New folks here to Cpnhelp, we need your help.
This site is full of wonderful, generous folks, who are sick too, who spend a lot of time seeing to questions and making sure people get the help they need. We will do our best to help you through the confusion. I've seen few community websites like it.
But for some miraculous reason we have had a huge influx of new people lately, and we are getting swamped, especially with having to answer the same questions over and over again with each new person posting. We are glad you've found us. We are a bit overwhelmed with the bounty.
I'm a bit worried that the stalwart old-timers here are going to burn out trying to keep up with responding to new folks. They are very dedicated and conscientious, and tend to want to be thorough in each response. That's why it's such a helpful culture here, because of the old-timers who take so much care to guide folks through the fog.
We know you are sick and not at your best, and desperate for help on arriving here.
We know that there is a ton of information to absorb, kind of sprawling all over the site, and made more difficult by one being ill and brain-fogged.
We know you want to know what to do RIGHT NOW, to get rid of this illness as fast as you can.
We are working, all volunteer work here, to put together an overview and FAQ of the CAPi for a one-stop information shopping experience. Soon we hope.
But we need you to do some things in the mean time.
I've never, ever wanted to suggest that people "don't post" here. We don't want to put up any barriers to getting help up, but...
- Please don't post questions if you haven't read these at least a couple of times:
- http://www.cpnhelp.org/handbookintro
- http://www.cpnhelp.org/http%3A//www.cpnhelp.org/%3Fq%3Dsimple
- http://www.cpnhelp.org/the_basics_page
- Read David Wheldoni's site even if you don't have MSi. His presentation is clear and cogent and will help you understand the treatment approach: http://www.davidwheldon.co.uk/ms-treatment.html
- Even if you are brain-fogged, please try to read the whole Handbook at least couple of times before you ask "What should I do?" type questions. One time just to be totally overwhelmed. A second time to begin to get the picture. If you got it in you, a third time would be great and some glimmers of light will begin to show through the fog.
- Try the Search box. It's not the best search engine, I know, but it may come up with some answers to questions that already are on the site.
- Please post a question in a forum or blog first rather than PM folks privately for advice. It's not really appropriate for individuals to be put in a position to guide anyones treatment and, besides, your question might help someone else.
- Introduce yourself in a blog and make sure to list what you are taking, if anything, and what you are being treated for. The signature is a good thing to fill out, but it won't appear on your blog post, so you need to add it intentionally or post a comment after so it will appear.
I hope this won't discourage anyone here, and if you can't do the above, by all means post what you need to. We are glad you've found us and hope this will be an answer for you. We would rather be a bit stressed in the short term and make sure you get some responses. But if you can take a little time to explore and digest it will make a big difference.
Please let me know how this editorial hits you. If it is frightening you off or if I'm speaking for others inaccurately, I'd rather pull it. So let me know.
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