Getting near 8 month mark of CAPi. I am doing this blog mid-pulse for a change, perhaps for some balance. I usually only blog when I feel awful.
So, where was I? Not feeling so bad is about what I can come up with. Sleep (generally) well now at night, not needing naps during day since my last-but-one flagyli pulse. Still need my sleep desperately - often manage 9 hours straight through. Occasionally nap in day but usually short, sometimes only 20 mins. Though I still often wake in a slightly paralysed state, which feels weird.
I look kinda well ATM, I get very depressed when I look sick.
Legs still strangely weak and tired. I can still get painful legs after not too much exertion e.g. catching the bus there and back to the pet shop to get my son a goldfish (didn't happen as its all so complicated now, a bowl is no good, you need a bit more decent equipment). Don't like painful legs for no reason, no. perhaps there is still a 'killing field' going on behind the scenes represented by this. Though earlier last week I spent a whole day shopping, and another half day cleaning with not too much ill-effects.
Anyway, now I face Pulse 7 which will be quite a big one (started today) i.e. the first full 4-day pulse!!!! I watch with interest as to how this affects me, as i seem more in control of my faculties to observe. partly also from taking a decent break from the last pulse.
I will report on Pulse 7 in 3 - 4 weeks, and we shall see ....... it might be Black Knight Returns! haha!
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M.E./CFSii 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsii Sept 2007. Doxyii and Roxy full dose by Dec '07. First Flagyli pulse January 2008.

Sounds positive on the
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006