Now cured of inflammatory bowel disease

On the occasion of my son Norman's birthday today, I'd like to announce to you that it is not only Norman who is doing well in our family. It seems clear that I've been cured of inflammatory bowel diseasei once and for all. Since late November, I've had no trace of the bowel disturbances that had persisted in me for at least ten years. With Norman's help and the right doctor, I started on the protocol(slowly at first)in February of 2007, after a year and a half of visits to a gastroenterologist who had diagnosed my rectal bleeding as Crohn's disease (later diagnosed as ulcerative colitis by another gastroenterologist). The gastroenterologists had upped my dosage of Asacol to 8 400 mg pills a day, warning that cutting back on this medication would cause a relapse. The severity of my symptoms seemed to track the timing of my metronidazolei pulses through to November, while also responding to the Asacol. Over the past two months, I've been free of Asacol, having slowly decreased the dosage over the late winter months. The change has been so remarkable, especially given the lack of Asacol, that I'm now confident that there is in fact a real cure. I wish to thank not only Norman, but also all of you at cpnhelp for your warm support and good information. Best, Sue Yarvin diagnosed with ulcerative colitis 11/05, taking minocycline 100 mg twice a day, azithromycin 250 mg MWF, NACi 2400 mg a day, pulses of metronidazole 500 mg usually a month or so apart.
Ven Buren - Sue, This is a marker - again! You are one of the few cherished souls here who can put in your signature - Used to have_____. Congratulations. May the list continue to grow. What a birthday present, Norman! (Richard's was yesterday)

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 50 pulses NC USA

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

I remember when you first joined Sue... and there you are cured.   I'm not cured of my IBSi yet but I'm getting there....

Congratulations and well done both of you.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Good job Sue!  How does normal living feel?

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

I'm so glad to hear this.  I will include my testimonial of high blood pressure">i being cured leaving my cardiologist although great, somewhat stumped.

take care

Brian

 Sue- that's a wonderful thing to hear! And a big thing to be able to come off of the Asacol, which I'm sure was expected to be a lifetime medication.

Perhaps you might put it together into a "patient story" for us? I'd be glad to post it. We can't know what percentage of IBSi the CAPi will help, but if your story gives someone an avenue to try before they end up with a colostomy you'll have helped a bunch of folks. 

CAP for Cpni 11/04. Dxi: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 250mg MWF Azith, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Cured !  That word has a lovely ring to it ! 

Congratulations on your improved health !

Daisy - Husband on CAPi 5/07.   Roxyi, Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi<

Daisy - Husband on CAPi 5/07.  Husband died from Acute Myelogenous Leukemia Secondary to the Infusion of Novantrone.  Ie - the treatment with the conventional MSi drugs killed him.

Daisy on her own CAP 11/2012. 

Yeah Sue & Norm!

I am very happy for you.  My IBSi since starting treatment has been better.  It was one of those niggly symptoms under the umbrellla of ME/CFSi<

CFIDSi/ME 25yrs, FMSi, IBS, EBVi, Cpni, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Hi, just wanted to say congratulations. For me its only been 3 weeks and Im already off my IBSi meds and having very minimal pain. ( as compared to pain that left me doubled over and crying. Still a long way from cured but your story further confirms to me that bowel problems are such a huge part of cpni. Thanks for the update and again congratulations.

 

 

 

 

 

&nbs

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