new treatment question

User login

Navigation

Support Cpnhelp!

Donations allow us to avoid advertising to keep the site clearly member and mission focused. and are used to pay for site maintenance. Any additional balance is held in trust for future needs or will be donated for research. We are not non-profit so it's not tax deductible. Donations and expenditures overseen by a committee of members.
Write your own amount to give

Syndicate

Submitted by lee on Fri, 2008-05-09 07:30.

I am switching to the new protocol. I read where it says to check the titres for cpni in the blood. My husband and I tested positive he for iggi and igm me for just igm. I don't understand how you can use this as a guideline. I never test positive unless it is after a pulse. Dr. W also states that negative titres mean little. Any help here?

___________________________________________________________
zero negative sjogren's diagnosed 2/03, 200mg minocin daily, biaxin,plaquinel mwf, flagyli i every 3 weeks.

Lee-whats the new protocol

Submitted by veressv on Fri, 2008-05-09 07:43.

Lee-whats the new protocol you are switching to? And from what? It would help a lot i think for others to help you...

Login or register to post comments
Email this page

I'm not sure exactly Lee,

Submitted by Jim K on Fri, 2008-05-09 23:09.

I'm not sure exactly Lee, but I think Dr. Stratton is feeling a bit more confidence in the Mayo Clinic tests for Cpni, so he may be referring to titers with that reference point in mind. I also think that this would not apply to all cases, as David's comments about difficulties of measuring Cpn in MSi, even with samples of cerebrospinal fluid, still hold. Personally, I would trust my personal reactions, or lack of them, to the regimen antibioticsi more than a titer. Believe me, if you can do a course of rifabutin with no reaction, you are cooked and done!

CAPi for Cpn 11/04. Dx: 25yrs CFSi & FMSi. Protocol: 200mg Doxyi, 300mg Roxithromycin, Tinii 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

___________________________________________________________

CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Login or register to post comments
Email this page

Lee, it would be

Submitted by nino pranzo on Sat, 2008-05-10 08:32.

Lee, it would be interesting to know the titres, as to be able to compare. The last check I had was IgGi 1:1024, DNA negative; before that IgG 1:256, DNA positive. I think (but it is only my idea) that when you kill enough Cpni, the fragments go around and (being antigens) they push your system to produce IgG. I would like also to compare the pulse length of others. Thanks. Nino: French Riviera, Cpn pneumonia june05 (misdiagnosed). Self diagnosed-treated. Sept.06 found doctor who confirmed Cpn, prescribed Zit 500mg every sec.day. I added NACi, supplementsi, metron.pulses, 200mg Doxi. Now Roxi instead of Zit.

___________________________________________________________
Nino: French Riviera, Cpni pneumonia june05 (misdiagnosed). Self diagnosed-treated. Now on Roxi 150mg bid, NACi 1200 to 2400, vitaminsi. Rifampin 300mg, calcium pyruvate 3 g.

Login or register to post comments
Email this page

Cpnhelp.org - Chlamydia Pneumoniae Treatment