Cpnhelp.org

 Here is a FSE T2 view from Sept 2007 MRI

 ^{FSE T2 View 26 Sept 2007}

 

 

 

 

 

 

 

 

^{Daisy - Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

^{FSE T2 View March 2008} 

^{Daisy - Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

^{Flair Sag View 19 Sept 2007} 

 

 

 

 

 

 

 

 

^{Daisy - Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

 

 ^{Flair Sag View 19 March 2008}

 

 

 

^{Daisy -}

 

 

 

^{Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

^{Axial T1 View 26 Sept 2007}

 

 

 

 

 

 

 

 

^Daisy

^{- Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

This one speaks to me.  The swelling goes down from 2007 to 2008 and it looks like a fertile field for new growth.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSⁱ).  CAPⁱ since August 06, Cpnⁱ, Mpn, B. burgdorferi, systemic candidiasis, EBVⁱ, CMV & other herpes family viral infectionsⁱ, elevated heavy metals, gluten+casein sensitivity. 

___________________________________________________________

Joyce~caregiver-advocate in Dallas for Steve J (SPMSⁱ).  CAPⁱ since August 06, Cpnⁱ, Mpn, B. burgdorferi, systemic candidiasis, EBVⁱ, CMV & other herpes family viral infectionsⁱ, elevated heavy metals, gluten+casein sensitivity. 

 ^{Axial T1 View 26 March 2008In Axial T1 View 26 Above - Note 4 areas of hyperintensities - Gone from this view 6 months later.}

 

 

 

 

 

 

^{Daisy - Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

^{Note size of front lobe lesion and areas of hyperintensities in Sept 2007 MRI view} 

 ^{Axial T1 View 29 Sept 2007}

 

 

 

 

 

 

 

^{Daisy - Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

 ^{Axial T1 View 25 from March 2008 MRI - Note Size of front cortex lesion after six months as well as disappearance of Axial T1 View 29 March 2008areas of hyperintensities}

 

 

 

 

 

 

 

 

 

^{Daisy - Husband on CAP 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

These images are remarkable, especially the last two, how can anyone pretend these differences can be put down to artefacts or incompetence.   There are so many pictures and all of them show improvement.

Very encouraging.  By the way I've ordered the Brain that changes itself.   There might be a few revelations about improving balance and fatigue in it.

Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse. Zoo keeper for Ella, RRMSⁱ, At worse EDSSⁱ 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

___________________________________________________________

Michèle (UK) GFAⁱ: Wheldon CAPⁱ 1st May 2006. Daily Doxyⁱ, Azi MWF, metroⁱ pulse.

Michele - Glad you ordered the book - I think you will enjoy it and find many useful ideas.  It's also definitely a book of hope.  A whole new world has been opened for me. 

Re the balance - look for the stuff on barefeet as well as the cross crawl.  We started with them today.

^{Daisy - Husband on CAPi 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Incredible. Thank you for sharing, Daisy.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

___________________________________________________________

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Wow, wow, wow, wow wow!!! Am seeing, but can hardly believe it. Where-oh-where did the Balo's go???!!!

 

--Minai

 

 

RRMSⁱ, diagnosed 2/04. NACⁱ 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY Restarted CAPⁱ with NAC and Doxy 2/07. LDNⁱ 4/07. Stopped NAC, started Roxi, again 5/07. Now on full doses of Doxy and Roxi. NAC, again, 7/07. 1st Tinidazole Pulse, 8/11/07. USA

Daisy, Thanks for sharing these films. What a huge improvement- the mri does not lie. Wow! I feel so much hope! -kk2 :)

 

On Wheldon regime [Doxyⁱ, Azith, and Flagylⁱ]  for rrmsⁱ since October '05.  Added Amoxicillinⁱ 1gm twice daily and LDNⁱ 4.5mg qhs October '07; EDSSⁱ was 6.5, now 5.5.  United States.

___________________________________________________________

Wheldon Protocol for rrmsⁱ since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGⁱ's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdⁱ for Babesia.

Daisy, These are so encouraging - what a huge difference - thanks for posting. I have a question on the Brain book - does it tell you what to do as you said you were working on the crawl for balance - if so, I need this book :) On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylⁱ Pulses start end Sept., LDNⁱ 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

___________________________________________________________
On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylⁱ Pulses start end Sept., LDNⁱ 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

 Wiggy -

The book unfortunately doesn't tell you what to do.  It's really an overview of what is now known on a scientific level about the brains ability to reoganize around areas of defect or around entirely missing areas.  The field of science is called neuralplasticity.

I got a considerable eye opening from the book on what is possible as well as a ton of ideas from it on where to go with my husband to attempt increases in function and rehab. 

The cross crawl is an exercise I have known about forever (wuwu medicine) that legitimate researchers have discovered improves balance by better synching the right and left hemisphers of the brain through strengthening those neuronal networks.

It's simple - here's how from a website instruction on the exercise. 

HOW TO CROSS CRAWL

- if you can stand safely then just touch your right elbow to your left knee and then your left elbow to you right knee.

- do this exercise slowly and take your time.

- it gets easier as you do it and you will notice positive changes as you do this exercise.

- do it for 5 minutes a day everyday until you feel like you can do more reps.

- this is rehab therapy not the gym so do not try to be a super star athlete.

- your doctor should have no issue with you doing this exercise but ofcourse if you feel the need to double check than please do so.

 

FOR A DISABLED PERSON OR CHILD

- have a person more the disabled person knee slowly to the elbow and repeat on the other side

- go slow and only do a few each day. it is working

- let their doc know that you want to do this exercise on them. it is harmless to do but always keep track of rehab therapy with your doc.

 

ALSO YOU CAN DO THIS ON THE FLOOR EVEN IF YOU ARE ABLE BODIED

- just lie flat on your back and touch your right elbow to your left  knee and then your left elbow to right knee.

- basically it is opposite knee to opposite elbow.

^{Daisy - Husband on CAPi 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Thank-you Daisy, I will add this into my routine - I appreciate it - I think I will also get that book as I need a good read - it sounds uplifting! On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylⁱ Pulses start end Sept., LDNⁱ 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

___________________________________________________________
On Wheldon protocol for MSⁱ since April, 2006.  doxyⁱ 200 mgs daily, zithromax 250 mgs 3x/ week , Flagylⁱ Pulses start end Sept., LDNⁱ 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Now THIS is the Daisy we wanted back. I am so happy for you that you've found some even footing (no pun intended, but I left it there once I saw the irony) for yourself, as well as your husband. We've all learned we're loads stronger than we ever would have guessed a few years back, hmmm?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

___________________________________________________________

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mac - That and the happy vitaminsⁱ have kicked in.  Meet my friends SamE, Positive Thoughts - what a nice mix, 5HTP, Gaba sublingual and DLPA !

^{Daisy - Husband on CAPi 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Hah! And here I thought 'vindication' was the drug of choice!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

___________________________________________________________

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Wow, what an amazing improvement! I can't wait to see what the scans will look like in another 6 months. Where's the fast-forward button?!

On Combined Antibiotic Protocol for Cpnⁱ in Rosaceaⁱ 01/06 - 07/07, On Vit D3 + NACⁱ since 07/07 and daily FIRⁱ Sauna since 08/07

___________________________________________________________

Treatment for Rosaceaⁱ

• CAPⁱ:  01/06-07/07
• High-Dose Vit D3, NACⁱ:  07/07-11/08
• Intermtnt CAP, HDose Vit D3:  11/08-01/09
• HDose Vit D3 Only: 01/09-

Mac -

Vindication? 

For me, that only comes in 12 month increments and in reality needs to hold for a minimum of 36 months.  Seriously - I am giddy with the improvement but this is still experimental.  It needs to hold over time.  Wonderously it will ! 

Also - my husband and I badly need some semblence of a livable life.

Yes - I am an optomist - just a very battle fatigued one.

Thanks for the encouragement!

^{Daisy - Husband on CAPi 5/07.  Minoi, Roxyi, Diflucan round two 1-31, Rifampin, Bactrim DS, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Daisy, Amazing and your documention will stand you well when Hubby is well enough for your to write that book! 

About Books there is a concept called Brain Gym that has activities I think like the cross crawl etc.  Cannot provide more info except that I had a client once that has a certificate to teach it.  Let us know if you find what I am talking about.

Louise

CFSⁱ/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxyⁱ, Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

___________________________________________________________

CFSⁱ/FMSⁱ 20+yrs/ CPn pos Bb pos/CAPstart 6-21-07/Doxi,Clarithro,Tiniⁱ/11-22-07 Cholestyramine HS PRNx7days for porphyrin reduction/ 5-08 BHRT/ Progressed to HD D3-10,000IU /Iodoral 25mg/ 2-4-09 Intermittent CAP At20MonthsWheldonCAP/2-17-09 LDN4.5mgForCFS

___________________________________________________________

These are truly amazing images. Worthy of inclusion at a scientific talk or two, I would think. Wow, I was away for a while doing this old house of ours and look what I return to. Fantastic Daisy! Lexy --------------- "Chance favors the prepared mind." --Louis Pasteur Husband treating MSⁱ with CAPⁱ

___________________________________________________________
--------------- "Chance favors the prepared mind." --Louis Pasteur Husband treating MSⁱ with CAPⁱ

Minai - I know where I would like for the Balo's to go but I am going to be polite.

^{Daisy - Husband on CAPi 5/07.   Roxyi, Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Oh Sarah - Right you are of course.

I forgot when I was diagnosed with RA that they told me there was no cure.  Of course I have been in "remission" for over 10 years.  Hmmm...

Best I suppose to just to accept your fate, give up and to go home and make preparations.

"Cowards die many times before their deaths.  The valiant never taste of death but once"  Julius Caesar by Shakespeare

"I have noticed that doctors who fail in the practice of medicine have a tendency to seek one another's company and aid in consultation.  A doctor who cannot take out your appendix properly will recommend you to a doctor who will be unable to remove your tonsils with success."  Farewell to Arms, Ernest Hemingway

 

 

 

^{Daisy - Husband on CAPi 5/07.   Roxyi, Diflucan round three 4-3, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi, Azithromycin, Flagyli, Minoi}

___________________________________________________________

Daisy - Husband on CAPⁱ 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Daisy,

I have to tell you, the visual really hits it home!  Tiger Woods style, Masters is coming!!!  When I saw the progress he has made, I thought, ooohhh, no wonder he had the porphyric reactions.

This, our friend, is a miracle. These images are the proof.  

Here's to doctor #36 & voo dooo yeee haw, I love that doc!

You were right, 35 were wrong.  This should be going into some huge Journal of Medicine!

CFIDSⁱ/ME 25yrs, FMSⁱ, IBSⁱ, EBVⁱ, Cpnⁱ, (insomnia - melatoninⁱ, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACⁱ 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

___________________________________________________________

CFIDSⁱ/ME 32 yrs, FMSⁱ, IBSⁱ, EBVⁱ, CMV, Cpnⁱ, H1, chronic insomnia, Lyme, HME, Babesia, Natural HRT peri-M, NAC 3 gm,Full CAP 6-2-07, all supplementsⁱ+Sea Kelp, Inositol, Chitosan, L lysine Pulse#18 3-29-09 1gm Flagylⁱ/day-4 days.