NAC flu question

Morning all.

Just wondering about something. I have seen a few posts about this-- but still wanted to clarify. I did not have a strong reaction to the NACi when I first started it- like the first week or so- but gradually as I took it and as I took the anitbiotic my symptoms have come back strong. Does this still sound like cpni? I am wondering because my internalist looks at my chart and says = see your cpn was high-every time I go in like he is convincing me again :) it was 267 or 247 -fairly high I guess for the iggi (whichever the past infection one is) and not positve for a current infection. I understand about why that may have happened.  My concern is that I stopped at cpn when I should have kept digging for something else. I mean almost every symptom I have I have found on this site in one place or another= so that is encouraging to me:) I am not crazy:)Also-- I may have just missed it-- but with the overwhelming amount of helpful info on this site:) it might be neat to have a specific spot where we list our symptoms so that others can compare and say-- wow that sounds like me- I am not alone:) or crazy.

 BlessingsWink

Melissa

You are NOT crazy -or maybe we all are and just don't recognize it - so here we all are learning about our fascinating collective craziness.

Along with a few other mantras I keep repeating is that there is a list.  It feels as though there is a list of a hundred (+/-) and we choose or have piled on us some number.  I agree with you.   What you are experiencing is a recurrect thing in this somewhat exclusive club, membership in which is not necessarily high on anyone's list of choices. 

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

What a blessing that your MD keeps reminding you.  In so many cases it is the other way around!

Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

I wouldn't say this sounds like cpni.  I would say this sounds like your treatment is killing cpn.

I'm sure you've read here enough to have seen the phrase 'you will revisit all of your old symptoms' as you proceed through the treatment.  As the cpn is killed off, inflammationi results.  Inflammation irritates all the locations of prior infection.  In other words, wherever you have cpn infection at its worst, you will have resulting reoccurrence of symptoms as the bacteria is killed and the affected area is flooded with toxic dead bacteria carcasses. (Okay, not really carcasses, but toxic byproduct of their death. Wink)   Then, as the area begins to repopulate with new, healthy cells, you'll probably experience some interesting new sensations, too.

It's just the nature of 'our' beast. You'll basically travel back up the long road of decline you were on until you started abxi, scenery (old symptoms) and all.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mellissa- if you took the amoxi for a while before the NACi you wouldn't get much additional reaciton from the NAC: amoxi does the same thing (kills the infectious extracellular EBi form of Cpni). Some people don't have as much EB load as others. You'll have to see how you respond to the next set of antibioticsi in the protocol.

Like a lot of us, you appear to have multiple organisms you are dealing with. The CAPi will cover the bacterial ones you list, but you may need to treat the viral components seperately. Sounds like your doc is watching out for you. As Louise noted, most folks have to shake the tree pretty hard to get attention to these things by their doctor.

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Thanks everyone:)

I went to see my ENT yesterday and he was really straightforward - he was looked at my shortened list and says  -I bet some docs have treated you like you are crazy huh? I am not going to though. That was refreshing. He was like- either you are crazy or you have lymes or something like cpni... which he actually knew what it was- that was comforting since many docs I have seen didnt -I know that is no shocker to any of you:) hehe

I am going in for a sinus CT on Friday to see what is up there-- maybe deviated septum causing this ear clog of 5 months now... 

The comforting thing was - he felt all the weird lymphs in my neck and the one behind my ear and said- Yes I feel them... no I wouldnt be worried abotu any of them... and he is a surgeon that routinely works on lymphoma issues... so that is comforting;) my lymphs are just freaked out with all of this. I prayed specifically for some good answers and not a run around and I really got that answer. 

 

THanks for all who are walking with us newbies:) to help us get going and get our heads on straight.

 

MelissaSmile

Melissa

HIGH EBVi 2/08,card/resp sxi,numb hand,musc twitch/pains,neg for msi/lupus,scans hd 2 toe, abd/jnt/lymph pain, dizzy/fatigue, lymph swelling, lyme susp 9/08- igx-1 ++, cd57 52, CMV+, HHV6, MYCO-CAP11/08 NACi,Dxy,Zithi MWF+sups

Great news, Melissa!

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Melissa,

Fantastic!   Definitely musical words.  Hang on to this guy - and he actually has heard of cpni? - impressive.

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Has anyone used rocephine to fight the infection on iv doxyi

please let me know.

 

Thanks.

I've used and done approx. 3 cycles of IV rocephini - all for varying lengths of time. I have no knowledge of IV doxyi.

It must be even more difficult for you when English is not your first language.

Keep reading and searching.We're al in the same boat and support each other.

PM me if you need more clarification.

diagnosed MSi Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi 100 mg. 1BID. roxyi.150 mg.? BIDi,adding rifampin soon, pulsed tinii. every 3 weeks, as of oct.17/08, rifampin,naltrexone (LDNi),NACi, nystatin, major wheldon supplemrnts daily,

I've used and done approx. 3 cycles of IV rocephini - all for varying lengths of time. I have no knowledge of IV doxyi.

It must be even more difficult for you when English is not your first language.

Keep reading and searching.We're al in the same boat and support each other.

PM me if you need more clarification.

diagnosed MSi Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi 100 mg. 1BID. roxyi.150 mg.? BIDi,adding rifampin soon, pulsed tinii. every 3 weeks, as of oct.17/08, rifampin,naltrexone (LDNi),NACi, nystatin, major wheldon supplemrnts daily,

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