Hi, I am new to posting...have done a fair bit of reading since mid 2011 though and it has really helped. Thank you! I need to get round to creating a signature (sorry!) but my basic history is as follows (will try to keep this short - as with others, have been through the wringer with specialists convinced I was psychologically compromised....I even started to think I was!):- Chronic sinusitis/bronchitis/allergies/asthmai since early childhood; Glandular fever (EBVi) at 18 yrs; Diagnosed CFSi at 19 yrs; Multiple back operations between 19 yrs and 25 yrs (lamanectomy, fusion x 2 etc); Diagnosed with ovarian cysts 2009 (suspect they have been there for years); Diagnosed FM beginning 2011; Diagnosed probable MSi July 2011 (negative MRI but oligoclonal bands in CSF); Various neurological symptoms, starting with intermittent pins/needles, burning sensations from 12 yrs onwards. Symptoms would last a couple of weeks and then spontaneously disappear for years. Symptoms became progressively worse (and didn't remit) whilst undergoing months of stressful fertility treatment 2010. Successful IVF round Sept 2010 (yay!) led to horrific pregnancy - pins/needles spread EVERYWHERE along with neural pain, dizziness, cognitive problems, muscle twitches/global weakness but worse on right side, intention tremors, swallowing issues, FATIGUE, positive L'Hermittes (was told my symptoms did not fit MS by 3 neurologists and a pain management specialist!). Very very grateful to have been directed to Dr Powell by a fellow patient and tested positive to HHV6 (apparently through the roof...impressed even Dr Powell!), EBV, moderate mercury/lead/uranium/arsenic poisoning (!!!!) but negative to Cpni. Have just started abxi after being on NACi since august last year. I didn't have any reaction to NAC, however attempting to see if I react to abxi to make a diagnosis. My mother has had CFS for 30+ yrs, has high Cpn titre (something in the order of 1:550) so possible theory is that I contracted it in utero and therefore don't create antibodies. So now I am trying to work out what is going on, and if I do have Cpn (or something else...I don't really care what as long as it goes away!). Like I said, no reaction to NAC but have had to give it away recently as worked out it was the cause of my chronic stomach pain. No reaction to doxyi as far as I could tell, a couple of days on and off feeling flu-achy but no pattern as far as I could see so dismissed it as just being 'off' (i'm 'off' a lot so its hard to tell!).Started azithro and rifampin 2 weeks ago...about a week ago I started to notice horrible flu-achy - right into the bone achy - symptoms in my arms and especially legs that came on towards the end of the day. Also increased fatigue (but again, I go through periods of worse fatigue) and numb feeling above my right eye/cheekbone and weak feeling in right leg. I dismissed it at the start because I can't seem to find a pattern, except that the aching is worse at night (sometimes need pain relief to sleep). However just when I think maybe it's die off, I have a good day with no aches or neurological symptoms (apart from the usual). Then they are back a day or so later. I am driving myself insane trying to work out what is going on so I need advice from seasoned Cpn-ers please! I also suffer from Candida (flared terribly during pregnancy) so I am arguing whether the abx is causing the candida to flare and this is leading to symptoms, or whether it's Cpn (or whether my MS symptoms are just progressing). I find the aching intensifies a lot after I eat (I am on a low sugar, yeast free diet and steer clear of allergy foods) and I don't know how that relates to cpn. However in saying that my outward signs of candida have been much worse than they are niw and I've never had that deep awful ache or increase in neuro symptoms. I am going to start flagyli pulses next week to see if that intensifies my reaction...however would love any suggestions to stop my head going insane trying to work it out. It's all so confusing. Dies thus sound like cpn (or some other bacteria) die off? Am on all supplementsi, lauricidin, olive leaf extract, probiotics etc. Thank you so much. Oh, and I have a beautiful, incredibly active 9 month old baby girl who thinks she is too old to sleep during the day, so rest options are few and far between!
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