CAP cure for inflammatory bowel disease

Here's an update and a full account of my experience with CAPi, which appears to have utterly cured my inflammatory bowel diseasei. My bowel symptoms completely disappeared as of November 2007. I'm continuing with CAP to ensure that all traces of Cpni have left me.

I first consulted a gastroenterologist in August 2005 when I developed rectal bleeding. I had had occasional indigestion and bowel symptoms for several years prior to that time, but never before had had rectal bleeding. A colonoscopy revealed "active chronic colitis", which my doctor interpreted as Crohn's disease. He prescribed a moderate dose of Asacol (600 mg), twice a day, warning me that I would have to continue to take it for the rest of my life. For a few weeks, my symptoms abated.

As bleeding recurred, my doctor first increased the dose of Asacol to 3000 mg twice a day, and finally by late 2006 added twice daily cortisol enemas (Rowasa). The high doses of Asacol gave me an almost constant mild headache. When these drugs were not completely successful, my doctor placed me on a 40 mg a day dose of prednisone in January 2007. The prednisone immediately relieved not only my bowel symptoms, but also my arthritis. For the first time in years, I felt in excellent health. As with all such prednisone treatments, however, doses must be gradually reduced and then eliminated entirely to avoid side effects. From February to mid-March, I ramped down and then stopped the prednisone.

In the meantime, my son Norman had been telling me about his experiences with CAP. Learning that Dr. Stratton had cured several cases of Crohn's disease, Norman's neurologist offered to prescribe CAP for me. I started in February 2007. I began with twice daily doses of 100 mg minocycline, along with most of the Wheldon supplementsi. While at first I couldn't tolerate azithromycin, I began to take it three days a week starting in early March. In April, I added 1200 mg of NAC twice a day.

As I decreased the prednisone, my arthritis gradually reappeared. By mid February, I was experiencing flu-like symptoms with a loss of energy and nasal congestion. My sleep, which for years had been often interrupted by restless leg symptoms, improved as the prednisone was decreased. On April 11, I started with just one 500 mg metronidazolei pill. By the 13th, I had a strange rash on my lower right leg consisting of a dozen red itchy spots, and my arthritis was worse. This rash reappeared as I started a full pulse of metronidazole on the 18th. My energy level decreased, and I was irritable and not sleeping well. I experienced irregular heartbeats, and had a foul taste in my mouth most of the time.

It took a couple of weeks for the rash to disappear, and it recurred with the second full pulse I started on May 9th. Again, it took well over a week for the rash to go away.

Looking over the various ways that cpn can infect the body, I remembered that I had been diagnosed twenty years or so ago with rosaceai. In my late teens, I had had "walking pneumonia", which had left me very weak. My arthritis had been appearing in my finger joints, I had had "degenerative arthritis" in my jaw and a resultant TMJ operation in the late 1980s. My soles of my feet always pained me for several minutes each morning as I got out of bed. I am guessing that cpn has invaded several organs of my body.

By mid May, the rectal bleeding recurred. I took more Asacol and Rowasa. By June, my rectal bleeding was more intense, and my energy levels dropped. The rash returned. Following a third pulse of metronidazole in mid-June, the bleeding stopped, only to reappear after several days. By early July, I saw a second gastroenerologist, who performed a biopsy and diagnosed my symptoms as ulcerative colitis. He agreed to work closely with the neurologist who was monitoring my CAP treatment. He prescribed a moderate dose of Asacol three times a day. I continued with CAP, taking another pulse in mid July, following which my bleeding recurred. My doctor's prescription of sulfasalazine left me nauseated. In early August he prescribed Colacort enemas, which worked for a time.

In early September, I started a fifth pulse of metronidazole. The following week, my bowel problems reappeared, accompanied by increasing gas pains. With a sixth pulse in early October, the bleeding started to abate, and my energy levels were very low while my arthritis appeared more troublesome. During the fall, my restless leg symptoms had increased. From July on, I had found that substituting Ensure for a meal was the only way to get through the day. I started a seventh pulse in late October, with no sign of improvement.

Typically, I reacted to a pulse only a few days after I had completed it. Stopping the minocyclin and azithromycin for several days had no effect on my symptoms.

Suddenly, in early November, my bowel improved radically. I had taken Colocort enemas occasionally, and my arthritis was improving. In late November and again in mid December I took my eighth and ninth pulses. By the end of 2007, I was feeling in good health, with no bowel troubles at all. I began to lose weight slightly. At that point, my neurologist reported that my liver function tested as high. I stopped the pulses but continued the minocycline and the three-times-a-week azithromycin.

At the same time, I decided to start reducing the amount of Asacol I was taking. I was able gradually to cut back from 3000 mg to zero by the beginning of March, without experiencing a moment of bowel trouble. By April, once my liver function tests returned to normal, I started my tenth pulse, with the return of the rash over much of my body a week later.

I have had an eleventh pulse in May and a twelfth in June, now not followed by any rash, and with steady improvements in many of my arthritis symptoms. My sleep has improved radically. There has been no upset bowel or rectal bleeding since November. This week I have started taking niacini, and am experiencing flushing. Despite this, I now feel very healthy.

I would encourage anyone experiencing ulcerative colitis or Crohn's disease to try CAP. It is an extraordinary relief to me to feel in good health.

Sue

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Ulcerative colitis diagnosed 11/05, arthritis, rosaceaii; CAPi starting 02/07: minocyline 200mg x 2, azithromycin 250 mg MWF, NACi 1200 mg x 2, pulses of metronidazolei 500 mg x 2 five days starting 04/07. Cured of colitis 11/07.

Wonderful news. I can truly

Wonderful news. I can truly relate . My two children, ages 26 and 24 have both in the past been treated for ulcerative colitis with the profound help ot an immunologist(my miracle doctor) - still unrecognized in the field of gastrology, etc. They were seemingly cured. I still worry - prob. always will even though we  all know worry is a waste of time.Refloristation was name of the game back then - antibioticsi and strain of good bacteria cultured in Germany, etc. etc. were involved.

Wheldon protocol  is prob. in background for me and why I chose it for myself with the hopes of arresting diagnosis of msi-lyme disease and thereby stopping progression. Refloristation worked for my kids so Dr. Wheldon's protocol for me??? I do wish I would have known about it before. Disease progressed all along with loads of stress as well as numerous injections a few years worth didn't help but it seemed hindered. Who knows?

Still praying and your fabulous news of IBD arrest help me to keep that hope.

Loulou

 

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diagnosed MSi Jan.2000 , diagnosed chronic neurological lyme disease Nov.2002.

Well done Sue. It's always

Well done Sue. It's always encouraging for us to hear of such success on here and your report clearly documents your journey to health. I think this deserves gold stars all around.

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Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Pulses #12...I can because I think I can.

Great news Sue. I'm going

Great news Sue. I'm going to link this to the Patient Stories as it's the first specific IBD report, and I think it will aid people looking for help in this condition see that a CAPi might be a useful approach to try. I'm so glad you have found such (relatively) quick relief.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Sue- Congratulations! 

Sue- Congratulations!  This is wonderful news! 

How long do you are you considering continuing on with CAPi to make sure the infection is fully eradicated?  Just curious!

I have several friends with IBD and am excited to email them your post!

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Daisy - Husband on CAPi 5/07.  Roxithromycin, Rifampin, Bactrim DS, Tindamax 6-23, Tetra 7-3, azith, doxyi, minoi, diflucan, mepron, prednisone, Novantrone

Sue, this is wonderful! If

Sue, this is wonderful! If you can , please let us know the state of your arthritis. As I wrote in my blog, mine disappeared the way your primary complaint did. Your story and mine are very, very similar that way. My arthritis is still gone - it was becoming terrible, and, like your IBSi, would come back during flagyli. I had no idea it was going to go away. I am really happy for you and the others who have not yet come, but will.

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 52 pulses LDNi NC USA

Another success story.  

Another success story.   Well done Sue.   I'm hoping to follow in your footsteps one day.

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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