New to the fight

Hello. I am a 35 yr old male and have been battling asthmai symptoms for about 2 yrs. I finally gave up on my allergist except for the allergy shots. I went to see a pulmonologist and had all the stuff like PFT's, Oximetry, Blood tests, etc. and my Pulmonologist told me I did not have asthma. My blood work showed high numbers for CPNi and Mycoplasma and they told me I have had them for a while. I started out taking azithromycin 250mg. daily and have taken about 9 months all together.

 Every once in a while I have a flare in breathing and start to use my inhaler a little bit more and my doctor will add something in along the way. Once he added Doxycycline in for a month and other time he has given me things like a med-pack, steroid shot, and added in ceftin and levaquin as well. I will gor for a while feeling well and not using an inhaler at all and the every once in a while here comes a flare up. Recently I have also had some loss of sensation and burning in my toes and ball of my feet and I am going to do an EMG soon.

I am just wondering if I'm doing this right and making progress because every time I go back to the pulmonologist I feel like I've done something wrong or that I should be over it by now, etc.

I'm thinking about adding in some supplementation if it would be beneficial to speed up the process. I would like to hear from anyone. Thanks.

Welcome, Mousley

You certainly sound like one of us.  The most important thing is to read, beginning at the top left with "Getting Started" and "Patient Stories", and anything else that you find interesting - there will probably be a great amount.

When you have satisfied yourself that this is where you belong, start on the supplementsi.  They will help your body protect itself for the battle to come - and will benefit your health.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Completely agree. Your doctor's experimentation sounds promising. You might want to share this info with him. Meanwhile, I'd start on NACi and maybe start with vitamin D3 at a low dosage, then ramp it up slowly. If you feel like you're coming down with the flu on NAC, you know it's having an effect on the cpni. Go for it!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

you will need to add NACi and with the azith will you need to add either doxyi, or minocycline.   you have to take all 3 consistently (NAC, azith, doxy) , every day, twice a day.  and then eventually for CPNi, add in Flagyli pulses.  the azith/doxy,or biaxin/minocylcine, will kill mycoplasma as well as CPN RB.

 

Mphs, TN. CFSi, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpni, myco, EBVi, CMV, HHV-6. Capi began in 6/07. NACi 2400mg, minoi 100mg bidi, biaxin 500mg bidi. cytomel, flagyli bid continuously.

I suppose I am taking pulses of antibioticsi along with the azithromycin which I take daily. When I call in w/ other symptoms I have gotten a script for Ceftin(twice a day) and Levaquin(500mg once), I have gotten this cocktail twice now within a year. The last time time in I also got a shot of Rocephin and a Steroid. Does this sound like an effective way to be killing cpni along with daily 250mg azithromycin?
35yr. male..cpni and mycoplasma pn. w/ asthmai and recurrent bronchitis. Azithromycin 250mg daily. I have some numbness in the toes.

Hi, mousley1974,

Re your question:  "Does this sound like an effective way to be killing cpni<i< along with daily 250mg azithromycin? "  

What you are doing will not kill all three life forms of CPN.  We here on the site are taking combination ABXi long-term daily, plus tons of supplementsi<.

You might want to start reading the tabs (Getting Started, CPN Handbook, Patient Stories, etc.)  in the upper right-hand corner --   tons of information to read and absorb.

Here is a link on the different protocols to get you started:   http://cpnhelp.org/treatment_protocols<

Hope this helps.

 

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

Hi Mousely

I would write to you privately, but since you are not a member, I don't think I can go thru this group to do that. I agree that you should look at the protocolsi for Cpni...also, I think you should look into the neurological and connective tissue implications of taking quinolones, such as levaquin. No - it doesn't affect everyone, but I - and others I know - have had much damage (irreversible so far) due to taking quinolone antibioticsi. Good luck finding your treatment! Sounds like you have a doctor open to helping you.

Astrodiana

Been reading...lot's of good stuff. I actually feel much better after the steroids and rocephini. Is it common to be really tired after fighting inflammationi or is this more likely the bacterial die off occurring(I am taking three different oral abxi's and the rocephin injection). I feel tired and foggy and not in such a great mood either, but I can breathe very well.

I go today to get results of EMG. Do other people on this site have mild neuropathies? Is this the result of toxins...long term infection or the meds I'm taking to resolve it?

35yr. male..cpni and mycoplasma pn. w/ asthmai and recurrent bronchitis. Azithromycin 250mg daily. I have some numbness in the toes.
Mousley, No, what you describe as pulsing antibioticsi does not qualify as anywhere near what we do on this protocol. Please re-read the 'getting started' pages and take heed of JeanneRoz' post.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Don't know if I'm 'pulsing' or doing the same thing everyone else is but I am certainly taking combined antibioticsi. My doctor is one of those named on this site and is treating many people for these chronic infectionsi. Perhaps his approach is a bit different these days, as I read about an older protocol where he used doxyi/biaxin(on patient stories page). It would be my guess that Ceftin is substituted here for Doxy and Levaquin is used in a way similar to Metronodizole w/ Azithromycin being continually given daily.
35yr. male..cpni and mycoplasma pn. w/ asthmai and recurrent bronchitis. Azithromycin 250mg daily. I have some numbness in the toes.
Maybe I'm misreading what you're taking, then. Your earlier post made it sound like you've taken two different abxi once or twice a year, then you asked us if this is what you should be taking

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I take 250mg Azith. daily and my doc. adds other antibiotics in when I have flare ups or bouts. Once it was Doxycycline twice a day but most recently he goes with Ceftin 250mgX2 10 days and Levaquin 500mg 10 days. Only this last time he also added an injection of Rocephini to all these others. So, I have taken 'pulses of other abxi's intermittently atleast 3-4 times this year along w/ steady azith.

I would like to know if others on here have symptoms of nerve damage...burning, tingling in their feet, etc. Would that be inflammationi caused by bacterial die off, etc.? Or is it something that develops with having a chronic infection for many years.

35yr. male..cpni and mycoplasma pn. w/ asthmai and recurrent bronchitis. Azithromycin 250mg daily. I have some numbness in the toes.

 Mousley,  I'm not sure what you mean by, "Flare ups".  It might be your doctor is treating another infection along with your CPNi.

Most of us have not used antibitics in short durations or Rocephini injections. I hope this approach helps you with treating your infectionsi and you feel better.

 

 

 

started Wheldon capi 4/21/08 for Cpni, CMV, EBVi, CFSi. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplementsi,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

Hi Mousely - Dr. Stratton wrote a paper entitled "Dead Bugs Don't Mutate" which talks about the fact that if you take the abxi without interruption, the organisms do not have a chance to regroup and become immunei to the effects of the meds - in other words they do not become resistant to the abxi because they are too busy dying from the constant barrage of the meds. If you find you have any "other" infectionsi which crop up from time to time, the continual doxyi and Azith plus possuible amox should be enough to take care of those infections...I guess one could add anti-virals and some doctors do. But pulsing is generally not done on the meds other than with flagyli, ans that is only pulsed because a continual use of flagyl most often becomes quite intolerable for most people. From what I understand, the ideal, even with flagyl is to get to a point when you can also take that continually.

Astrodiana

I'll probably stay away from levaquin in the future because it makes me feel so ran down. I am reading that ceftin is very similiar to doxyi in many ways, crosses blood/brain barrier and has good action against lyme, etc...very few side effects. It is a cephalosporin antibiotic.
35yr. male..cpni and mycoplasma pn. w/ asthmai and recurrent bronchitis. Azithromycin 250mg daily. I have some numbness in the toes.

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.