A new life

I want to inform you how I am doing. Firstly I am nervous when sitting at PC because I always want to move and do something. 2 days ago I completed the next pulse which was the second tinii one. During pulse I could be on my legs or sitting and working for long time, e.g.last Saturday and Sunday I sat down and switched on the PC only at 5 p.m. and I worked all the day from the time I woke up with no rest. For me it's something new because I could never work so long hours without being tired and having a rest. A week after previous pulse - 1st tini I could walk up to 300 m with trekking poles. Now my legs feel strange - extremely light and I walk much faster and do much longer steps. What's strange I have always to get used to new better feelings and improvements in my legs and I know i must be very cautious because while I am better there is still a risk of a fall. 

Before the last pulse I had something like strong bad MSi attack. It lasted 3 days and it put me down much but then I was better and I could do next pulse. The attack was maybe the result of the porfyric attack because a few days before the attack I drank little (Sarah I know what you are going to write). I did it last time that I drank so little. Anyway I think that each MS attack is a porfyric attack.

Comments

Evita, what do you know that

Evita, what do you know that I am going to say?  I don’t.  I only made a purposeful decision not to drink during my first pulse, then when I saw David drinking during his pulse, I tried a little: I never do drink very much.

I think it is wonderful how much you are now improving after having had MSi for at least as long as me.  Looking back, it’s funny, but you suddenly find that you are improving almost without thinking about it.  For instance, I can now stand for long periods at my easel, whereas before I sat at one of my tables doing watercolours, thinking that at least that was better than not being able to work at all.  Then one day I thought to buy some acrylics, never having used them before and was able to finish a painting started in oils but left half-finished before finding that I couldn’t paint anymore.  Eighteen months later I got out my oil paints because I was fed up with acrylics, odour free but too quick drying....................... Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Yes, Sarah I was thinking of

Yes, Sarah I was thinking of how you were explaining me  I had to drink more.

You are right. I am improving without thinking of it. I learnt this attitude during the long years of my MSi. I learnt when I didn't think of the attack which I had at that time the attack wasn't so bad and it left and I just realized it was over though always some bad things remained. Now I do it just opposite. I don't think about improvement and what comes it's there. Almost the first two years it was only bad things but as I was used just to bad things I didn't care about them and in the morning when I got up I  looked forward to the evening when I went back to bed as the next bad day was over. And my life was like this. Now it's completely different. I started to live a few months ago.

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

How embarrassing: I was

How embarrassing: I was thinking of drinking alcohol!  It’s that man getting to me!!....................... Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I like it! alcohol! I would

I like it! alcohol! I would have a glass of wine but I am still afraid. Before the CAPi I could drink no alcohol because if I just smelled it I was drunken for sure. By the way I walked like I was drunken without alcohol. But now! I would like to have a glass of wine, but I am still afraid!

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

Hah!  Why not try just one

Hah!  Why not try just one small glass: you might be surprised.  I have seen with lots of things that if someone is frightened of something, they will mess it up.  Likewise if someone is sure they will get drunk they will, so you have to have the SMALL glass convinced that you will stay sober....................... Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

EvitaYour blog is delightful

Evita

Your blog is delightful to read.  I understand to my foundation what you are saying!  And the nudge from the back of your mind - "Careful now, careful...you want to be able to do this again tomorrow" - is stiill with me.  Reentering life is wonderful.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Rica, the fact is that I am

Rica, the fact is that I am not reentering the life I am entering it. Actually I was never in life. My life which I lived I just followed as a viewer.  I did all the everyday activities, studied, worked, looked after my family... but I see just now that everything was outside me though I was the main character. Only now I am learning what life is though my walking isn't what I want to be. In the past I could walk but it wasn't the life.

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi