Update added FIR sauna & moving along slowly.

We got our FIRi sauna set up last weekend and I have been eagerly but cautiously using it for 10 min. at the start of my day after drinking water to hydrate first thing. Probably the most interesting result thus far is it restarted the eye burning, sneezing, bronchial irritation with resulting cough. These are all at minor degrees but nevertheless it is a direct response to using the sauna I believe as nothing else has changed in  my environment. The heat from the sauna feels soothing on my sore back and shoulders but causes some itching and then later in the day they ache again especially at night. But less so than on the MPi and prior to starting the NACi, supplementsi, etc.

A few important improvements I would like to report on are my liver and gallbladder continue to function without pain most of the time even when I indulge a little more now in my diet. But of course I am still somewhat limited as when I consume too much fatty food the soreness does appear. Nonetheless, it is a vast improvement over before I started NAC, etc. so I am so thankful for the relief. Other improvements are my energy level, mood along with clearer thinking reflected from less pain in my head, teeth & sinuses.

I am now able to take 400 IU of vit. D witout notable sxi increase. Also I am taking 12.5 mg. of Iodoral. The vit. D had stopped the scalp sore cycle I had developed on the MP the last couple years. I also noted I have less hair loss after bathing now. The both of them have given me more energy I believe.

Symptoms prevail as my body is plagued with mild pain, burning, aching, pressure, soreness, etc. in many locations; joints, muscles, arteries, veins, etc. At times organs such as heart, liver, gallbladder, spleen, reproductive organs feel deeply sore and stressed but not unbearable. Skin tends to mildly burn frequently in areas & hands tingle often. All of the above have been common for me and I suspect will be last to go after proper treatment on the Cpni protocol.

I plan to continue to increase supplements and time in the FIR sauna. But will stay at present levels this week. My sister has flown home from Taiwan and I want to stay at my best for our visit. My brother is bringing her up late afternoon today and they will be staying a few days to celebrate my birthday this week. They the dearest! So anyway, I wanted to get this update in my blog before I get too busy and anymore time elapsed.

Oh ... just want to add: Kudos to JimK and all of you that worked on the new format here. It is wonderful. Much more soothing as it isn't so "busy" feeling. I do keep my monitor at low brightness as my eyes are burning so the blue tones are soothing then instead of irritating at a brighter level. But having said that ... the pale blue tones make everything clearer to read for my blurry eyes I think. Very nice indeed! A lot of hard work was put into the recent changes and I want to tell you that I really appreciate all you do here. You people ROCK! Blessing upon each of you. Hope you all are having a good day.

Comments

Don't know what type scalp

Don't know what type scalp lesions I have to be honest. I admit I don't usually go to the doctor unless I am forced into it. It just did not seem that important to go to the dermatologist. Could even just be lesions of scalp folliculitis or seborrheic dermatitis although I don't have dandruff thankfully. They definitely cycle with my flare ups. Even though our sun is never as hot as yours must feel desert gal ... like you ... I can't stand the sun on my scalp as it feels like it is drilling holes into my brain. I suppose some nerve pain at the lesion sites makes it so very painful without my hat on. My hair is too thick to see my scalp very well even if I could get the mirror angle right. Which is just impossible ... I've tired. DH doesn't have an eye for such things so haven't asked his help to figure it out. LOL

While you are 'warming your buns' in the sun I will be keeping my hat handy as we are in for our summer weather finally. Wink  MM

2002:CFSi. (2008-09:CPNi - CAPi/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tinii pulses. 6/2010: HighBP/Benicar, 7/2010: EBVi, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic. 

MM, When you talk of scalp

MM,

When you talk of scalp sores are these like psoriatic lesions?  I have them and they come and go along with die off and inflammatory reactions.  In fact, I've recently noticed the areas I'm not exposing regularly to sun like my bum is now breaking out in these lesions.  I think the increase in Vit D helps eradicate some of this now so I will try to sun my bum!  Embarassed  

I can't sun my scalp much though because I still find there's something about getting too much direct light on my scalp that gives me too much exposure.  I can go outside without a hat, but can't lie in the direct Phoenix sunlight or I feel like my brains begin to bake.  Surprised

NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons

Don't believe everything you think!  

Spoke too soon. In my blog

Spoke too soon. In my blog I said "The vit. D had stopped the scalp sore cycle I had developed on the MPi the last couple years"

Well, unfortunately they have returned but they are smaller so far and hopefully they will heal faster. My scalp started to itch when my symptoms flared up a few days ago.

The increased 600 mg. NACi I started taking a few days ago may have stirred things up again. Although I have had more energy I am also fighting sinus but mostly bronchial irritation more lately. Not complaining though. At least I believe more than ever I must have CPN since this keeps going on after almost three months of NAC. Thinking I'd like to get tested for CPN to see what result I'd get.  MM

2002:CFSi. (2008-09:CPNi - CAPi/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tinii pulses. 6/2010: HighBP/Benicar, 7/2010: EBVi, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic. 

MM, thanks for the update,

MM,

thanks for the update, I have been thinking about you! How wonderful your family is coming for a visit for your birthday! Have a GREAT day.

After starting the CAPi I jumped into my little portable FIRi & set my timer for hot hot & 30 minutes. WHAM BAM!! I switched to low temp & 10-15 minutes as the FIR can really get to some CPn. I use it less now as I have gone from frigid body temps to sweating alot & now to just sweating sometimes! I sense the sweats start when there isn't any more moppers in my system. so, at night & before I get up.

I want to pass along some books I have read & really enjoyed, have I let you know before??? the fog *&%%#( Pardon eh moi! All the Francine Rivers books from 1995 on when she became a Christian writer. John Eldredge, very good books Walking with God & Captivating. He has a very easy to read, spoken like most people would talk kind of approach.

Blessings & Happy Birthday

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

Awwww. Thanks Ruthless1. I

Awwww. Thanks Ruthless1. I had an exceptionally wonderful time celebrating with my family for three days. They were very happy to see that I had enough energy to stay up late playing board games after going out for dinner and visiting all day. This was not possible before I started using the NACi & other supplementsi recommended here. They were astonished to say the least which was rather fun for me. <wink>

All that activity was much like how the FIRi sauna has affected me. The sore throat, irritated airways, cough and sneezes crop up again. Two edged sword ... the immunei system stimulated or run down. Result feels the same interestingly enough.

Thanks for the book ideas. I am reading Potbelly Syndrome by Farris & Marin but I would like to read something with some spiritual inspiration as well. Seems I study about the physical body too much these days. Make me feel lopsided.  LOL  Blessings to you. MM

2002:CFSi. (2008-09:CPNi - CAPi/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tinii pulses. 6/2010: HighBP/Benicar, 7/2010: EBVi, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic. 

My update noting some

My update noting some changes. After using the FIRi sauna a short time again which amounted to a couple of days. My bronchial airways became very irritated. I had to hold off using it yesterday as my exhaling had a small detectable rattle and my heart had a feeling of pressure. A couple episodes of skipping beats as well. Nothing to be alarmed about as it has been a chronic issue with me along with high blood pressure frequently. Been checked out in the past and determined is from infection processes most likely. Nevertheless, it is uncomfortable so have not re-entered my sauna yet again.

I did decide to try a ramp up of my NACi so before bed I am taking 1200 mg. & morning dose 600 mg. Interestingly enough this resulted in an initial clearing of the symptoms discussed above. Yesterday & today I did however wake up with puffy eyes, plugged sinus on one side and continued bronchial irritation & various areas more stiff and/or very sore. So the NAC still has a bit of a kick in it for me.

But I still have good energy which is very pleasing for me. I spent a couple hours in the infrequent sunshine yesterday weeding my very neglected flower bed. Going to tackle some shopping today as I feel no rebound from yesterday which is still amazing to me. We are going in to buy more blue interior paint to continue our paint project this summer. This was put off for the last seven years because I previously was overly sensitive to paint & other fumes like bleach, diesel, mothballs, etc. It faded away the last year I was on the previous CAPi I used fortunately.  MM

2002:CFSi. (2008-09:CPNi - CAPi/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tinii pulses. 6/2010: HighBP/Benicar, 7/2010: EBVi, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic. 

Miying Meng, When you get a

Miying Meng, When you get a chance could you share what brand you ordered? I too appreciate you carefully reported observations. Happy Birthday and family visit.
Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Thanks Louise. We purchased

Thanks Louise. We purchased the FIRi sauna from Costco online for around $800 called the Eacon BS-9101. It was built fairly well except for the base. It was stapled badly together so my handyman hubby used wood screws to fix it rather nicely. The remaining panels were built nicely so assembling it went rather well for us. Two person job. With my family here for several days I have not had time to use it nor did I want to increase my symptoms. I hope to resume using it midweek if I am feeling good enough. MM

2002:CFSi. (2008-09:CPNi - CAPi/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tinii pulses. 6/2010: HighBP/Benicar, 7/2010: EBVi, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic. 

As usual I'm very

As usual I'm very appreciative of your careful and gradual ramp up. Your doing this so carefully seems to be letting you feel improvements without much downside. Keep it up!

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

JimK, thank you for your

JimK, thank you for your encouragement. It is preferable for me to get well while enjoying life as much as possible now. I just spent 3 1/2 years in very strict boundaries and I need to flex my new found wings a bit so careful to take it slow. I am so thankful for the advantage of using supplementsi to keep things under control. It is interesting to me that only mild cold type symptoms flare up now everytime I get too tired from overdoing it. This was not true before NACi usage for the most part. Must be a porphyriai thing cause too much sun still causes my gallbladder to get sore; however no more gb attacks. Going in for blood draw this week so will be interesting to see how my regular tests come out now. Hope you are doing well & again thanks for all the hard work you are doing on this website.  MM

2002:CFSi. (2008-09:CPNi - CAPi/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tinii pulses. 6/2010: HighBP/Benicar, 7/2010: EBVi, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic.