___________________________________________________________
Ulcerative colitis diagnosed 11/05, arthritis, rosaceaii; CAPii starting 02/07: minocyline 200mg x 2, azithromycin 250 mg MWF, NACi 1200 mg x 2, pulses of metronidazolei 500 mg x 2 five days starting 04/07. Cured of colitis 11/07.
Now cured of inflammatory bowel disease
Submitted by van buren on Tue, 2008-04-08 15:03. On the occasion of my son Norman's birthday today, I'd like to announce to you that it is not only Norman who is doing well in our family. It seems clear that I've been cured of inflammatory bowel diseasei once and for all.
Since late November, I've had no trace of the bowel disturbances that had persisted in me for at least ten years. With Norman's help and the right doctor, I started on the protocol(slowly at first)in February of 2007, after a year and a half of visits to a gastroenterologist who had diagnosed my rectal bleeding as Crohn's disease (later diagnosed as ulcerative colitis by another gastroenterologist). The gastroenterologists had upped my dosage of Asacol to 8 400 mg pills a day, warning that cutting back on this medication would cause a relapse. The severity of my symptoms seemed to track the timing of my metronidazolei pulses through to November, while also responding to the Asacol. Over the past two months, I've been free of Asacol, having slowly decreased the dosage over the late winter months. The change has been so remarkable, especially given the lack of Asacol, that I'm now confident that there is in fact a real cure.
I wish to thank not only Norman, but also all of you at cpnhelp for your warm support and good information.
Best,
Sue Yarvin
diagnosed with ulcerative colitis 11/05, taking minocycline 100 mg twice a day, azithromycin 250 mg MWF, NAC 2400 mg a day, pulses of metronidazole 500 mg usually a month or so apart.
»
- Login or register to post comments
- Email this page
- Printer-friendly version
Ven Buren - Sue, This is a
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 50 pulses NC USA
___________________________________________________________
Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 52 pulses LDNi Rifampin 8/08 again NC USA
I remember when you first
I remember when you first joined Sue... and there you are cured. I'm not cured of my IBSi yet but I'm getting there....
Congratulations and well done both of you.
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
___________________________________________________________
Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Good job Sue! How does
Good job Sue! How does normal living feel?
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
___________________________________________________________
Joyce~caregiver-advocate in Dallas for Steve J (SPMSi). CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity.
I'm so glad to hear this.
I'm so glad to hear this. I will include my testimonial of high blood pressurei being cured leaving my cardiologist although great, somewhat stumped.
take care
Brian
Sue- that's a wonderful
Sue- that's a wonderful thing to hear! And a big thing to be able to come off of the Asacol, which I'm sure was expected to be a lifetime medication.
Perhaps you might put it together into a "patient story" for us? I'd be glad to post it. We can't know what percentage of IBSi the CAPi will help, but if your story gives someone an avenue to try before they end up with a colostomy you'll have helped a bunch of folks.
CAP for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3
___________________________________________________________
CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3
Cured ! That word has a
Cured ! That word has a lovely ring to it !
Congratulations on your improved health !
Daisy - Husband on CAPi 5/07. Roxyi, Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone,
Novantrone, Doxyi, Azithromycin, Flagyli, Minoi___________________________________________________________
Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Yeah Sue & Norm! I am very
Yeah Sue & Norm!
I am very happy for you. My IBSi since starting treatment has been better. It was one of those niggly symptoms under the umbrellla of ME/CFSi
CFIDSi/ME 25yrs, FMSi, IBS, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
___________________________________________________________
CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Hi, just wanted to say
Hi, just wanted to say congratulations. For me its only been 3 weeks and Im already off my IBSi meds and having very minimal pain. ( as compared to pain that left me doubled over and crying. Still a long way from cured but your story further confirms to me that bowel problems are such a huge part of cpni. Thanks for the update and again congratulations.
___________________________________________________________
CPNi pcri and antibody positive , treating MSi,
CFSi, TMJ, trigeminal neuralgia,IBSineutropenia, pus found in facial bone,Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.