obesity, diabetes, or heart disease

I was wondering whether anyone, after starting a CAPi, had seen any changes in their: - Weight? - Type 2 diabetes? - Heart problems? Thanks. Russ
Russ, I think you're going to get a lot of interesting 'yes' answers shortly. I thought I'd bump your topic, so people see the question.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Russ, I sent you details of my story in a recent email. In case you didn't get it, here's the link: http://www.cpnhelp.org/?q=node/132< 

I had hypertension">i and cardiac arrythmias. With treatment I became normotensive and lost the arrythmias. I also lost 15 kilograms, and a lot of soft-tissue swelling.

 best wishes,

 David

D W - [Myalgia and hypertension">i (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now. Morning BP typically 110/75]
Hi MacKintosh. I don't know what bumping a topic means. Where wwould I look for answers? Russ
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<
I didn't think I had any of those sorts of problems in the first place, but treatment has shown me that my arteries were actually pretty heavily infected, causing high pulse pressure (not high blood pressure">i) and lowering my stamina.

As for convincing an HMO to treat you, though, how can you expect them to believe in this treatment, when you, who've personally researched it and wrote a book on it, don't believe in it enough to pay for it yourself?

Thanks, David. I have your email. I'm trying to gather enough anecdotal evidence to convince my Kaiser Permanente infectious disease specialist that a CAPi will benefit me and Kaiser Permanente. I will see her again in two weeks. I'd really like to get her to join this group and see what other people have experienced. Russ
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<

Russ, you are wasting time in doing this: just get on with treating yourself.  If you had done this years ago, after writing the book, you would not now be in your current state!.................... Sarah

A  Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Bumping a topic means saying something, anything, to bump it up to the top of the list and getting it seen by others. Usually, we just type in 'bump'.

In the case of new topics here, they go into a separate queue and aren't seen in the general list, until there's a response. That's why I responded. It put you on people's radar, so to speak.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

For what it's worth, my blood pressure has dropped since firstly having CCSVI treatment and now again in early stages of antibiotic treatment. I am now antihypertensive medication free for the fist time in 16 years.

RRMSi diagnosed 1996. Many years of weird symptoms before this. Started CAPi around 6/11? Minoi 200mg daily, Roxyi 300mg daily, Tinii pulses started 11/11 (very tentatively!) Major problems with headaches 01/12, substitued mino with doxyi.&l

Hi Norman. You asked: "how can you expect [Kaiser doctors] to believe in this treatment, when you . . . don't believe in it enough to pay for it yourself?" I've been asked that question several times. I'd like to be well again, but I wrote The Potbelly Syndrome to help other people get well. Kaiser Permanente is the largest health maintenance organization in the U.S. If I can persuade a Kaiser doctor to put me on a CAPi, and I get better, then it is more likely that my kids, grandkids, neices, and nephews will be treated with CAPs when they need them. Russ
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<
Hi Sugarglider. Thanks for the feedback. My bloodpressure dropped 40 points the first time I was treated with clarithromycin. Twelve years later I'm taking six blood pressure medicines. What is "CCSVI?" Russ
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<
Thanks for your concern, Sarah. I think I'm doing the right thing. Time will tell. Russ
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<
Why not ask if anyone on this site has Kaiser Permanente approval now?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I know you'd prefer to be a general in this war, rather than a private; but sometimes officers have to lead from the front. "Follow me" works a lot better than "do as I say, not as I do".

When Barry Marshall experimented on himself, first drinking Helicobacter pylori then curing himself with antibioticsi, it sent a more powerful message than any words he could ever have used.

That is an excellent idea!
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<
I don't think I understand your point. I don't think of myself as a general or a private. I think of myself as a lab rat. :-)
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<
In the analogy I was using, the war is against disease; and anyone who wants to control the overall direction of the war is aspiring to a place in the high command. That applies to your desire to see your children and grandchildren have anti-Cpni antibiotic protocolsi available to them. Lab rats don't get to decide anything about what happens to their children and grandchildren.
Hi Norman. I suppose I wear two hats in this war. To the extent that I want to steer the direction of the war against CPNi, I do it by research and writing. At the same time, wars against disease are won or lost in experiments, not hypotheses. What happens to lab rats makes a difference even if the rats don't have a say in it.
I've been trying to get Kaiser Permanente to put me on a CAPi for my heart and lung problems since 1999. Email: russ@PotbellySyndrome.com< Website: http://www.PotbellySyndrome.com<
There is a stereotype that hardbitten practical people (such as the sorts of people who run HMOs) have of researchers, which is that they are airy-fairy ivory-tower types who couldn't apply their own ideas to save their lives. As long as you seem to fit that stereotype, you'll have them listen politely to your arguments but then do nothing. You'd have to say something involving money or power, to really get their attention. And saying that antibiotic treatment of Cpni will save them money is the opposite of what they want to hear. They have no real interest in reducing the cost of medical care. The more costly it is, the bigger their empire. Oh, maybe they could have a competitive advantage for a year or two, before other insurance companies picked up the treatment too; but that doesn't outweigh the massive downsizing that would last decades after that. The idea of reducing costs is part of their public image, so they'll listen politely; but they'll find one excuse after another to avoid doing anything about it. It's patients who really benefit from this treatment, and who will have to be the pioneers in demanding it.

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