NAC. Very sick on low dose

I have red and tried to learn what I can about CPNi for three weeks . . . Red about Naci and found out this could be a test to Find out if I have CPN. I am norwegian and the strongest Nac sold her is 200 mg. First 200 mg . My noose starts running after Two hours. Second 200 mg 5 hours laiter. Before bedtime. Woke up next morning and my Neck and back was totally stiff, spent 180 min with my fysio and felt a little better. Third.200mg. In the middle of the second day. Next day I woke up with a severe chest pain, I could not breath in more than 50 % without having a bad sting in my chest. After a couple of days it where easier to breathe. But the hurting spot on my chest muscle was painful for a week. I was very sick the whole week. And so happy I did not get 600 mg. I have now started with 100mg daily on doxyi. 1. When people tell about taking 600mg x 2. and feel jused a little. My question is. Can this only be me beeing full of CPN ? 2. After starting on doxy, Should I wait with NAC until I take full dose of bouth antibioticsi?

 To NORWEGIAN

 

 Calm down, there is an alternate to NACi  may be but it does not sound like an allegy reaction Have patience , Yes others will help you  here, I do not know your situation and I just came here recently. Bevpatient and love God and wait for other answers from others

Welcome Norweigian

Considering your latitude, I would bet that your Vit D level is very low.  You would probably benefit if you began taking at least 5000 iu D3 a day - I take 9000.  I have dropped to 7000 a time or two and my blood level dropped to the 60s.  I want it in the high 80s at least.

This battle you have begun takes a long time.  Chip away at your symptoms with the NACi and the Doxyi - it will get better, but not for a while.  Are you taking the other supplementsi yet?  If not, go up to the Getting Started and take a good look.  And yes, cpni is fighting back

You come from Viking country - you can do this.  I know, because my crazy, wonderful brother-in-law, a true Viking, told me so.

Rica 

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Thank you for your answers. . .My reaction was so strong from NACi. I fear my body is full of CPNi. You Are absolutely right about the vitamin Di. During every winter up to 5 years ago I took solarium. ( I sold My fitness center) and a lot of my illness became stronger. I knew sometjing where wrong. Going to the doc feeling like hypokonder. Always saying , I Think It is a virus. . . Everything test negativ . . There is a D vitamin study starting on my local hospital. I have signed on and hope to join. There is so much Ihave to learn . . . Normally I write better than this but this is my sons IPad It is close to Flyning out the window because I wrote FLYING Used to be a viking

Norwegian,  You can wait to take the NACi, if you prefer. ( It appears you already have confirmation of cpni infection, by your reactions to the NAC.)  I take 2400 mg of NAC daily, with no reaction at all.  Some people can tolerate only a little of it, even after a long time on antibioticsi.  We are all different.

Slow down a little and read here.  Then,  read again. (I learn something new every time I read Dr. Wheldon's protocol.) You did not get sick in one day, you will not recover in one day and you will not hurt yourself by going slowly into this treatment.

CPn infectionsi are involved with lung infection, like walking pneumonia.  It's not surprising you are having reactions to NAC in your lungs.  You are sure to have CPn living in there. 

As you continue in treatment, you'll find 'pockets' of CPn infection in places you had old injuries, because the CPn bacteria traveled there, hiding inside white blood cells, which raced there to 'help' during the original injury.  Don't be afraid of that; you are not relapsing or having some new symptom.  The treatment is just attacking the infection in those areas and causing inflammationi as a result. ( Knowing this in advance is comforting when it begins to happen to you. Otherwise, it can be frightening.)

Last, welcome to the site.  You will find support, information and humor here.  All three are vital to beating this disease.  ;-)

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

You needn't wait for a study - you can get Vit D3 at the drug store and begin taking those pretty little gel caps every day.   The IV of 50,000 iu at the doctor's is Vit D2 and the body has to convert it to D3.  You obviously need it now - D3, that is.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

I agree: you can’t wait for a study about D3, since it will take so long.  Its mid-winter and you need it now!  It was dark here in East Anglia before four o’clock today and you are quite a bit further north......................... Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Also, Norwegian, I only started to take NACi after about fourteen months of abxi.  I don’t know what I would have felt like had I taken it earlier, but at fourteen months I had no trouble and I still take at least 1200mg a day to help guard against re-infection after finishing the antibiotic course.  As long as you are taking the antibiotics there is no chance of re-infection.  Good luck with your way back to health!........................ Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Norwegian, sounds like you got it bad. I started with minocycline and after 6 weeks got acute bronchitis. After 5 years on CAPi I am going to try to tolerate NACi again, but I have never been able to. Rica insists that it is key, Sarah says it is not. I don't know, but I continue to try. It's a long road but, for now, it is the only road and the people here will help you navigate it. I have recently begun accupuncture and find that it helps. I will post about it soon.

Welcome and good luck!

Nancy

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

THANK YOU AGAIN FOR HELP AND MOTIVATION  

First I have to admit that I in many ways are more scared with CPNi diagnosis than I was after

my stroke 3 years ago.  Second is the problem with finding a doc than can help me treat CPN.

From what I learn, my doc could loose his job treating me as planed. There is a very clear national

policy her about not using antibioticsi. Resently I told a specialist (doc) that I visited in the local

hospital with my three daughters about his thoughts around the epedemic ME here.

(ME is what we call cronice fatigue). I told him that I belive that the reason of this epedemic

outburst of ME in young people, is the fact they stopped treating with antiboitics 10 -15 years ago. I

also told him about getting so sik from only 200mg x 3 NACi and different things from this site.

I spent two hours with him. And when I where going to thank him for taking the time to listen to me.

HE THANKED ME for a very motivating meeting. Saying it had been an inspiration and that it looked 

  that   I knew more about this, than what was commen about doctors. . . . . . . . . . . . . . .

 

 

 

Norweigian

This doctor sounds very real and very human.  If you can introduce him to this site, that would be helpful.  At the top, there are Physician's Papers and the research behind this discovery.  I cannot get you and your dilemma out of my mind.  You obviously are such a good candidate.  We MUST find a way to get you into it.

Speaking of NACi - don't forget that its action is that not only of protecting our livers, but it actually kills Elementary Bodies, thereby doing double-duty as an "antibiotic", so to speak.  And if you get the other supplementsi and begin them, you will feel better and otherwise greatly benefit.

My bother-in-law was born in Valderoy, Aalesund, Norway in 1920.  His parents were Per Olsen and Alfa Skjong Skylstad.  He was in the US Army in WW!! in Intelligence.  One of his professors told a humorous story about him for years:  when he first came to this country and began college, his IQ was 90.  When he graduated, it was 160.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.

Norwegian, yesterday and today I took 150 mg of NACi. No reaction yet.I will wait awhile and try doubling the dosage.

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

Norwegian, I spoke too soon. The econd dose hit hard (just 150 mg). Nevertheless, I took the third dose tonight.

PPMSi-misdiagnosed 2001-diagnosed 2006. Probably caught cpni in birth canal but it didn't pass BBBi until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 Stopped 12/12; resumed 12/13

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