The Numbers Never Lie

Last week I had my check-up and got a wonderful more-than-passing grade.   He began by saying that I (we here) are blazing a trail.  He was, as usual, delighted with my physical well-being, my numbers (more about that later), and the way I looked - well. 

My numbers were all really good, with cholesteroli total 237 - where it has always been - but as usual, my HDL (good) was 97.  He always remarks on my ratio, which is phenomenol.  My thyroid T4 was a tiny bit low: 0.58 -  normal is 0.62 - 1.41.  He thinks this may be from five abxi long-term, and to call him if I am "tired".  Ha!  We know about "real" tired.  I hope never to experience THAT kind of tired again.

The really, really neat thing is that when I told him about this thing beginning with my feet and working its way up over the years to my brain. leading to my "being under water" for a few weeks, and my suggestion that it has no where else to go and my arthritis is gone, he looked back at my sed rate over the years.  It has been in the upper seventies for years, and this time was seven.  He was impressed - and said I was stubborn and his hero, and one of the healthiest people he knows.

Another thing that did not surprise me is that my Vit D level had dropped to the mid-fifties.  I like to keep it in the high eighties, but had been taking only 7000 units for a few months, down from 9000.  Needless to say, I am back up to 9000, where I will stay.

So, guys, keep it up.  Yes, it is hard, but, as I repeat over and over, so worth it. 

Rica

Comments

Sorry to shoot this to the

Sorry to shoot this to the top, but a conversation with a friend made me understand that some of us, like me in the past, don't know the significance of the dramatic lowering of my "sed rate".

Apparently the sed rate measures the level of inflamation of a body.  I had severe arthritis, and my doctor agrees wholeheartedly that if my diagnosis had not been MSi, it would have been RA.  But when I told him very straightforwardly about the trip through my body  -  the "pain-path" -  a switch was thrown and he looked back in my record,  current one first, and realized that my sed rate had dropped from the upper seventies - way above "normal", to seven.  The norm is twenty or below.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica, Thanks for sharing that

Rica, Thanks for sharing that information about your sed rate falling while on CAPi.   Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Awesome Rica - keep the good

Awesome Rica - keep the good news coming!  I thought i replied to this previously....

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Congratulations Rica!For me

Congratulations Rica!

For me as a non-MSi relative newcomer, it is so encouraging to see what can be done with sufficient persistencei and knowledge.

About the healthiest people: seeing how many of people around me that show increasing symptoms (in number and severity) of Cpni infection, I feel even more fortunate to have found this place than from "just" having found a working treatment for my specific problems.

 

Borrelia/Cpni arthritis: joint, skin, eye, CNSi, respiratory, UG involvment; fatigue. Borrelia Elisa&WB IgGi, and CPn IgG and IgA pos, HLA-B27 neg. CAPi 5/9/2010 -> 3/2016 2017: some signs and symptoms returning, Borrelia?

Good for you!   Your HDL is

Good for you!   

Your HDL is quite high!   What do you think has led to that?

Best, Timaca

on valtrex 500 mg tid

http://whispersfromthefather.me/<

 

 

 

My meat protein intake is

My meat protein intake is pretty low, though I eat a bite or two and fish once or so a week.  I eat eggs some and eat lots of cheese, both goat and cow, and drink lots of fresh, raw goat milk.  The butterfat in our herd is 4.5%, and we had a doe whose butterfat was 6.5%.  But ALL my cooking is with olive oil.  An interesting pointt brought up both by my husband and my regular doctor is the fact that I have never had a yeast problem while on this intensive protocol.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

congrats

Rica,

  Your "numbers" bring realistic hope to the rest of us. I love how you share your healthier self so generously. Congrats to your other half also.

Betsy

My friend, you bring me to

My friend, you bring me to tears!  SUCH good news! 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Excellent news, Rica!  Keep

Excellent news, Rica!  Keep it coming!

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Wonderful news Rica!

Wonderful news Rica! Congratulations!
 
Started Vanderbilt protocol 1/9/08  Rifampin once a day, b12 injection monthly , vitamin Di 50,000 IU weekly

Excellent, Rica!  I think

Excellent, Rica!  I think that our little witches coven as someone used to call us will end up being the healthiest people on the web.........................Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Now, who would call us such a

Now, who would call us such a thing, Sarah?   It couldn't be specialist doctors who say "Don't look on the web - you just get too much knowledge - don't spoil the picture".

Thanks

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Ah, yes, the eyes rolled

Ah, yes, the eyes rolled upward and the comment, "Stay off the internet".  I remember it well.  One neuroi and one infectious disease specialist delivered both to me. 

The infectious disease doctor said, "Oh, I'm sure, in ten years, we'll ALL be treating MSi with antibioticsi.  Yeah.  Right." 

She then dismissed me from her office.

Here we are, six years later and minoi has become fairly accepted in the MS realm.  And more and more of us are proving to our doctors that the stuff that "can't happen" is happening for us.  Progressive MS is being reversed.  Can't happen.  Numb skin patches regain feeling.  Nope; can't happen.  Arthritis disappears.  Not possible - can't happen.  

It's a good thing the 'coven' was educated AND stubborn.  Cool

 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Well, Rica, it actually

Well, Rica, it actually wasn’t my neuroi: I actually did one thing he said which was too find out as much as I could about MSi.  David found out even more and shared the information with said neuro.  However, rather than riding in glory back to Cambridge, he is still Stellenbosched out in the sticks.

Rather nice sticks at this time of year, though: it’s snowing plum blossom and the bats came out of hibernation last night.......................Sarah

A Journey through Light and Shadow

 

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Maybe they will take him for

Maybe they will take him for a visit to Bat City - where we have been.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Why Rica, you didn't even

Why Rica, you didn't even tell me! That's marvellous!

I have been told that when the good cholesteroli is very high it is because of physical exercise. And you sure get plenty of that!

Congratualations! May we all follow in your footsteps.

 Nancy

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13