Newbie

Hi, my name is Claudia and I was diagnosed with RAi several years ago.  After doing some research and finding out about the connection between certain autoimune diseasesi and  bacterial infections , I decided to get tested for Cpni-which tested positive.  I am a little scared about taking so many antibioticsi, but I guess if this treatment works, then it's worth it!  I would like to know if you guys have a list of doctors who provide this treatment around the Miami, FL area.  Any help would be appreciated.

Comments

Hi, I know this is a bit

Hi, I know this is a bit scary and Doctors will think twice or more about prescribing. I've just posted on my blog about my GP jumping through hoops trying to decide which way he's going to go with it.

Thing is, there are lots of medical conditions that do have high doses of long term antibiotics prescribed. My brother-in-law has something, name escapes me at the moment, but it makes his legs swell up to gigantic proportions due to fluid. He's permanently on abxi so it's not unknown, and last I looked he hadn't turned into a bug eyed monster, in fact he's doing really well.

The reason Docs get worried as this is not a widely known protocol and they don't want to get their backsides sued. In the UK, and I suspect in the US as well, there are lists of approved treatments and this isn't one of them. Until it is, we'll have trouble getting medical backing.

There is loads of support on here. If you have questions or concerns, don't be afraid to ask, you'll get sensible answers from people who are walking the walk.

 

Berkshire, UK. Diagnosed MSi Feb 4th 2008. NACi first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.

Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April

Welcome Claudia.. There is

Welcome Claudia..

There is alot of information here to familiarize yourself with.  Taking the abxi that we do here is the only way we know of right now to eradicate the CPni.

Hopefully, you will be able to put the science together from here your doc will want to see to prescribe for you.  What doctor wouldn't want their patient to have a chance at wellness?

Best wishes for your journey, keep us posted.

CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpn, (insomnia - melatonin">i, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, 2-6-08 7th pulse 2 X 375 mg 2day+

CFIDSi/ME, FMSi, MCS, IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplementsi+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyli/day-5 days<

I'll send you some names in

I'll send you some names in a Private Message but to be truthfull there are not many doctors known to prescribe.   Most patients either go to consult a few or manage to get their doctors to talk to Vanderbilt.   The doctors on the list that I have may, I repeat may be able to help, but they may need to be educated.

You need to be confident yourself that this is what you want.   If you are frightened about taking antibioticsi it is going to be difficult to convince a doctor to give you the prescription.

You may need to read a bit more about the rationale and the discussions that have  taken place here so that you feel more comfortable with the protocol.

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse.

Claudia, Have you seen any

Claudia, Have you seen any discussion of this on Road Back? One of my friends with RAi, who has done this protocol, told me there's a lot of info on doctors and treatment there, as antibioticsi are more 'mainstream' for RA, believe it or not!!! (If you don't know what I'm talking about, I can ask her for specifics at work later this week. She's touring China right now.) My friend says she now has 'no numbers', when her RA test numbers were quite high before. (I don't know how that's done, so you probably know more than I do on that subject). She's also stopped taking her prescription RA anti-inflammatory drug. She was so excited about this, as she was ready to leave her job, on disability, and now doesn't need to. Welcome!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi