Hello everyone. hope everyones making progress on there treatment. Its been a long journey for me and It seems to be getting better since I started the Wheldon protocol. I have to say It is very tiring and exuasting. Its seems like all I do is take supplementsi and antibioticsi all the time in between trying to live a normal life. I miss my old self that woke up every morning without worrying about how im going to feel that day thats for sure. Im sure after I am through with the protocol I can start to live a pretty good healthy life. Sometimes I cant believe this happened to me. Sometimes it feels as though im living a dream and its not real but I am very thankful to God that I found you guys. Everyone here has been my backbone of support. Im sure everyone here thinks how could this happened to them. One minute your as healthy as a ox and the next your sick as a dog all the time. But I just keep praying everyday and hope we all get better. Its wierd how this bacteria can wreck so much havoc on our body and or families becuase I never heard of such illnesses until 8 months after my sickness while doing research and found this website (a blessing in disguise). The medical world has a lot of keching up to do. Today wasnt so bad. a little nasues, fatigue and depressed along with the usual arthritis and urithritis. I dont know what Id do without God. Dr Wheldon is near 60 years old and he seems to have put away most of the sickness and is handling the remnants of it quite well. I have read a lot of post of people suffering for a long time and a lot worst then me but please have hope becuase there is light at the end of the tunnel. Just take it one day at a time and God will carry you. The protocol works just keep on it. Remember its just a body the illness cant touch our spirit. If anyone wants to talk just email me. Im here for you the whole way. Well got to go but God bless also Im going to post my little research I did on herbs that seem to help.
Olive leaf extract, bearberry, Pycnogenols, licorice (for depression and alot of other things). You can google these herbs if you want. Also does anyone know how many herbs are safe to take. I take abut 4 herbs right now.
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Fibro, CFSii, Myco, CPNii, Wheldon protocol, Zithro 250mg M/W/F/S, Doxyii 100mg 2x day, NACi 1200mg 2x day, Flagylii pulses 400 mg 3x day

leemcghee,I
leemcghee,
I appreciate these encouraging words--all true for me as well. I feel raised up and hopeful even in these rough days of treatment! I am finding this to be true more and more--that we are helping each other through.
Thanks for lighting another candle in this dark tunnel!
:)
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Began Wheldon Protocol for rrmsi October '05. Currently OFF all abxi since June 26, '08 due to severe porphyriai. Added LDN 4.5mg qhs October '07. All supplementsi.
Lee, I've been ill for 18
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FMSi/CFS since 1995. tinnitusi, ibsi, chronic sinusitis, EBVi, HHV-6
NAC 600mg 2 x day
Lee, I don't know how many
Lee,
I don't know how many herbs are safe to take but you do need to pulse them. For example, you can take them for a few weeks and then stop for a few weeks. It gives your body a chance to clear them.
BTW, I'm with all of you on this... if it wasn't for this illness and the support groups I've encountered because of medical research, I wouldn't have met the wonderful friends I've made along the road to wellness. My faith in God is the only thing that keeps me bouyant at times too.
Happy 4th of July all and yes, I do believe I have much to celebrate!!!
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NACi 2400 mg, Zithi 250mg/MWF, minoi 100mg/BID, Tinii 500mg/BID pulses, Iodoral 37.5mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons
Don't believe everything you think!It's interesting how many
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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
Tody - Also find it
Tody - Also find it curious how many here are artists as well. Perhaps having a creative, imaginative, innovative and open mind is another common denominator of many Cappers.
People may perhaps need to be able to visualize something beyond the depressing status quo that so many doctors offer...
Lee - Press on - you are clearly making head way!
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Daisy - Husband on CAPi 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Lee,I am very glad you are
Lee,
I am very glad you are keeping on!!. Onward & Upward.
I am here by the grace of God our father in answer to my prayers. It is in brokenness that we are able to develop a lasting intimate relationship with him and that is all he wants from us. The reward is an eternal life after this one that words will not describe; God doesn't think like we do. Maybe we will be able to think more like him then.
I was very stubborn in recognizing when to stop hurting myself by flogging this poor body from 60 hr works weeks to 12 & even that was pushing it. All of this is for a greater purpose. God makes use of all the things we do, even if he would have advised us against it.
God is not done with me yet, nor is Satan the fallen one. He loves to attack believers in his cause to take us away from God. I am very pleased that many of us keep turning back to God, in good times with praise & in bad times with praise, as he is the light and the strength. It is a wonderful day when I hear him; his voice is the kind one. The negative thoughts are the dark ones, they love nothing more than make us all miserable to the max.
God is GREAT, ALLL the time!
You are all in my prayers.
r
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#13 1240 mg X 3 days 8-7-08Daisy, so interesting to
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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
Lee, you will get there.
Lee, you will get there. You obviously are "one of us" and have the fortitude. Stay with us!
Tody, with that attitude, it will come. Remember all this when you are, as Daisy said, hibernating during your next pulse. Maybe with a pile of good books, or a bird book. What kind of subjects do you like to paint?
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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 52 pulses LDNi Rifampin 8/08 again NC USA
katman, I like to paint
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SPMSi< Supplementsi & NACi, Doxyi 200 mg, Azith 250 mg 3X/wk, starting flagyli slowly
Hi Lee, At the 6 month
Hi Lee, At the 6 month point in my Wheldon CAPi, I began to see the glimmer of my "old self" beginning to resurface. It is now a year and the comparison to my situation one year ago is quite a contrast. Physically, mentally and emotionally I am stronger and more able. I am beginning to take care of business, projects and responsibilities that I was unable to attend to after my steady decline of years duration. So I encourage you to keep on keeping on the Wheldon CAP. For me it did get so much better. I 'm in for the 3 to 5 year plan, life on the long term plan is a life that has become increasingly satisfying for me and that is such a sharp contrast that it is worth the attention to the schedules and supplement sorting and and adjusting, keep my stock up and available and the expense of it all. At times it does seem heavy yet when contrasted to the alternative for me this is the way for me to continue.
Louise
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Louise-CFSi, CPN+/Bb+ Wheldon CAPi 6/07, Cholestyramine1-2pksHSforPorphoria& Endotoxinsi, Doxy100daily,Roxi300BID,Tini500mgBIDpulses,VitD3-4000IU,MagnascentIodine,{S.O.D.3TID[KAL Brand],+Pyruvate3.75G+SAM-eForEnergy}