Neuro visit - not so bad

Today I had a half-year check at neuroi

Last night snow fell and in the morning the pavements weren't cleared from the snow. So I had to use my leg muscles more and then when I entered the building I had to be more careful as there is a very slippy floor in winter when you come in with cold and snowy shoes. I had two trecking poles and they slipped too inside. It was more dangerous inside than outside. But I managed it with no stress but the result was that my legs became stiffed and they remained stiffed until I came home. 

At neuro I showed my dexterity of my hands when putting out and in ear ring. Doc was afraid that we would look for the ear-ring on the floor. Nothing like that happened and I did the task for the first attempt. Though my legs were extremely stiffed I could lift them up in Mingazmi without any help and put them down together. She wanted to prescibe me Baclofen so my muscles released. I refused it as I remembered I had taken it maybe 20 years ago and I couldn't take it as my muscles shivered from it. I am thinking if it means that my legs are as they were 20 years ago. The only difference is I could walk then and now I can walk only with a cane and not much.

Results - Motoractivity of hands measuredly, Stifness of legs, Demyelinization type MSi chronic progression form with spasticity and tripareza.

So hands better and legs nothing new. The visit was without any stress and any arguing. The next check is in half a year. Anyway I feel like a healthy one except my walking. I can't imagine myself a year ago to go outside in the weather like today is. Only the thought of it would be much stressful for me. Also I am just before the next pulse and before I couldn't go out without ibuprufen, I wouldn't do a step. Now I didn't think of taking ibuprufen.

 

 

Comments

Today my legs are fine. No

Today my legs are fine. No stiffness only my ankles feel some saws but not so much than before and very little burning in my legs. Maybe the stiffness was the next reaction to the treatment and it came just when I saw my neuroi. But I think it's not so important. The most important is that nothing is permanent and it only confirms that something good is being done in my legs. And after so many years, more than 30!

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

Excellent news!!! Things r

Excellent news!!! Things r improving-I'm so happy for you. If only the improvements came a little faster,right??? I agree with you with the baclofen-I will never touch it again in my life-made me so stiff, and so much pain i couldnt move. I kept calling my neuroi complaing to which he kept saying-wait, your not at a theraputic dose yet" After 2 months I titrated my self down and after 30 days finally off of it. Neuro wasnt happy with my decision but I'm pretty sure a med. that's supposed to help and only makes you way worse should not be made into a bone of contention by the Dr. we trust has our best interests at heart. I am glad you said no and I'm glad I finally put my foot down...so to speak (it's always down, the up is the hard part-LOL)

MSi DXi 1996. Started CAPi 6/5/11. Doxyi 200 QDi,Azithro 250 MWF, Amox. 1000 2xQD, Tinni-1000 BIDx5days 1x Q month. All listed sups. on Cap except NACi. Copaxone QD. Asthmai,reynauds, hhv6

Erica I can remember 20 years

Erica I can remember 20 years ago I took  the baclofen only 2 or 3 days. As soon as I found out what it had been doing for me I stopped taking it without asking my doc. I only announced her at the next check that I stopped taking it and why. Today she only proposed baclofen once and after I refused it she didn't insist on it.

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi 

Well at least she knows who

Well at least she knows who she cant push around!!! LOL

MSi DXi 1996. Started CAPi 6/5/11. Doxyi 200 QDi,Azithro 250 MWF, Amox. 1000 2xQD, Tinni-1000 BIDx5days 1x Q month. All listed sups. on Cap except NACi. Copaxone QD. Asthmai,reynauds, hhv6

It wasn't like this with

It wasn't like this with everything. I took some drugs my neuroi presribed me and they helped me. Baclofen was the only drug after which I was worse so I stopped it. And I also refused CRABs. And now when I am better I am more confident about my treatment.

MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi