Kim... I finally found your U-Tube videos and watched them!  It truly personalizes everything you and Ken post here.

JeanneRoz 

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JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi;250 AzithM/W/F; Tindamax Pulses, B12 shots, Armour Thyroid ERFA Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 units, Suppl<

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Oh, hurray!I am so glad for

Submitted by paron on Sun, 2009-09-13 18:14.

Oh, hurray!

I am so glad for you. Brilliant idea to go tandem, and how fine that the bike shop owner understood what you were trying to do.

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Ron

On CAPi for CFSi starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

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This is THRILLING, Kim! Good

Submitted by Janja on Sun, 2009-09-13 22:47.

This is THRILLING, Kim! Good for you, girl!

It makes me want to get a tandem bike. I didn't think I'd ever ride a bike again... but who knows? ;)

Way to go!

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RRMSi, dx Dec. 1991. Betaseron since 1996. Vanderbilt antibioticsi clinical trial 5/2006: Rifampen twice a day, Azithromycin MWF, Flagyli 1 week out of 4. Discontinued Flagyl 10/2008. Completed Rifampen/Azithromycin May 2009.

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Gosh Kim, you've done it! 

Submitted by Sarah on Mon, 2009-09-14 08:35.

Gosh Kim, you've done it!  Perhaps I should try a tandem with David, but I feel so much that I must be in control.  Were you at the front or the back?

I'm not surprised you were emotionally drained...................Sarah

An Itinerary in Light and Shadow

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still improving and no relapses since starting. EDSSi was 7, but most days I could pass for as good as new.

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Sara, We talked with a

Submitted by Kimscupoftea on Mon, 2009-09-14 09:02.
Sara, We talked with a couple just heading out on the path. they said that riding in the back is for the power and the front navigates and communicates whats happening or coming up ahead. While I don't have alot of power,Ken and I rode at a medium steady pace. sometimes I'd have to adjust as my legs got tired. coast a bit. but oh, what a ride! can't wait to try a little further next time!!!

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RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyli Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

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Janja, before jumping into

Submitted by Kimscupoftea on Mon, 2009-09-14 09:07.
Janja, before jumping into buying a tandem bike be sure you can keep your feet on the peddles. you do get your heart rate pumping so be prepared to warm up a bit. but its great to have a partner helping too! have fun!

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RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyli Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

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Right, so David at the rear

Submitted by Sarah on Mon, 2009-09-14 12:51.

Right, so David at the rear and me out front!  Actually, that is rather funny because my sister and her partner have a tandem and said partner always rides at the front.  Now I know why!!

Actually, I think I would still prefer to get a low rise women's bike and do it myself.  I'm dreadful that way: I don't like to be picked up or carried or anything.

Janja, I used to constantly look down at my feet just before I couldn't even walk, just to make sure they were still on the pedals.  They had a tendency to move to the edge then drop off, but I couldn't feel them....................Sarah

An Itinerary in Light and Shadow

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Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still improving and no relapses since starting. EDSSi was 7, but most days I could pass for as good as new.

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Sarah, I understand the

Submitted by Kimscupoftea on Mon, 2009-09-14 14:01.
Sarah, I understand the control thing but as you know,having MSi gives you NO  control---TAKE CHARGE!  Have fun and feel free----weeeeee Laughing 

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RRMSi since 3/84; SPMS since 2/05. Rifampin, Azithromycin, Tindamax Flagyli Copaxone, Avonex, Novantrone, Provigil, 5gm NACi, 5gm VitC, 5000IU VitD3 & more. EDSS 5.5 to 6.5.  Can't wa

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Kim So happy for you!!!

Submitted by loriyas on Mon, 2009-09-14 14:24.

Kim

So happy for you!!! Congratulations!

Lori

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Started Vanderbilt protocoli 1/9/08  Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day,  b12 injection monthly NACi daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

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Heh heh! Fabulous news

Submitted by agatha on Mon, 2009-09-14 14:33.

Heh heh! Fabulous news Kim. 

Agatha

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RRMsi diagnosed 2008 (symptoms for 20 years). Also sinusitis, recurrent UTIs, IBS  Wheldon protocol began 31/7/09 Doxyi 200mg, Azithro 250 3X week.  Supplementsi B12, D3 Vit C, multivit, Fish oil, probiotics, NACi, vit E, turmeric

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Kim, Ken has a great way of

Submitted by Louise on Mon, 2009-09-14 16:07.
Kim, Ken has a great way of setting up shots so they tell the story.  Twenty months and really turning the corner in treatment.  I am so thrilled for you and Ken.   Louise

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6-07WheldonCAP CPnBb FMSi-CFS20+yr, 11-07Cholestyramine HSPRNx7d-porphyrin+endotoxini

3-08Iodoral, 5-08BHRT, 8-08Same+Bs, 10-08D-10,000IU

2-09Intermit-CAPDoxiRoxiClari,Tinii, 2-09LDN-CFS

1-10-IT+Ursodiol300Bid+Lauricidin

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Excellent news, Kim!   I'm

Submitted by Red on Mon, 2009-09-14 21:58.
Excellent news, Kim!   I'm so happy for you.   Keep these wonderful posts coming!

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Treatment for Rosaceai

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

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Wonderful, wonderful and yet

Submitted by raven on Wed, 2009-09-16 23:35.
Wonderful, wonderful and yet even more wonderful! Such happiness is the supreme reward for all your dedication and hard work.You have such a supportive family. Wishing you many more bike rides in the days ahead. Raven

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Feeling 95% well-going for 100. Still testing + for Cpni. CAPi since 8-05 for Cpn/Mycoplasma P.for MSi and/or CFSi. Also EBVi and HHV6. Doxyi, Azith, Tinii pulses. NACi, Iodoral, T3, BHRT, MethyB12 injections, Nitro patch, LDNi, FIRsauna, methylation supps

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